Hi Goofy! I am glad to hear that you are starting PD. I have been on dialysis for about 10 years and been on PD for 9 of them. My advice to you is to do everything the way you are taught...take no short cuts and you should not have problems with peritonitis.Good luck with the transplant!
This post has been moved to the correct section "Introduce Yourself"~Rerun, Moderator.Well hello everyone, My name is Susie (or Goofynina) i am 38, married with no kids and I HATE DIALYSIS!!!! When i came across this message board, i thought to myself, maaaan, these people really know what i'm going through, i dont feel so alone anymore. I think i just may have found my newest best friend (this message board). Here is MY story... In January of '03 i was told my kidneys were failing. Wha? Who? When? How? NOOOO WAAAAY, not me (so i thought) and i ignored the dr. and thought to myself, he's crazy, thats not happening to me, Well, after ignorning all my symptoms for 8 months (and believe me, there were hella symptoms) lol, I was at the point where i couldnt walk cuz i was toooooo tired, my legs were tooooo swollen and besides, all i wanted was to sleep in a dark room, oh yeah, and in the summer, i was always cold, i would drive around with my windows rolled up and the air off, whew, go figure... It finally got to the point where my mom (we were living with her at the time) threatened me that if i didnt let her take me to the hospital, she was just going to call the ambulance. So I agreed to go see my physician. He took one look at me and said PLEASE, go to the hospital now, he said it was a miracle i lived this long and i might not make it threw the weekend. WOW, talk about scaring the bejeezes out of me!!! So i told my mom to take me to the hospital. Low and behold, i was admitted right then and there and dialysis started immediately. (i was that bad) I was in the hospital for a month until they got my numbers good enough to go home (not to mention the sores i had on the backs of my legs, i couldnt walk or move, ohhh i remember the pain, THE PAIN I SAID!!! I got out in October and that is when i started going to the clinic, the depression, ohhhh maaaaaan, the depression.. it lasted forever it seems, i wasn't able to walk so i had to be wheeled in a wheelchair and then walk with a walker, can you imagine, i was only 36 at the time, what the p*ck? I remember my mom had borrowed a hospital bed from one of her friends and set it up in the living room, there i stayed, day and night, (unless i went to dialysis) UGH THE PAIN!!! I had no appetite and when i did eat, it was only cuz my mom forced me, gotsta eat my protein she said, blah, but anyways, the weight came off pretty quickly, oh, i think i didnt mention that part huh? Well, i am obese, damn i hate that word!!! No one in my family had the same blood type as me so MORE DEPRESSION SUNK IN, but my best friends husband stepped up and said he wanted to be tested, and guess what? YEP, HE MATCHED, sooooo, they had to send us the little kit for him to take to San Fran to do the extensive testing, in the mean time, we all waited with anticipation, We got a call in february that he was a match and it looks like we needed to schedule a transplant (as soon as i reached my goal of 200lbs) p*ck!!! Ok, EYE OF THE TIGER, EYE OF THE TIGER,,,WE CAN DO THIS, RIGHT??? RIGHT!!!! Then, in March, the finance dept called and said my insurance will not pay for a living donor's portion of the surgery, Medicare will cover 80% BUT, i needed to come up with the remaining 20%. And they gave me a figure of $50,000.00. WHAT THE p*ck??? We tried to contact the Kidney Foundation so we can start raising the money and there were so many loop holes, i just didnt want to deal with it, we tried to raise it on our own and start a trust fund, but we were told that we couldnt do that either, all this legal mumbo jumbo...sooooooo, i gave up, i started eating again and now i am back right where i started! p*ck!!! My sister has offerred to pay the 20% YAY, and my friends husband is still ready, willing and able to "stick his organ in me" lol, BUT, i am finding it hard to lose the weight, damn freaken fluids!!!! damn them to hell i say!!!! i was down to 102 kilo's, i know it is still alot but compared to where i am now, that is nothing, I would love to talk about all my troubles, trials and tribulations with being on dialysis, the cramping, the crashing, the clinic, the techs, but for now, i really would love someone to tell me that i can do this, and it is going to get better. Well, i think it has gotten a little better, hopefully i start PD this week and i am sooooo excited, dont know what to expect but i am going to make the best of it, wish me luck,,,,, love to hear from you all
Thank you guys for the warm welcome *shakes fist at Epoman* darn you Boss for bumping this
goofynina.. I swear I just saw your picture on a milk carton today. Most wanted, don't worry I won't tell anyone.
Quote from: sluff on January 19, 2007, 07:33:24 PMgoofynina.. I swear I just saw your picture on a milk carton today. Most wanted, don't worry I won't tell anyone. What the HELL were you doing with a MILK carton!!
I Hate Dialysis Message Board
I Hate Dialysis Message Board
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