New mother of a 4 month old son on PD

[BABY_JAMAR]

Hi, everyone my name is Latesha from North Carolina and I have a son 4 months old who is on PD he was born JULY 6, 2007. He is a gorgeous boy named Jamar and he is also a very happy baby. I'm 22, married and just graduated from college in May "07" in fact I walked across the stage with Jamar in my belly. The struggle is with me because I'm new at all of this dialysis stuff and I'm wanting to look for work in my field of Social Work and its ironic really because I'm a social worker who should know how to handle stress but this caught me by suprise with my sons health issues. Now I'm dealing with the stress of having a new baby with health issues and needing to learn how to balance that, normal family life and trying to look for work. He has doctors appts like once or twice a week and I'm overwhelmed really with all of this its so much that I would like to say and receive advice on but of course new baby is crying of hunger now so........ I'm looking forward to making new friends and hearing what everyone has to say about their experiences lata guys!!!

[kitkatz]

My second daughter was diagnosed with eye problems when she was three months old.  I had to fight for education and treatment for her.  I realize it was not as life threatening as kidney failure is, but I do understand some of what you are going through.  When it is your kid you would do anything to change it and make it better for them.   I hope the little guy stays well. Welcome to the site!



kitkatz,moderator

[Joe Paul]

Welcome Latesha, good to have you aboard.

[Sluff]

Welcome to IHD Latesha,

Sorry to hear about Jamar needing to be on dialysis, but a big hug for you being able to deal with this disease and being an advocate for your son. I hope the day comes that Jamar would receive a transplant but I'm not sure how young they can perform successful transplants.

I hope you enjoy your stay here at IHD and I hope you learn how to best care for Jamar after reading all the experiences of those here.

Sluff/ Admin

[BABY_JAMAR]

for the luv you guys and sluff the docs say that he has to be like 18 months to 2 years old before he can be transplanted... but I just ask that everyone keep baby Jamar in your prayers and you never know maybe GOD will turn this all around for baby Jamar and everyone else

[KT0930]

Welcome, Latesha! Life with a sick child is not easy, but you two will have a bond that will be made stronger by this early struggle. I was diagnosed with kidney problems before my first birthday and went on PD when I was about 6. My parents and I are very close, partly I believe, because of all that time spent together during those never-ending exchanges when I was a child!

You've come to a great place for information and support. Let us know how we can help.

[paris]

We are so glad you found us.  My heart hurts for you as a mother, dealing with all of this.    How fortunate Jamar is to have you for a mother!  No one will fight for his care like you will.  There are so many wonderful people on this site. There are all here to help and support you.  Our prayers will be for Jamar and you.  Please come here when ever you need a place to vent, rant, cry or just to talk about how cute Jamar is!

PS-I am also in NC.

[MyssAnne]

Latesha, Jamar is sooo cute!!!! What a rude shock for you and your husband, to have to start this so early, well, to have to DO it at all!!  Is he on hemodialysis now? Can you and your husband at least be tested now, so you'll know if you are compatible?  As others have said, PLEASE let us know how YOU are, and how Jamar is, and how life is treating all of you!!!  I am so glad you are here!!

[goofynina]

Hi Latesha, Welcome to ihatedialysis.com.  You hang in there girlfriend, i know it must be tough and i cant even begin to imagine someone that small doing PD, that is craziness    But, i am so glad it is there for him (instead of hemo)   Believe me, you have alot of support and yes, you have already made plenty of friends here, you had us at HELLO (oops, HI)   You know what i mean    Looking forward to hearing more from you soon. 




Goofynina/Admin.

[angela515]

Hello and    As a mother myself, I feel your heartache. My daughter has some heart problems that i found out about at 4 days old.. but compared to what your son is dealing with, I'm thankful for her problem. I don't think there could be a better advocate for your son than his mommy. Your doing such an awesome job already and were here for you for the mental and emotional support and always here for some advice. I look forward to chatting with you and hearing more about you and your family, and of course how Jamar is. 

[Romona]

 
Hi Lateshia. I'm a Mom too. I never had to face what you are dealing with. Please visit often. You'll make some wonderful friends here. Jamar is so cute.

[Rerun]

Welcome Lateshia and Jamar to the IHD Family.

Lateshia, just forget trying to live the "normal" life with a Chronic kidney disease son.  You just take one day at a time and some days will be better than others.  I wish you didn't need to work right now.  I would not want to leave him with someone expecting them to do the PD exchanges.  The reality is this is a HUGE thing and you can't pass it off as a small virus that he will get over.  I'm sure you are not, but you are going through the stages of acceptance.  It will take a while to get there.

Best of luck.  I look forward to your posts.

[oswald]

 

[Bajanne]

Welcome to our community, Latesha!  I am so glad that you found us.  My heart is touched as you recount the situation with little Jamar.  My daughter is your age group and has a son (you see him in my present avatar) and I know how it would be with you and I really empathize.   But I have joined you in prayer concerning it all.
Please keep posting and let us know how you guys are doing.  I trust everything works out for you to balance work and taking care of him.
Blessings!


Bajanne, Moderator

[angela515]

I can't find my answer in this thread, so maybe it was never brought up... I am curious. What is your son's cause of kidney failure? If yo do know and wouldn't mind sharing.

[Hawkeye]

Hello and 

[Ken Shelmerdine]

I fully understand what it's like to be a parent of a child with a serious illness. I'll never forget the the initial shock and the thought of 'why us! why our child?' I know you will learn to cope but I think you need to take one thing at a time. The main thing right now is to just concentrate  purely and simply on  learning all you can about your son's condition and treatment. When everything settles and you establish a routine with it all, then start to consider the other things in your life. Don't overwhelm yourself, just take a day at a time. Good luck and stay strong.

[paddbear0000]

  You have a beautiful family! Please feel free to vent anytime. That's what we are here for!

[okarol]

Hi Latesha,
Welcome. My daughter was in NICU for only a week and the stress was HUGE! I know you will adapt but it's definitely a struggle!
You may want to visit one of our members caringbridge page - her son started dialysis at birth and when he was big enough received a transplant from his daddy http://www.caringbridge.org/mn/gavindahms/ - little Gavin is doing great now!
I wish you the best!


okarol/moderator

[orphans_mom]

Hi Latesha,
Welcome to IHD. I have learned so much already. My prayers are with you and your family.

Please keep us informed.

[Lulu]

Welcome Latesha and Jamar,
Glad to have you as part of the family. Jamar is lucky to have such a great Mom!! You are an inspiration. Your situation sounds like a very big load to carry. Remember to take a deep breath and know that this too will pass. Jamar will make it through and when he is two he will have a new kidney. You, your husband and Jamar are in my prayers.

Much Love,
Lulu

[lola]

 

[brenda]

Wow! That has to be a tough situation. 

[rookiegirl]

Hi Latesha,

  aboard.  I'm a Carolinian too.  You have a beautiful family.  I strongly believe that God would never put more on us than what we can handle.  Be strong my friend  .  My thoughts and prayers goes out to you and your husband.

[Deanne]

Welcome Latisha! I'm sorry you and your family need to deal with this. I don't remember where I heard or read about it (maybe something I saw on Discovery Healthy channel?), but I know I remember something about an infant who needed to be transplanted and ended up not needing immunosuppresants because babies don't have fully developed immune systems. That baby accepted the transpoanted organ as his / her own. Hoping for the same for Jamar!