Ignorant things people have said to you

[stauffenberg]

Because serious illness is extremely rare in a human population which has been evolving for a million years to weed out all the genetic types likely to become sick, most people can abuse their body with drugs, drink, excessive food intake, lack of exercise, and lack of sleep and yet still remain essentially healthy.  Just look at all the street people sleeping in cardboard boxes and drinking mouthwash for the inexpensive alcohol they can get from it and eating little else -- they all must have two perfectly functioning kidneys, even after years of living like that, or they would be dead!

As a result, when you let some healthy person know how sick you are, he will automatically assume you must have severely abused your body in some dreadful and stupid way in order to have become that ill, because in his own experience, no matter how careless of his health he may be, he simply cannot get sick.

[mallory]

Because serious illness is extremely rare in a human population which has been evolving for a million years to weed out all the genetic types likely to become sick, most people can abuse their body with drugs, drink, excessive food intake, lack of exercise, and lack of sleep and yet still remain essentially healthy. Just look at all the street people sleeping in cardboard boxes and drinking mouthwash for the inexpensive alcohol they can get from it and eating little else -- they all must have two perfectly functioning kidneys, even after years of living like that, or they would be dead!

As a result, when you let some healthy person know how sick you are, he will automatically assume you must have severely abused your body in some dreadful and stupid way in order to have become that ill, because in his own experience, no matter how careless of his health he may be, he simply cannot get sick.

Stauffenberg, That is so true!  I find it so strange that a lot of people think I must have done something to make my kidneys fail, and so now I "deserve" having dialysis because of whatever it was that I did.  I didn't do anything!  I got vasculitis!  I want to say to some people, "This could happen to you, too, you know!"

[angieskidney]

As a result, when you let some healthy person know how sick you are, he will automatically assume you must have severely abused your body in some dreadful and stupid way in order to have become that ill, because in his own experience, no matter how careless of his health he may be, he simply cannot get sick.

Amazingly enough that has been proven true as people keep asking me if I lost my transplant from DRINKING!! WTF!?!?!??!?!?!?!?!   

a lot of people think I must have done something to make my kidneys fail, and so now I "deserve" having dialysis because of whatever it was that I did. I didn't do anything! I got vasculitis! I want to say to some people, "This could happen to you, too, you know!"

EXACTLY!!! I had reflux!! It wasn't my fault the doc never believed my mom enough to run tests and find it and operate when I was a baby!!  But ya .. maybe that is why people don't care about donating kidneys ..

[jbeany]

As a result, when you let some healthy person know how sick you are, he will automatically assume you must have severely abused your body in some dreadful and stupid way in order to have become that ill, because in his own experience, no matter how careless of his health he may be, he simply cannot get sick.

one more example of that . .
My mother and aunt both died from liver failure.  Every doc I've ever had automatically assumes during my family history discussion that it was alcohol related.  Neither one of them drank - my mother's was medical error; my aunt's was genetic.  There are plenty of reasons for liver failure that have nothing to do with cirrhosis.

[kitkatz]

Or to me as they are reading my chart..."You're diabetic, right?"    "No asshole. Read the chart.  I am not diabetic."  I hate the assumptions just because a lot of other people have ESRD and are diabetic, I fit the mold.  Sheez!

[angela515]

Or to me as they are reading my chart..."You're diabetic, right?"    "No asshole. Read the chart.  I am not diabetic."  I hate the assumptions just because a lot of other people have ESRD and are diabetic, I fit the mold.  Sheez!

Exactly

[AlasdairUK]

Or to me as they are reading my chart..."You're diabetic, right?" "No asshole. Read the chart. I am not diabetic." I hate the assumptions just because a lot of other people have ESRD and are diabetic, I fit the mold. Sheez!

Oh so your not diabetic, my bad. 

Hope your stick is not too close. Aw that hurt. Next time I will make sure I satnd a little further from Kitkatz BIG stick. That grumpy diabetic. You know what she is like when her blood sugar drops. Aw, need to stand further, Aw, Back. Damn that BIG stick Aw. 

[kitkatz]

 

If that were any funnier, I would be laughing!

[jedimaster]

Oooooops....is this a site for Dialysis patients?....oooops....wrong site ....I have Dualyisis....

[angieskidney]

Oooooops....is this a site for Dialysis patients?....oooops....wrong site ....I have Dualyisis....

See attachment

[jbeany]

Hmmm . .  - wouldn't that be Duelalysis?  Make one of them the patient and put one in a white coat - 

I think my doc would be much more helpful if I had a light saber. . .

[angieskidney]

Hmmm . .  - wouldn't that be Duelalysis?  Make one of them the patient and put one in a white coat - 

I think my doc would be much more helpful if I had a light saber. . .

hahahahha!!! 

[Zach]

Because serious illness is extremely rare in a human population which has been evolving for a million years to weed out all the genetic types likely to become sick....

What are you talking about?  Serious illness is extremely rare?
Tell that to folks with breast cancer, or colon cancer, or prostate cancer, or AIDS, or heart disease, or diabetes, or Hepatitis C.

Your theory doesn't wash.

[DeLana]

Because serious illness is extremely rare in a human population which has been evolving for a million years to weed out all the genetic types likely to become sick....

What are you talking about?  Serious illness is extremely rare?
Tell that to folks with breast cancer, or colon cancer, or prostate cancer, or AIDS, or heart disease, or diabetes, or Hepatitis C.

