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Author Topic: George's Transplant Evaluation @ UNC  (Read 17806 times)
George Jung
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« on: October 03, 2007, 10:11:25 PM »

I would have to say that my day today was easy street compared to what I had imagined it would be.  I registered at 8:30, echocardiogram (pictures of heart) @10, renal ultrasound @10:30, cheat x-ray after that, then found my way to Wendy's for a out of the ordinary fast food "meal".  Al (my uncle) met me at 1:00 for a meeting with the donor coordinator which went very well, she is awesome, all smiles and very happy to be doing the work she does, it made our meeting enjoyable for sure.  Then we met with the financial coordinator and that also went off without a hitch as I am well covered with BCBS and Medicare and therefore should not have any issues with expenses.

Al had to leave and I was left with one more meeting with a Neph.  I was brought into the room and a nurse/tech took my blood pressure and temp then informed me that the Doc should be in very soon as they had been running on schedule all day.  I was expecting just that as all of my appointments had been very close to scheduled times.  So I sat in the chair put my head back and dozed for a few minutes, kind of tired at this point.  Well, I woke up, looked at my watch and an HOUR had gone by.  I walked out of the room and the nurse/tech was a few doors down so I made eye contact and asked what happened, "do they know I am here?"  She said, oh yes they know, they must have gotten busy.  5 minutes later the Neph comes in and right away apologizes and says they DIDN'T know I was there, someone put my chart in the wrong place or my name was in the wrong place (can't remember exactly as I was in disbelief).  I just smiled and blew it off...."Poster Boy" that I am and all that.  Anyway, he asked the general health questions, checked me out, we talked, and I was on my way to do my labs to finish the day (blood work and EKG).  Upon checking out I was given a parking validation slip "because you waited so long", what a swell thing to do to make nice for FORGETTING ABOUT ME.  Anyhow, I made it home by 5:30ish and to opening night for the Carolina Hurricanes (NHL) game by 6:45. 

 It was a good day, much better than I had anticipated.  I was told by the donor coordinator that my mother has begun testing to be a donor, her blood type is O, and she has gotten up to date with her physicals.  I am not getting excited about this though as it is to early in the process yet and there are issues with our personal relationship.  I know I would be foolish not to accept but I need to talk some things out first with an outside listener.  My mom and I have talked maybe three times in the past 8 months or more and we always argue so there are some questions there.  She has already told the donor coordinator that I may not be willing to accept so she (coordinator) is aware and will be leaving it up to me, naturally.

 So there you have it, my day of ups and downs from health issues to loosing the hockey game in overtime.  Hey at least we earned a point right!

« Last Edit: October 06, 2007, 08:57:00 AM by George Jung » Logged
poohkari
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Wade and I.

« Reply #1 on: October 03, 2007, 10:23:58 PM »

Yay! We are so happy for you! It sounds great  :clap;

We actually just got a call today from the transplant coordinator here that we will be working with. We're right behind you, George!
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Girlfriend of Wade, on dialysis since 5/11/07 and NxStage since 8/20/07. We're hoping for a transplant as soon as his "FGP" is gone!
paddbear0000
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« Reply #2 on: October 04, 2007, 09:46:52 AM »

 :yahoo; Yeah to George and Wade!!!  Good luck!   :grouphug;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Joe Paul
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« Reply #3 on: October 04, 2007, 10:16:14 AM »

Glad it went well for you George, other than the being forgotten that is  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Beth36
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« Reply #4 on: October 04, 2007, 10:44:55 AM »

Wow!  That is great your testing is underway.  I'm hoping you get your transplant soon.  Good luck with everything!


Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: October 04, 2007, 11:56:46 AM »

We spent years waiting... on the list... in the doctor's office... at the transplant evaluation... for the labs... but in the end it's worth it.

If I am ever left for too long at a doctor or dental appointment I just walk out and find someone and I say loudly, "Oh great, you're all still here, I was beginning to think the building was evacuated and no one told me" hehehe  ;D Then they usually get me taken care of so I don't start a panic.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #6 on: October 04, 2007, 12:45:13 PM »

Good Luck to you wade and George. :2thumbsup;
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angela515
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i am awesome.

