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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Transplant Discussion
Another Phone Call
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Topic: Another Phone Call (Read 31940 times)
okarol
Administrator
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Photo is Jenna - after Disneyland - 1988
Re: Another Phone Call
«
Reply #75 on:
January 12, 2008, 02:13:22 PM »
Jenna stayed 3 days in the hospital - they say the nasty hospital germs are the reason to leave as soon as you're able!
Great to hear your creatinine is so good Katie!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......
Re: Another Phone Call
«
Reply #76 on:
January 12, 2008, 03:12:09 PM »
That is terrific news KT.
Hope your feeling well too
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....and i think to myself, what a wonderful world....
www.kidneyoogle.com
glitter
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Re: Another Phone Call
«
Reply #77 on:
January 12, 2008, 04:02:32 PM »
wow! I am so happy for you!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Lori1851
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This is me Lori , Dustin's mom
Re: Another Phone Call
«
Reply #78 on:
January 12, 2008, 04:34:06 PM »
So happy for you Katie!!!!!!!!! Please keep us posted!!!
Lori/Indiana
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thegrammalady
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Re: Another Phone Call
«
Reply #79 on:
January 12, 2008, 05:25:00 PM »
and all that stuff. i'm so glad to hear everything is going so well. what a wonderful way to start the new year.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
kitkatz
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Re: Another Phone Call
«
Reply #80 on:
January 12, 2008, 07:28:05 PM »
Hurray!
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
donnia
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me and my donor Joyce
Re: Another Phone Call
«
Reply #81 on:
January 12, 2008, 08:37:26 PM »
Yeaaaaa!!!! Congrats!!!!!!
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Mimi
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For any who do not like me I use - prayer.
Re: Another Phone Call
«
Reply #82 on:
January 12, 2008, 10:53:32 PM »
Awesome!!!!!!! Good Luck!
Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
KT0930
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Re: Another Phone Call
«
Reply #83 on:
January 13, 2008, 05:01:00 PM »
**Warning, LONG!**
Hey guys, thanks for all the great thoughts and congrats! I'm home, and a little stiff from that awful bed in the hospital, but had a white pizza for dinner tonight (well, 2 slices, anyway) and am sipping a caffeine free diet coke (physician assistant's orders, phos is LOW!). Ok, here's the story as best I can tell it.
At about 9:30 pm on Tuesday night, my HUSBAND'S cell phone rang, and it was a transplant coordinator I had never spoken to. Anyway, she said that they had been offered a kidney in Oklahoma, and if they decided to take it, I was the first one up for it on their list. She said they were scheduled to go into recover the organs around midnight (Oklahoma time), and she would call me as soon as they knew something. I made myself go to sleep around 11:00, and woke up around 5:00, wondering why I hadn't heard anything. I dozed for about another hour and a half before she called again, just to say she still didn't know anything. She told me to go about my usual morning routine, and even go on into work, because obviously nothing was happening fast.
So I got to work a little late, because OF COURSE my cycler screwed up that night and I didn't finish until late, then I had to pack my bag, "just in case", etc, etc. I got into work about an hour late, but had called one of the managers the night before and explained what was going on, so they were ok with it. The transplant coordinator called me back around 9:45 a.m. and told me to plan on getting to the hospital around noon. That was the perfect amount of time to get my work done and catch up the guy who's going to be covering my job for the next three months.
Got to the hospital at noon, and it was hurry up and wait, because the final cross-match can take up to three hours or more to get the results back, and they weren't even expecting the kidney to get to Atlanta until around 2:00 or 3:00. Thankfully, I had a fabulous nurse who loved hanging out with me and my husband and kept us up-to-date on absolutely any news he got.
Finally at 7:30, the nurse came in and said we had to drain my PD fluid because we were going to surgery. In the confusion, she didn't have the proper Fresenius-to-Baxter adapter, and the surgeon, being a typical surgeon, was impatient, and said that he'd take care of it in the OR. I was on a gurney and on my way to pre-op at 7:35. I even called my son on my way to pre-op. (He was running around my parents' house, yelling "She's getting a kidney!!!" at the top of his lungs. I'm not sure, but I think he was excited!)
I was wheeled into the OR at about 8:00, but had not yet been given anything for sleeping, so I looked over in the corner, and there's a guy in full surgical garb, cutting "extra" stuff off MY KIDNEY! Wow, I even got to see it, that was COOL!
As best as I understand it, the surgery started right around 9:00 p.m., and ended around 1:00 a.m. I stayed in post-op for a couple of hours and got back to my room about 3:00 a.m. I spent most of that day sleeping, thanks to getting morphine injections in my IV once an hour, but then they figured out that I wasn't using my button at all and cut out the once an hour stuff, so I still had the button, but could only get it that way. I actually did not use much. I think I used three or four shots after they turned it off, and that was for coughing, doing the breathing exercises, and moving to a different position in bed. I haven't had anything for pain since probably Thursday night or maybe Friday morning.
