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BASSMAN
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« on: January 24, 2008, 04:50:06 PM »
I am 46 years old.  I was diagnosed with  membranous glomerulonephritis at the age of 26.  For the past 20 years I have gradually lost kidney function.  I just entered stage IV.  My kidney function was 27 % with my last blood work.  My doctor has begun to talk to me about dialysis.  I have lived a normal life the past 20 years.  That is starting to change.  I am starting to feel tired much of the time.  I have a lot of questions to ask and I will in the appropriate forums.  My biggest question probably cannot be answered but I will ask it anyways.  Anyone want to guess what it will be?

More on that later,

I am a husband, a father, a grandpa.  My screen name came from a passion for bass fishing, but it is a double meaning name.  I started learning guitar a few years ago and I am now learning bass guitar as well.  So, call me BASSMAN (as in the fish) or BASSMAN ( as in playing bass guitar) :rant;  Either is fine with me.

I moderate on a guitar forum, so I am a little experience with internet forums and how they work and what is acceptable and such.  I did read all of the introductory threads.  I expect to be a frequent member and poster as I have a lot of questions.  I have read a lot over the years about my disease but there is no better information out there than talking to people that know first hand.

A thank you to the creator of this site!  I may be confused, but from what I have read, did he recently pass away?

Looking forward to being a part of this community,
BASSMAN
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
oswald
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« Reply #1 on: January 24, 2008, 04:56:49 PM »
 :welcomesign; to IHD mr. bassman.  good to have you aboard  :beer1;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
kellyt
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« Reply #2 on: January 24, 2008, 05:04:31 PM »
:waving;   Bassman.   My father played the bass in a local band.  It's my favorite instrument!   :)

 :welcomesign;

Oh, and yes, Epoman has passed.  I joined IHD after his passing, so I don't know him personally.  But he is well thought of by all at IHD.  This is a great place to start and end.  Look forward to chatting with ya in the future.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
BASSMAN
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« Reply #3 on: January 24, 2008, 05:10:21 PM »
Thanks oswald!!

Holy cow man!!!!    3 transplants!!!!!

God Bless you!!!!  I can just bet that a face to face conversation with you could wake some people up!!
Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
BASSMAN
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« Reply #4 on: January 24, 2008, 05:13:33 PM »
Quote from: kellyt on January 24, 2008, 05:04:31 PM
:waving;   Bassman.   My father played the bass in a local band.  It's my favorite instrument!   :)

 :welcomesign;

Oh, and yes, Epoman has passed.  I joined IHD after his passing, so I don't know him personally.  But he is well thought of by all at IHD.  This is a great place to start and end.  Look forward to chatting with ya in the future.


Thanks kellyt!!!

Music is a great escape from anything bothering you!  I have sang in bands but I am not good enough on guitar to play in one.  I do my own thing, cover songs and an original or two.
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
Ang
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« Reply #5 on: January 24, 2008, 05:18:27 PM »
 :welcomesign;  aboard  bassman, :thumbup;
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live  life  to  the  full  and you won't  die  wondering
Sluff
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« Reply #6 on: January 24, 2008, 05:21:11 PM »
Welcome Bassman to ihatedialysis.com

I appreciate the fact that you will be asking lots of questions because there is no where better to ask than the people who have been there. So with that said ask away.
The owner of this site passed away March 2nd 2007 and left his legacy amongst these forum threads. It was his belief that everyone have a voice about their medical care whether it was positive or negative, so be prepared to see both perspectives. Read and post all you want.

Thanks for taking the time to post your introduction.

Sluff/ admin
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BASSMAN
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« Reply #7 on: January 24, 2008, 05:27:31 PM »
Thanks ang and sluff for the warm welcome.  You guys are quick and that makes mew members feel even more welcome!

I will get the profile going soon.  I just wanted to start posting.  I am rather impatient sometimes!
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
angela515
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i am awesome.
« Reply #8 on: January 24, 2008, 06:24:03 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
BASSMAN
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« Reply #9 on: January 24, 2008, 06:35:01 PM »
Quote from: angela515 on January 24, 2008, 06:24:03 PM
:welcomesign;

Thank you!
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
LightLizard
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« Reply #10 on: January 24, 2008, 07:53:39 PM »
welcome to the forum, Bassman. YAY, another musician! i've drummed for over 40 years and am always happy to meet a fellow player, it's unfortunate that it's under these conditions, but like the baxter delivery man told me, 'you now belong to a very, very exclusive club.


you'll find this site really helpful, i'm sure. from the loving support to the pages of info that you can't get anywhere else.

there's a few guitar players here, too, so we should get a dialysis band going, soon!

rock on!

