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Author Topic: Hi from Aptos CA  (Read 4253 times)
Sunny
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Sunny
« on: October 07, 2007, 06:48:37 PM »
 Finally, someplace to hear about kidney disease from real people. Can't believe this site lists GoodPasture's Disease, for this is the rare disease that led to my kidney disease. Six years ago, at the age of 41, I came down with pneumonia-like symptoms, had a kidney biopsy, and was diagonosed at Stanford with anti-GBM disease (GoodPasture's Disease). I was told I had a slim chance of saving what was left of my kidney function with a 6 month regiment of chemo (cytoxin) and prednisone. At that time, my daughter was 10, my son was 12 and my wonderful husband was so worried. I was willing to try anything to save myself. Luckily for me, the treatment worked and I am now left with about 30% use of my kidneys. I am six years post-treatment and doing pretty good. However, my doctors say that some day my kidneys will fail. So, it's nice to find this forum.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Romona
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« Reply #1 on: October 07, 2007, 07:08:14 PM »
 :welcomesign;
Hi Sunny! You'll find alot of friends here. :waving;
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Laurie
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May 13, 2008
« Reply #2 on: October 07, 2007, 07:09:21 PM »
 :welcomesign; Glad you found this site.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Roxy
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« Reply #3 on: October 07, 2007, 07:34:17 PM »
  :welcomesign;
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goofynina
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He is the love of my life......
« Reply #4 on: October 07, 2007, 08:55:23 PM »
Hi Sunny, Welcome to ihatedialysis.com.  There are several members here who are familiar with GoodPasture's Disease and i am sure they will be more than happy to answer any questions you may have, if it is something we have already discussed, we can give you a link to where you can find the info, all you have to do is ask my friend.  You have found an awesome group of people, all willing to share their stories, give support, encouragement, even tell some jokes, it's all here.   If there is something in particular you need, like i said, just ask and you will be amazed how helpful these people are, I am sure you will enjoy your stay ;) ;)  Looking forward to hearing more from you..... :2thumbsup;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
angela515
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i am awesome.
« Reply #5 on: October 07, 2007, 08:56:35 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
donnia
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me and my donor Joyce
« Reply #6 on: October 07, 2007, 08:59:41 PM »
Hi and welcome Sunny!  You have found a place with a wealth of information!  Great place here to teach and learn.  We are glad to have you!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
angellady07
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« Reply #7 on: October 07, 2007, 10:38:00 PM »
Hello Sunny and welcome.
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Joe Paul
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« Reply #8 on: October 07, 2007, 11:49:25 PM »
Welcome Sunny, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: October 08, 2007, 12:11:27 AM »
 :waving; Hi Sunny,
I am so glad the treatment worked and I pray you can hang on to the function you've got for a long time!
There's lots of info, support and FUN here - welcome to IHD!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Redbomb
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« Reply #10 on: October 08, 2007, 12:32:23 AM »
 :welcomesign;
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #11 on: October 08, 2007, 03:06:23 AM »
 :welcomesign;
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Ken
bolta72
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my best friend
« Reply #12 on: October 08, 2007, 05:23:50 AM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
paris
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« Reply #13 on: October 08, 2007, 05:51:10 AM »
 :welcomesign; Glad you found us!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #14 on: October 10, 2007, 08:34:34 PM »
Welcome to the site.  At least you have been forewarned about upcoming kidney disease.  You can prepare and get ready for it at your own pace hopefully.


kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Hawkeye
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« Reply #15 on: October 11, 2007, 08:27:29 AM »
Hello and  :welcomesign;
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It's not easy being green.
brenda
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« Reply #16 on: October 11, 2007, 09:16:40 PM »
 :welcomesign;
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Life is what happens while your making other plans.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #17 on: October 12, 2007, 06:08:10 AM »
Welcome to our community!  This site covers all perspectives of this renal challenge.  We have quite a few who, like you, are not yet faced with ESRD, but are preparing themselves for the future, like one of our administrator, Sluff.
Take advantage of all this site has to offer.  We have become a real family, caring and sharing.  You will definitely enjoy it here.  Keep posting and let us know what is happening in your life.  If it is nothing to do with kidneys, check out our Off-Topic section.  But keep posting.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #18 on: October 12, 2007, 08:27:07 AM »
 :welcomesign;
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Ken
MyssAnne
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« Reply #19 on: October 12, 2007, 08:56:24 AM »
Hi, Sunny! Welcome aboard!! :welcomesign;  This is a great place to find out more about Goodpastures, and what to look for in dialysis hopefull in  the looong future, for you!
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #20 on: October 12, 2007, 12:47:16 PM »
 :welcomesign;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #21 on: October 15, 2007, 07:40:46 AM »
 :welcomesign;
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Ken
Sunny
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Sunny
« Reply #22 on: October 16, 2007, 02:06:13 AM »
Thanks for the nice welcome everyone. I'm amazed at all the things I learn from this site. I'm doing a lot of exploring.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
paris
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« Reply #23 on: October 16, 2007, 12:01:24 PM »
 :welcomesign; So glad you found us. This is a great place for anyone with any kidney disease.  Looking forward to hearing more from you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #24 on: October 16, 2007, 08:00:07 PM »
 :welcomesign;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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