The surgeon was ready for me to go home yesterday, but my Hematorcrit was only 7.9 and my Hemoglobin was 23, and the marker to indicate that I'll produce more of those (allucrit) was normal, so they wanted to give me another intravenous iron treatment. Today the allucrit was up, so they were happy to send me home on my pre-transplant dose of epogen (thankfully I still have enough left!).
Right now I'm on Prograf, cell-cept, prednisone, Nexium, valcyte (I've had CMV in the past), Dapsone (to prevent bacterial infections), aspirin, a multi-vitamin and K Phos.
I feel great, my thoughts are clear, I'm remembering things in conversations that I wouldn't have a week ago, and I get to sleep in my own bed tonight without being connected to a dialysis machine. LIFE IS GOOD!
Thanks everyone for all the support and encouragement and friendship I've found here. Y'all are a great group, and I'm here to stay, so don't think you'll get rid of me that easily! Here's to many more transplants in 2008 for the IHD family!!!
Logged
"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Romona
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Re: Another Phone Call
«
Reply #84 on:
January 13, 2008, 05:56:42 PM »
I am so happy for you! Each time I read someone's transplant story I feel I am reliving mine.
You are not a large amount of drugs. Make sure you rest.
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paris
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Re: Another Phone Call
«
Reply #85 on:
January 13, 2008, 06:05:01 PM »
Katie, this is so amazing. Thank you for sharing everything with us. It is incredible how well you are doing. You are such an inspiration to all of us who are waiting. Get lots of rest and enjoy your new kidney. We love you!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
boxman55
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Re: Another Phone Call
«
Reply #86 on:
January 13, 2008, 06:20:06 PM »
Wow Katie, you are one tough cookie. reading your story just makes me so very happy for you. Please take care and keep us posted...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
glitter
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Re: Another Phone Call
«
Reply #87 on:
January 13, 2008, 06:23:53 PM »
I am just thrilled for you!!
here to continued health!!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Amanda From OZ
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Re: Another Phone Call
«
Reply #88 on:
January 13, 2008, 06:36:51 PM »
wow sorry this is late, but this is fabulous news.!!!
Congratulations!! i am so happy for you.
Hope you feel better every day.
Amanda
xxoo
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kellyt
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Re: Another Phone Call
«
Reply #89 on:
January 13, 2008, 06:40:23 PM »
Quote from: willieandwinnie on January 12, 2008, 01:45:07 PM
Good for you Katie. Rest, walk, drink a lot and pee. Hope to hear from you soon.
eew!
I read too fast and read " Rest, walk, drink a lot of pee". yuk!
What an amazing story! I'm so glad you're home and doing well.
How exciting.........
«
Last Edit: January 13, 2008, 06:46:35 PM by kellyt
»
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
Sunny
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Sunny
Re: Another Phone Call
«
Reply #90 on:
January 13, 2008, 06:48:06 PM »
Amazingly good news. Can't believe you are already home. I am so happy for you, and I'll bet your family is ecstatic.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
goofynina
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He is the love of my life......
Re: Another Phone Call
«
Reply #91 on:
January 13, 2008, 07:22:44 PM »
Welcome Home KT, thank you for sharing your story with us, you just keep getting all the rest you need so you can feel back to 100% in no time
Looking forward to hearing more positive updates
«
Last Edit: January 13, 2008, 07:31:49 PM by goofynina
»
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....and i think to myself, what a wonderful world....
www.kidneyoogle.com
Roxy
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Re: Another Phone Call
«
Reply #92 on:
January 13, 2008, 07:30:48 PM »
That's awesome news! Glad to hear you are doing so well!!
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jbeany
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Cattitude
Re: Another Phone Call
«
Reply #93 on:
January 13, 2008, 09:20:26 PM »
Home sweet home!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
Wattle
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Re: Another Phone Call
«
Reply #94 on:
January 13, 2008, 10:10:51 PM »
Katie that was a great update!! Welcome home super patient! Are you still going in daily for bloods?
All we need now is some
Logged
PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
charee
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Re: Another Phone Call
«
Reply #95 on:
January 13, 2008, 10:35:28 PM »
Welcome home Katie
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
Re: Another Phone Call
«
Reply #96 on:
January 14, 2008, 02:03:41 AM »
Congratulations Katie ! WOOHOO
Logged
ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
2_DallasCowboys
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Re: Another Phone Call
«
Reply #97 on:
January 14, 2008, 04:27:22 AM »
Congrats, Katie!!!
I can only imagine how good it must feel
to be home! Enjoy your own bed, and that
new kidney! Keep everyone posted on how
all is going.
Anne
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Sluff
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Re: Another Phone Call
«
Reply #98 on:
January 14, 2008, 04:29:33 AM »
Congratulations Katie. Glad to see you are home already.
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skyedogrocks
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Rob showing off his pot of gold!
Re: Another Phone Call
«
Reply #99 on:
January 14, 2008, 05:34:09 AM »
Yeah Katie, wooohoo!!! Congrats girl!!!!
Logged
Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.
11/17/09 After 4 years on dialysis, Rob received a kidney from our George. Kidney is working great! YEAH!!!!
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