Ignorant things people have said to you

[sarahmanda]

But I HATE ....
When I'm out with friends or family & someone is like Eww.. whats that on your arm. I'm already self consious about how my arm looks do you think you need to make me feel worse? And I tell them its for my dialysis & then its like 20 questioins about why Im like this.

I call them my alien eggs

[gothiclovemonkey]

But I HATE ....
When I'm out with friends or family & someone is like Eww.. whats that on your arm. I'm already self consious about how my arm looks do you think you need to make me feel worse? And I tell them its for my dialysis & then its like 20 questioins about why Im like this.

I call them my alien eggs

I have had 2 members of my family(brother and aunt) tell me to cover my fistula arm for family gatherings because it nauseated them to see it, and they dont want to disgust anyone. I had to wear long sleeves to a summer wedding in texas....

Ive had a stranger ask me if i had implants in my arms.. that cracked me up. I looked at it for a minute, thinking , "COuld i say they were implants??" Too bad i couldnt get a snake or something tattooes over it!!!!

[jbeany]

Next family gathering - a henna tat!

[bleija]

Wow gothic that's crazy. I dnt think I would done it. I wolda just been like its hot I am not wearing long sleeves n summer bc u r nauseated. That ur prob not mine.

[gothiclovemonkey]

i almost didnt go. They dont seem to care too much for me...  in fact, i havent really been invited to the last 2 family functions, idk why. I think I remind them too much of my late mother. Its unfortunate, because they are all I have left besides my father. My father is great though! (even if he is married to a psycho!)

[MommyChick]

But I HATE ....
When I'm out with friends or family & someone is like Eww.. whats that on your arm. I'm already self consious about how my arm looks do you think you need to make me feel worse? And I tell them its for my dialysis & then its like 20 questioins about why Im like this.

I call them my alien eggs

I have had 2 members of my family(brother and aunt) tell me to cover my fistula arm for family gatherings because it nauseated them to see it, and they dont want to disgust anyone. I had to wear long sleeves to a summer wedding in texas....

Ive had a stranger ask me if i had implants in my arms.. that cracked me up. I looked at it for a minute, thinking , "COuld i say they were implants??" Too bad i couldnt get a snake or something tattooes over it!!!!

I'm with you on the tattoo part it would be cool if we could
But that was rude of your family to say that.. Normally I try & wear 3/4 sleves because it covers it up but in 90 degree weather I want to wear tanks. I know if some of my friends or family had to wear a fistula for a day I know they'd feel self-conscious & be freaking out, lol

[sarahmanda]

I have had 2 members of my family(brother and aunt) tell me to cover my fistula arm for family gatherings because it nauseated them to see it, and they dont want to disgust anyone. I had to wear long sleeves to a summer wedding in texas....

Ive had a stranger ask me if i had implants in my arms.. that cracked me up. I looked at it for a minute, thinking , "COuld i say they were implants??" Too bad i couldnt get a snake or something tattooes over it!!!!

I actually have a family reunion this weekend and I was thinking about people seeing my fistula just this morning. It really sucks that your family isn't more supportive, but if it were me I'd want to just go in flaunting it, just to piss them off, haha.

[gothiclovemonkey]

 
sometimes, thats what you gotta do!

[MommyChick]

sometimes, thats what you gotta do!

Do it & tell them to kiss your  they shouldn't make you feel bad for something you can't control!!

[my5issues]

OK, so mine was....

So you mean you won't be able to drink liquor?...like never?

(that seemed to be their main concern when I told them the news)   

[MommyChick]

OK, so mine was....

So you mean you won't be able to drink liquor?...like never?

(that seemed to be their main concern when I told them the news)   

Ooo yes, I have heard that one too , & I used to tell them I dont have any kidneys ..you want me to stay drunk till my next dialysis session, lol

Here is another one... you dont pee??? they get very confused by that one, haha They think im an alien or somthing, 

[CebuShan]

But I HATE ....
When I'm out with friends or family & someone is like Eww.. whats that on your arm. I'm already self consious about how my arm looks do you think you need to make me feel worse? And I tell them its for my dialysis & then its like 20 questioins about why Im like this.

