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Author Topic: does anyone have an answer?  (Read 2155 times)
oswald
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« on: December 24, 2007, 09:49:10 AM »

is there a website out there that matches kidney donors to recipients?  i found one but they want 600 bucks to list.  is there one that is cheaper or even free that you can list on? 
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: December 24, 2007, 10:54:57 AM »

You must be certain your transplant center will accept a donor found through the internet before going forward. Many will not accept a stranger.
We met Jenna's donor on httpp://livingdonorsonline.org message forum - you can post a new thread in the "Looking for" section - it's free - give a small summary of your situation, include your location and blood type. I used a different yahoo email so I knew exactly why where the contacts were coming from - got many from overseas and some unusual offers, but in the end I met some really generous souls and it ultimately lead to Patrice donating to Jenna.
Matchingdonorsonline.com charges a fee, but there are lots of participants so you might have better luck. They claim to have financial aid available.
http://www.paireddonation.org/ Alliance for Paired Donation helps arrange swaps, but since they have no partners here in Califonia I don't have any experience with them.
There's also http://www.kidneyregistry.org/ National Kidney Registry. They help swaps happen, so even if you have a willing incompatible donor they will help find a kidney for you to exchange. They charge a lot but they also have financial aid available. There is a section of their website devoted to finding a donor http://www.kidneyregistry.org/no_donor.php
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
oswald
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« Reply #2 on: December 24, 2007, 08:31:23 PM »

thank you very much for the information.   :thx;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
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