Your theory doesn't wash.

Well said.

DeLana   

[stauffenberg]

There are tens of thousands of different TYPES of disease, but some of these types are represented by only a handful of individuals per country, such as Hutchinson-Gilford's Disease, Progeria, von Recklingshausen's Syndrome, etc.  Anecdotal impressions to the contrary, hard epidemiological data shows that only a small percentage of the population is ever seriously and chronically ill.  Just look at renal failure: it may look like a major issue to us, but in fact, only one person in a thousand is on dialysis in the U.S. -- that's 0.1 %.

[angieskidney]

There are tens of thousands of different TYPES of disease, but some of these types are represented by only a handful of individuals per country, such as Hutchinson-Gilford's Disease, Progeria, von Recklingshausen's Syndrome, etc.  Anecdotal impressions to the contrary, hard epidemiological data shows that only a small percentage of the population is ever seriously and chronically ill.  Just look at renal failure: it may look like a major issue to us, but in fact, only one person in a thousand is on dialysis in the U.S. -- that's 0.1 %.

Well that would explain why there isn't a lot of commercials educating everyone like there is for cancer or smoking even  . I remember how they went all crazy with education for AIDS.

[Zach]

There are tens of thousands of different TYPES of disease, but some of these types are represented by only a handful of individuals per country, such as Hutchinson-Gilford's Disease, Progeria, von Recklingshausen's Syndrome, etc.  Anecdotal impressions to the contrary, hard epidemiological data shows that only a small percentage of the population is ever seriously and chronically ill.  Just look at renal failure: it may look like a major issue to us, but in fact, only one person in a thousand is on dialysis in the U.S. -- that's 0.1 %.

But of course what I was saying was that many people, if not most, know someone who is seriously ill.
Lets get real.  Progeria??

[stauffenberg]

I'll grant that most people probably know someone who is serioiusly ill, but how well do they know what the illness really means?  Most people who knew me when I was on dialysis either did not know I was a renal patient at all or, if they did, thought renal disease meant you had to take diuretic pills to urinate.

But the actual incidence of severe chronic illness -- after a million years of human evolution when everyone carrying either these inherited diseases, the disposition to develop them, or a lack of resistance to them was killed off by natural selection -- is small.  For example, the military with the strictest criteria in the world for accepting draftees for military service is the United States armed forces, and in World War II, when a high degree of nearsightedness, flat feet, insufficient teeth to chew hardtack, homosexuality, extreme tallness, shortness, or obesity, such that standard army issue boots and uniforms would not fit, were all reasons for rejecting people as "medically unfit" for service, 67% of all draftees were nonetheless found fit.  If even such trivial and common "problems" were grounds for finding someone unfit, the number of people rejected for truly serious medical conditions must have been a very small part of the 33% group of those unfit for service.

[okarol]

When people hear that Jenna has kidney failure and needs a transplant they ask, of course. "Is she on the list?"

I look at them and ask, "List?"

I love watching them try to explain it.

[jedimaster]

You should see their faces when I explain that the list is 8 years loooooooong. Usually they look to the other side....

[Fox_nc]

When people hear that Jenna has kidney failure and needs a transplant they ask, of course. "Is she on the list?"

I look at them and ask, "List?"

I love watching them try to explain it.

 

[Panda_9]

I was talking to a lady at the bustop the other day and she was telling me about the church she goes too. As usual I just pretend Im listening and she said she would put in a prayer for me. I thought that was lovely of her until she said how many people have benefited from their prayers and that hopefully if she puts one in for me I wont need a kidney. What the??

[angela515]

So the medical field doesn't know all that much either....everytime I go to the ER, they ask for your history of course, and I have to say I had a kidney transplant before. Everytime, this is the first question after I say that.. "Which kidney?"... Which kidney WHAT?? I had a whole new kidney put in... WTF.... where do these people go to school??? .."Was is it the right or left kidney?" uhm, neither? My kidneys failed and I had a new one put in.. so I have 3 kidneys in me, all of which dont work now. 

[angieskidney]

many people have benefited from their prayers and that hopefully if she puts one in for me I wont need a kidney. What the??

What the? lol

Some people .. I have come across that. Yes I am a strong believer in miracles .. but do they honestly think we can live without a kidney with out even any artificial kidney or anything? We need a kidney!

It really is amazing how little people know but what bugs me more (since I don't mind explaining) is the ones who THINK they know and try to tell YOU as if they have MORE experience with kidney disease than we do! 

So the medical field doesn't know all that much either....everytime I go to the ER, they ask for your history of course, and I have to say I had a kidney transplant before. Everytime, this is the first question after I say that.. "Which kidney?"... Which kidney WHAT?? I had a whole new kidney put in... WTF.... where do these people go to school??? .."Was is it the right or left kidney?" uhm, neither? My kidneys failed and I had a new one put in.. so I have 3 kidneys in me, all of which dont work now.

What??? I have never been asked "WHICH Kidney" that is absurd! Why would they ask which kidney? I don't get that! That is truely the MOST absurd thing I have ever heard! I mean, really, what difference does it make if it was left or right? It doesn't work, left or right do the same as each other! wtf 

[kitkatz]

Angie, when are you going to stomp your feet and yell at these stupid people?? Join me in standing up for yourself with the medical community!  Nice only goes so far.

Now that I have said some ignorant things, I return you to the original topic.  Thank you!