LL
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Steve-0
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« Reply #11 on: January 24, 2008, 09:42:49 PM »
Hey man.

I love fishing and I love my guitar... so, already, I appreciate you.

Glad you joined, and good luck with everything in the future.

~Steve
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oswald
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« Reply #12 on: January 24, 2008, 10:08:05 PM »
heyyyy!!!  between the three of you, steve-o, light lizard, and bassman, i see an IHD band coming together.  how about it fellas?     ;musicalnote; ;musicalnote;  bang your head  :banghead; dialysis will drive you mad  ;musicalnote; ;musicalnote;  :bandance; :bandance;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
donnia
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me and my donor Joyce
« Reply #13 on: January 25, 2008, 03:34:37 AM »
 :welcomesign; BASSMAN,  this is the best place to get answers to your questions!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willieandwinnie
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« Reply #14 on: January 25, 2008, 03:59:42 AM »
:welcomesign; BASSMAN. This site is amazing and so are the people.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!
« Reply #15 on: January 25, 2008, 05:18:57 AM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
bolta72
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my best friend
« Reply #16 on: January 25, 2008, 05:23:43 AM »
Wow!! maybe a I.H.D. band, I hear the beat already. :bandance; :bandance;
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gotta do what I gotta do.. 2 yrs in ctr hemo
rose1999
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« Reply #17 on: January 25, 2008, 06:30:22 AM »
Quote from: oswald on January 24, 2008, 10:08:05 PM
heyyyy!!!  between the three of you, steve-o, light lizard, and bassman, i see an IHD band coming together.  how about it fellas?     ;musicalnote; ;musicalnote;  bang your head  :banghead; dialysis will drive you mad  ;musicalnote; ;musicalnote;  :bandance; :bandance;
And Ken can do lead vocals - yeah off we go!!!!!!!!!!!!!!!!! :clap;
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paris
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« Reply #18 on: January 25, 2008, 10:25:19 AM »
 :welcomesign;  Great post.  Glad you found us and hope to hear more about you.

RE: the IHD band---Romona and I are great roadies!  We are the official co-presidents of Ken's fan club, so we have experience with the groupies!! :rofl;  As you are finding out, humor helps get us through tough times.    ;D
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
BASSMAN
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« Reply #19 on: January 25, 2008, 04:00:22 PM »
Wow, this is overwhelming,

Thank you all for the warm welcome!!!!
Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
BASSMAN
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« Reply #20 on: January 25, 2008, 04:03:54 PM »
Quote from: oswald on January 24, 2008, 10:08:05 PM
heyyyy!!!  between the three of you, steve-o, light lizard, and bassman, i see an IHD band coming together.  how about it fellas?     ;musicalnote; ;musicalnote;  bang your head  :banghead; dialysis will drive you mad  ;musicalnote; ;musicalnote;  :bandance; :bandance;

I do know a little about online music collaborations.  I have done several through the guitar forum.  I would like to get to know the musicians on the site and heck yea, we can do the dialysis blues or something.  I wouldn't write the lyrics though as I have not experienced it yet and I hope that i maintain what function I have left and not have to.
Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
Sluff
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« Reply #21 on: January 25, 2008, 04:04:52 PM »
Sir Ken can do the lyrics.
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BASSMAN
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« Reply #22 on: January 25, 2008, 04:20:00 PM »
Quote from: Sluff on January 25, 2008, 04:04:52 PM
Sir Ken can do the lyrics.


I have some things going on right now but I will post up a blues drum beat and bass line to my soundclick when I have it ready. I would like to start a thread and see if anyone wants to add to it.  Is it ok to post a link to a soundclick account.  If not, we can do it by PM's.  I can help those that want to participate in the recording process.  I use freeware for my recording called Audacity and upload to soundclick. 
Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
oswald
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« Reply #23 on: January 25, 2008, 04:51:56 PM »
don't be modest sluff.  you can sing too.  that was a really good song about your pop.   ;D
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Ohio Buckeye
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« Reply #24 on: January 25, 2008, 04:56:36 PM »
Welcome to the IHD Family Bassman.
You'll find lots of helpful info here.
An IHD band to perform at the annual get together  hum............
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If I must do this to live, I must strive to live
while I am doing this.
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