Ignorant things people have said to you

[G-Ma]

In the hospital...some nurses but all the nurse aides and techs...every two hours with their clipboard...how much have you peed? then most of them would want to know how I felt different, did I feel the need to pee...etc...so for a week when I could talk I had to give ESRD 101 for all..and this was on the nephrology floor.....I am so glad to be home.

[Katey]

Dumbest thing I have ever heard is "Can't you stop going to dialysis once you feel better?"  RIGHT don't we all wish we could stop?

[rose1999]

If one more person says "How's your Dad...is he still on dialysis?!"     I'm tempted to say "no, he's just decided to die instead" .

[idahospud]

I hate wen family and Friends ask how you are and whats Rog ? You tell theme pkd ckd and its hereditary thy tell it wont happen to you . to late here it is ! I'm OK with the fact I have it just don't try to lessen the fact it is what it is . You cant Chang it with a frays

[Jay72]

People... You have to realize most people don't have health issues and don't have a clue what dialysis really is.  Stop getting annoyed with them, they are curious and they wouldn't ask if they didn't care.  99% of the time they are not saying it to be mean.  Even the comments of "I wish I could lose six pounds in 4 hours"  damn take it is a joke they are certainly not trying to hurt your feelings..

JAy

[twirl]

Jay 72   what you post is true
            but after you have heard and been asked the same questions time after time - it gets old
            Did you find a new kidney yet? is one of my favorites

[Brightsky69]

One thing I find annoying is all of the people that know what I am going thru and they ask me "how are you doing?" I tell them "I am feeling better , thank you."  Then after that they just stare at me. Like that are waiting for me to say something else. What do they want me to say???

[Jay72]

I understand it gets old,  I have been going through this all my life....I am just saying that I never let it bother me because people just don't understand, sometime I find it easier to explain to them what the whole process of getting a transplant is like and what dialysis is and how it works and what it is for and then 9 times out of 10 you don't get the "annoying questions" but just a "how are you doing" or have you moved up on the list"  Stuff that just lets me know that the only reason they ask is because they care.

[Zach]

People... You have to realize most people don't have health issues and don't have a clue what dialysis really is.  Stop getting annoyed with them, they are curious and they wouldn't ask if they didn't care.  99% of the time they are not saying it to be mean.  Even the comments of "I wish I could lose six pounds in 4 hours"  damn take it is a joke they are certainly not trying to hurt your feelings..

JAy

I think you've got the right attitude.
 

[Brightsky69]

Sometimes I don't feel like going into the whole rigmarole. That is when I say I am doing good and want to leave it at that. But then they just stare at me like I should be on Discovery Health Channel. 95% of the time I don't mind educating people about dialysis and kidney transplants. There are just some days when I don't want to even think about it.

Off topic....I was sitting in clinic the other day thinking about how hemo dialysis is like prison. There we are all lined up in chairs (cells) unable to go anywhere or do anything. It's can be loud like a prison and there are some disturbed patients in my clinic (like a prison). And the dialysis room is even under lock down and there were two sheriff deputies hanging around....just like a prison.

[Run8]

I had a family member ask " Do you have to take Dialysis Today?" , like it was some kind of pill. Dont I wish.

[BigSteve]

Brightsky: Why is your unit under lock down with sheriffs' deputies hanging around?
Did you shot the sheriff?

[kitkatz]

Hehehehe!   Well you know how dialysis patients get sometimes.

[TynyWonder]

Twirl,

I agree with you.........sometimes it just gets freaking OLD!    I do realize that most people mean well but again, some people just do not freaking think!!!   Like last night, I wanted to stop by a store to get some colas (caffeine) and this old lady said to me, "why don't you just drink water, its better for you"      I laughed and said, "oh, that does not help me, my kidneys are already shot!"       

[monrein]

TW, now I hope you don't take this the wrong way but colas are not especially good for anyone, although of course small quantities aren't too problematic.  Even with my transplant I limited myself to the very occasional cola, like one a month, and not even that really.  For us, dialysis patients the phosphorus is the big concern and I consider cola phosphorus a total waste because it's totally empty of food value.  No nutritional benefits, no fibre, no nothing, for the phosphorus risk.  I've lost bone density already since April and I am more than very careful with my diet.  Being in a wheelchair on top of being on dialysis is scary enough for me to never drink cola again.

I know that it's hard to give up things we love to eat or drink but I don't find it that hard if I know that I'm helping to avoid more problems down the road.  Please don't take this as a lecture, I don't mean it that way.

[G-Ma]

Yes monrein...it's funny but my family and friends don't even drink pepsi or coke around me and if someone asks they will just say it's loaded with phosphorus and leave the people wondering.

[kitkatz]

You are a diabetic, right?   One more person asks me that, gets   

[twirl]

it would be nice to be more like monrein
but too late now
I had a root beer today ---- 10 ounces
we have been told root beer in okay
but about once a week --- I need a coke------ I buy the 8 ounce cans and think I am doing better, then I drink 3 of them
 

[jbeany]

monrein, you have more will power than I do - although I don't like pop at all, so that's never been an issue for me.  My phos addiction is peanut butter, preferably with chocolate!

Standing in the hospital today, watching the 3rd nurse try and start an IV on my sick, dehydrated aunt, when my uncle pipes up, "Do you have any idea what's its like to have them turn you into a pincushion?"  My aunt and MIL, who have both helped me with dialysis just started to laugh at him.    

[TynyWonder]

aaawww Monrein, I did not take that as a lecture but I do love my caffeine "colas" even tho I know I am not suppose to have them.........sometimes I just can't help myself so then I DO "help myself"!     I am like Twirl, I think I am being good when I buy the 8oz and then like her, I drink 3 of them!      but thank you Monrein!     

[Jess21]

Are you still waiting, for that, organ?

[Wattle]

Are you still waiting, for that, organ?

You must be at the top of the list by now.         



grrrrrrrrrrrrrrrrrrrrrrr   

[twirl]

Wattle
do you know Kola bears eat their mom's poo to build up a resistance the poison in the leafs they eat
and some animals regurgitate to feed their young
makes breast feeding a picnic

[twirl]

the other day I had a Grey Tea some kind of tea in a bottle that looks like a long neck
it is lemon tea from England  and it is my favorite
I had it in a bottle hugger -- you know those things to keep you drink colder longer
this nurse screamed out---"You can not drink beer at dailysis!"

Filpbob would have loved that one.

[Brightsky69]

BigSteve - I am not sure why the sherifs hang around. I could ask but my guess is that there are a couple of prisoners that need dialysis. The sherifs are usually gone by the end of my session. So it's not like they hang around to walk people to their cars. As far as the unit being locked down....I was thinking that was basic security???  Are no one else's units under lock and key? Maybe my unit is in a bad area?? It's right behind a large police station with lots of warehouses around.

On the other note....I have given up cola. I have taken up drinking sparking water. I still get the carbonation without all the other stuff.