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angela515
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« on: January 07, 2008, 09:54:26 PM » |
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Background: My daughter was dx'd with "Mild Pulmonary Valve Stenosis" when she was 4 days old, so she sees a peds cardiologist, now once a year, but every few months when born. So, every time she goes to the cardiologist's they do an ray, an ekg and an ultrasound and they compare it to the previous ones done, this is how we find out if everything is staying the same or getting worse. We got great news today, as everything is still staying the same and she will be 6 next month, she will be seen next Jan for her 1 yr appt again, and if everything looks good again then she don't have to be seen for 2 years!!  The doctor says that if things were going to get worse, they should already have done that by the age of 6, and so know we can spread the appts out more, but still watch for any symptoms of it getting worse. There is still always the fact it CAN get worse at anytime, it's just statistically they should have already so going off that we can spread the appts out longer but she will still need to be seen for the rest of her life. So, this news was very great to hear and has settled my fears down some. Just wanted to share.  |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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thegrammalady
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« Reply #1 on: January 07, 2008, 10:00:33 PM » |
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 yea! great news, i'm sure you are sooooooo relieved. |
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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okarol
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« Reply #2 on: January 07, 2008, 10:20:45 PM » |
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 That's such great news Angela - I hope she stays just like that for a long time!
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angellady07
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« Reply #3 on: January 07, 2008, 11:29:56 PM » |
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Angela, I'm happy to hear your daughter is doing well.  |
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tamara
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« Reply #4 on: January 08, 2008, 01:47:36 AM » |
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Terrific News ! |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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Wattle
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« Reply #5 on: January 08, 2008, 03:02:51 AM » |
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Great News Angela.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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Ken Shelmerdine
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« Reply #6 on: January 08, 2008, 03:14:32 AM » |
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Great News Angela I'm so pleased for you both. Having a child with a serious health condition can be very worrying. Believe me I know. |
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Ken
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Sluff
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« Reply #7 on: January 08, 2008, 03:23:06 AM » |
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Great News! |
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boxman55
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« Reply #8 on: January 08, 2008, 05:06:28 AM » |
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Glad to hear that the news was excellant...Boxman
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 "Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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bolta72
Sr. Member
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Gender: 
Posts: 832
my best friend
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« Reply #9 on: January 08, 2008, 05:13:40 AM » |
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gotta do what I gotta do.. 2 yrs in ctr hemo
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frankieb
Newbie
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Gender:
Posts: 43
Carpe Diem
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« Reply #10 on: January 08, 2008, 10:29:40 AM » |
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FrankieB
ESRD DIAGNOSED 10/20/82
Dialysis- 12/20/83-5/18/91
Kidney transplant 5/18/91-7/18/07
Dialysis- 7/18/07- 9/24/07
Kidney transplant date 9/25/07 from my Hero, Donna
Thank You God for my SISTER, Love you Don
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Mimi
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« Reply #12 on: January 08, 2008, 09:13:34 PM » |
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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Romona
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« Reply #13 on: January 09, 2008, 04:22:54 AM » |
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skyedogrocks
Sr. Member
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Gender: 
Posts: 904
Rob showing off his pot of gold!
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« Reply #14 on: January 09, 2008, 05:51:14 AM » |
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Yeah! Awesome news!  |
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.
11/17/09 After 4 years on dialysis, Rob received a kidney from our George. Kidney is working great! YEAH!!!!
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Ohio Buckeye
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« Reply #15 on: January 09, 2008, 07:48:37 AM » |
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I'm glad you got good news.
I'm sure that is a relief.
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If I must do this to live, I must strive to live
while I am doing this.
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Joe Paul
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« Reply #16 on: January 09, 2008, 08:12:08 AM » |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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del
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« Reply #17 on: January 09, 2008, 11:49:05 AM » |
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 Great news
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Don't take your organs to heaven. Heaven knows we need them here.
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kellyt
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« Reply #18 on: January 09, 2008, 01:50:50 PM » |
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That's one thing you can mark of your worry list! |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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Ang
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« Reply #19 on: January 09, 2008, 07:11:06 PM » |
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great news |
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live life to the full and you won't die wondering
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goofynina
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« Reply #20 on: January 09, 2008, 08:45:13 PM » |
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Thank you for sharing that WONDERFUL news Angela |
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