I call them my alien eggs

I have had 2 members of my family(brother and aunt) tell me to cover my fistula arm for family gatherings because it nauseated them to see it, and they dont want to disgust anyone. I had to wear long sleeves to a summer wedding in texas....

Ive had a stranger ask me if i had implants in my arms.. that cracked me up. I looked at it for a minute, thinking , "COuld i say they were implants??" Too bad i couldnt get a snake or something tattooes over it!!!!

I'm with you on the tattoo part it would be cool if we could
But that was rude of your family to say that.. Normally I try & wear 3/4 sleves because it covers it up but in 90 degree weather I want to wear tanks. I know if some of my friends or family had to wear a fistula for a day I know they'd feel self-conscious & be freaking out, lol

I DO wear tank tops and sun dresses. I live in a small town and if people here don't know the truth, they make something up! So I don't care what they think!   
GLM: you are welcome at my house any time! We could call it a family function!

[MommyChick]

I DO wear tank tops and sun dresses. I live in a small town and if people here don't know the truth, they make something up! So I don't care what they think!   
GLM: you are welcome at my house any time! We could call it a family function!

I wear them too, I just hate when people are rude ! 
But the people who arnt rude seem very curious about dialysis & kidney transplants... & some have even asked for info on getting tested. Now if they did I'll probably never know since there not friends or family.








EDITED: Fixed quote tag error- kitkatz, Moderator

[CebuShan]

My husband & I talked about this today. I asked if he thought my fistula is ugly. His response was "No, it just looks bruised sometimes". I agree, it does but actually, my eyes usually look worse. When I have put on more fluid than usual, I look like I have 2 black eyes! I'm not kidding! I had to go to the ER one night and they walked me out of the room (my husband was there) to go for a test and after we turned the corner, they started asking me why I had 2 black eyes! When I told my husband later, he was quite insulted!

[bleija]

i would ask my husband if my PD cath bothered him. and he always answered no, the only thing that bothered him were all the scars on my stomach. he just misses when my stomach was normal. we were friends before i found out anything about my kidney failure, he was one of the first ppl i felt i could confide in, it was easy to talk to him, he knows i cant control it, and he doesnt hold it against me in any way, but he is honest so i trust when he tells me it ddnt bother him.

[gothiclovemonkey]

But I HATE ....
When I'm out with friends or family & someone is like Eww.. whats that on your arm. I'm already self consious about how my arm looks do you think you need to make me feel worse? And I tell them its for my dialysis & then its like 20 questioins about why Im like this.

I call them my alien eggs

I have had 2 members of my family(brother and aunt) tell me to cover my fistula arm for family gatherings because it nauseated them to see it, and they dont want to disgust anyone. I had to wear long sleeves to a summer wedding in texas....

Ive had a stranger ask me if i had implants in my arms.. that cracked me up. I looked at it for a minute, thinking , "COuld i say they were implants??" Too bad i couldnt get a snake or something tattooes over it!!!!

I'm with you on the tattoo part it would be cool if we could
But that was rude of your family to say that.. Normally I try & wear 3/4 sleves because it covers it up but in 90 degree weather I want to wear tanks. I know if some of my friends or family had to wear a fistula for a day I know they'd feel self-conscious & be freaking out, lol

I DO wear tank tops and sun dresses. I live in a small town and if people here don't know the truth, they make something up! So I don't care what they think!   
GLM: you are welcome at my house any time! We could call it a family function!

Small towns SUCK! Ive heard everything, when i was ten i missed a bunch of school for a major surgery to remove a 25lb tumor, when i returned, people were saying I had cancer, aids, i was pregnant... o.0 really?

Id love to have a family function with ya'll!

