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Author Topic: One good thing about being on Dialysis .......  (Read 3740 times)
Katonsdad
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« on: November 22, 2007, 05:48:38 PM »
You can sit watch an entire Kevin Costner movie without getting up to go to the bathroom !
Hello All . My name is Kevin , I use Katonsdad because I am . My son is Katon . He is the joy of my life .

I was on Dialysis for 3 1/2 years before being transplanted with a Kidney and a pancreas in August 1999 .
During my treatment phase I was on PD , manual exchange and a nightly machine change . I ended up on Hemo .
I have good stories and bad stories about these times . including treatments , surgeries , and medical staff .

I have experienced traveling on CAPD and Hemo . 
I have worked while on both types of treatments .
I have experienced the transplant lifestyle . from testing thru the actual transplant and the rejection
that follows . 
I was a diabetic at 13 years old and transplanted at 37 yrs old and I am now 45 .   I now live in Richmond Va
but had the transplant done in LA , Ca,   So I have also experienced the looking for a new doctor post transplant.

Some of my experiences are a few years old . but some experiences with Kidney failure continue to be the same .

My wife found this website while looking for a recipe and I am hoping my experiences may help someone .

I love humor , That helped me the most during everything I went thru  . You need to laugh a little .

And remember when you take a car trip , you driver . tell the passengers you will stop for a potty break when you have to
go to the bathroom !
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
kitkatz
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« Reply #1 on: November 22, 2007, 05:50:38 PM »
Welcome to the site.  You sound like you have quite a sense of humor. 


kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: November 22, 2007, 06:36:52 PM »
 :waving; Hi Katonsdad!
Glad you could join us. I am guessing that when you mention rejection that you got thru it and still have the kidney and pancreas? Maybe I just had too much turkey so forgive me if the answer is obvious. It sounds like you have plenty to share and your sense of humor will be greatly appreciated.
Welcome!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
orphans_mom
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« Reply #3 on: November 22, 2007, 08:19:08 PM »
 :welcomesign;
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Orphans_Mom
Huntington, WV
Caregiver, Husband started dialysis 8/12/07
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #4 on: November 22, 2007, 10:54:58 PM »
Welcome to our community!  We are glad you decided to join us.  You seem to have much to offer in terms of experience.  You also seem as  :urcrazy; as some of the members here (no, Goofynina, I didn't call your name).  This site has become a real family so please take advantage of all that it has to offer.  Please share your experiences in the relevant boards.  Actually, I am looking forward to reading further posts from you, so hurry up. Here is a group hug from all of us. :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Joe Paul
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« Reply #5 on: November 22, 2007, 11:11:36 PM »
Welcome Katonsdad, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #6 on: November 23, 2007, 03:06:28 AM »
 :welcomesign; Katonsdad,

Can't wait to hear some of your stories.

willieandwinnie
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"I know there's nothing to it, but I want to know what it is there's nothing to"
bolta72
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my best friend
« Reply #7 on: November 23, 2007, 05:19:16 AM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
oswald
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« Reply #8 on: November 23, 2007, 05:21:47 AM »
 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Sluff
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« Reply #9 on: November 23, 2007, 05:22:09 AM »
Welcome katonsdad to ihatedialysis.com.

Sounds like you have a lot to share. We are all ears, but I hope you gain knowledge from us as well. I hope you had a great holiday and hope your wife found a recipe that you were able to enjoy.

See you in the forums.

Sluff/ Admin
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Hawkeye
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« Reply #10 on: November 23, 2007, 07:01:13 AM »
Hello and  :welcomesign;
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It's not easy being green.
Katonsdad
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« Reply #11 on: November 23, 2007, 03:09:58 PM »
Thank you all for the great welcome . I do feel like I joined a great family ...someone pass the turkey please ....and
hope to give as well as get information . 
I have been thru several of the forums and will be posting to many .   :bandance;     I hope to have a good time and
meet many new fiends .


Katonsdad
Logged
Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
Katonsdad
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« Reply #12 on: November 23, 2007, 03:15:50 PM »
Oh and I forgot ........

My wife found a recipe for 7up Jello with applesauce that was eaten all up by the partygoers ...

And to answer an earlier question , yes I recovered from the rejection . and all organs were saved .

Katonsdad
Logged
Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
angela515
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i am awesome.
« Reply #13 on: November 23, 2007, 09:02:18 PM »
 :welcomesign;

I also made that recipe,  :lol; It was gone in like 5 minutes, yummy!
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
kidney4traci
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« Reply #14 on: November 23, 2007, 09:25:14 PM »
 :welcomesign; :rudolph;
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Wattle
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« Reply #15 on: November 23, 2007, 11:18:17 PM »



 :waving;  Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Romona
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« Reply #16 on: November 24, 2007, 09:36:50 PM »
 :welcomesign;
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keefer51
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« Reply #17 on: November 25, 2007, 05:15:14 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Katonsdad
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« Reply #18 on: November 27, 2007, 04:49:18 PM »
Thanks y'all for all the great welcomes . 

I have been posting in as many forums that I can to get some of my experiences out .
I am also learning a great deal .  This site is like walking into a Dialysis center and talking to
all the patients .
I hope to continue benefitting from every ones experiences , There are so many of them.

Katonsdad
Logged
Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
rookiegirl
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« Reply #19 on: November 27, 2007, 07:13:04 PM »
 :welcomesign; Katonsdad.  Don't hesitate to ask questions or share your experience here.  I have learned so much from everyone and I hope you will too.  Good Luck to you.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
kellyt
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« Reply #20 on: November 28, 2007, 12:47:18 PM »
 :waving;   I love to laugh!!!!      :rofl;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
angellady07
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« Reply #21 on: December 03, 2007, 10:04:32 PM »
Welcome.  :waving;
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