[cariad]

Small towns SUCK! Ive heard everything, when i was ten i missed a bunch of school for a major surgery to remove a 25lb tumor, when i returned, people were saying I had cancer, aids, i was pregnant... o.0 really?

Id love to have a family function with ya'll!

When I had a rejection episode as a kid and was out of school for a week, the biology instructor at school (who insisted on going by Dr. rather than Mr.) told all the teachers at the staff meeting that I was DEFINITELY going to need another transplant. He was right, it just took 25 more years for it to be necessary.

[Dameeka]

I had the winner yesterday, I was talking with my sister and one of her friends and explaining I was tired because I took off 5 kilos on dialysis last night.  Next question was how many pounds is that?  I sad about 12lbs and her friend acutally said "How can I get on one of those machines that would be awsome to loose 12lbs in 3 1/2 hours".  AMAZING!!!!!!!!!

Could they have said anything else that was stupid, people don't think.....

[MommyChick]

I had the winner yesterday, I was talking with my sister and one of her friends and explaining I was tired because I took off 5 kilos on dialysis last night.  Next question was how many pounds is that?  I sad about 12lbs and her friend acutally said "How can I get on one of those machines that would be awsome to loose 12lbs in 3 1/2 hours".  AMAZING!!!!!!!!!

Could they have said anything else that was stupid, people don't think.....

If only it were that easy,    At least you made me laugh tonight 

[gothiclovemonkey]

LOL i always "amaze" people with that... you lost ten lbs in 2 years? oh ya? i lost 14 lbs in like 3 hours wooohoooo! they look at me like im insane.

[chiromac]

Just had the must frustratitng comment about my surgical scare on the forearm.  I was out with my nephews (4 & and I had some NEW BORN RELIGIOUS NUT ask me "why did I try to kill my self and I needed to Find Jesus."  After ripping this person a new one, explaining a few tidbits from the Old Testament and indirectly teaching my nephews a few colorful words; I realized I can get a transplant to fix my health issues, but this inbred moron has no hope of a transplant to fix his issues.

[MommyChick]

Just had the must frustratitng comment about my surgical scare on the forearm.  I was out with my nephews (4 & and I had some NEW BORN RELIGIOUS NUT ask me "why did I try to kill my self and I needed to Find Jesus."  After ripping this person a new one, explaining a few tidbits from the Old Testament and indirectly teaching my nephews a few colorful words; I realized I can get a transplant to fix my health issues, but this inbred moron has no hope of a transplant to fix his issues.

Wow.. That's horrible & to say that in front of your 4 year old nephew.
Good for you in putting him in his place & telling him off !!
What an jerk 

[galvo]

Well done, chiromac!

[JasonEb]

I've been lucky enough to have the same fistula for almost 12 years now.  Unfortunately, though, I have basically a track mark that runs from about 2 inches above the rest (a little after where the fistula surgery scar ends) up to about an inch and a half shy of the end of my forearm.  I also am one of those who only wears short sleeves (even in winter), wear my hair long, and tend to have a stubble.

For the most part, the general populace asking me what happened to my arm doesn't bother me.  It gives me a chance to enlighten them a bit.  What does bother me a bit is two things...both usually at the grocery store:

1)  I can hear people whispering behind me in line, "Look at that guys arm," or "That guy must shoot up" or similar things like that.

2)  The cashier will be all friendly to me until he/she sees my arm (like if I hand them some money) and you can see their eyes quickly glance at my arm, then they get that nervous smile/attitude where they are trying to act like they didn't see anything but you know they did.  If I'm feeling particularly ornery when these happen, I'll sometime pretend to act all twitchy and meth-y.

I've always wanted to have two t-shirts made.  The first would read on the front (in big letters) "I AM NOT AN IV DRUG USER" and the back would read "I am a dialysis patient".  The second would read "Curious about the arm?" on the front and the back would read "It's okay to ask."

[cassandra]

I really like the second one, I wouldn't dare walking around with the first one. Way too many users where I would walk around. Might get yet another scar.