« Reply #7 on: October 04, 2007, 02:18:26 PM »

Good luck on everything  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Romona
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« Reply #8 on: October 04, 2007, 04:40:19 PM »

Good Luck to you! :cuddle;
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goofynina
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He is the love of my life......

« Reply #9 on: October 04, 2007, 05:00:27 PM »

Well, other than them forgetting you, i'd say it sounds like "so far so good"  :2thumbsup;  I hope it continues to go good for you my friend  :clap;
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....and i think to myself, what a wonderful world....

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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #10 on: October 04, 2007, 05:02:16 PM »

Good Luck George, hope it all works out for you  :grouphug;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Wattle
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« Reply #11 on: October 05, 2007, 12:56:06 AM »



Good Luck George. A little step closer to a Transplant.   :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Amanda From OZ
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« Reply #12 on: October 05, 2007, 04:40:19 PM »

Good Luck Georgie....  ;)  I hope your that bit step closer on getting that Kidney transplant you deserve.  :cuddle;

Amanda
xxoo
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George Jung
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« Reply #13 on: October 06, 2007, 08:51:37 AM »

I received a call from the transplant coordinator about my next set of testing.  She called to inform me that there will be an additional test to my next visit at the hospital.  A cyst was picked up on the renal (kidney) ultrasound which will require a CT scan to learn more about it.  She noted that it was not an uncommon finding in dialysis patients.

Thank you everyone for everything.  - George
« Last Edit: October 06, 2007, 08:54:47 AM by George Jung » Logged
Romona
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« Reply #14 on: October 06, 2007, 01:30:52 PM »

Good Luck with your test.  :)
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goofynina
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He is the love of my life......

« Reply #15 on: October 06, 2007, 03:03:49 PM »

I hope that its nothing and it wont delay any further testing  :2thumbsup;  Please let us know when you get the results,  just want the best for you amigo  :2thumbsup;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
glitter
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« Reply #16 on: October 06, 2007, 04:44:31 PM »

I just saw this- good luck with all of it..... :waving;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

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RCC
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dialysis april 14,2006
Chris
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« Reply #17 on: October 06, 2007, 05:56:19 PM »

Good Luck with the evaluation process. All I can say about mom is that she still loves you since she is willing to donate to you.
Good Luck
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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« Reply #18 on: October 06, 2007, 06:07:56 PM »

Good Luck George and hope the cyst is normal.  :beer1;
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paris
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« Reply #19 on: October 06, 2007, 06:23:19 PM »

They check for cysts once a year for me.  It is common for dialysis patients to develope them.  You know I am wishing the best.  There will always be more tests than they orginally say--just keep hanging in there!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Laurie
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May 13, 2008

« Reply #20 on: October 06, 2007, 07:10:38 PM »

Good luck George, I hope it turns out to be nothing  :grouphug;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
KT0930
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« Reply #21 on: October 06, 2007, 07:21:25 PM »

Good luck, George! Hope a great kidney comes along very soon for you.
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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« Reply #22 on: October 09, 2007, 11:45:35 PM »

Hi George, glad things went well. Don't be worried about the cyst at this stage. I had a couple of small ones, they were nothing, and also my dad had a small one on the kidney that I received if I remember correctly. None of these cysts were of any significance, hopefully yours is the same.

Re the issues with your mother, is the transplant team able to offer/refer you to a counselling service or mediator who can speak with both of you to help you both come to an understanding of exactly what your feelings are and how they can best be dealt with? I guess the sooner you sort this out, for your own emotional contentment if nothing else, the better. The fact that you argue often does not necessarily mean you cannot accept a kidney, but it is entirely up to how you feel about it of course. But some professional guidance to help you make this choice might be a good idea so that, in the long run, you'll know you made all the right considerations and didn't do things wrong because you were under emotional and physical duress.
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paddbear0000
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« Reply #23 on: October 10, 2007, 09:15:18 AM »

Good luck George! I hope everything works out well for you. My thoughts and prayers are with you.  :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Lori1851
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This is me Lori , Dustin's mom

« Reply #24 on: October 13, 2007, 01:08:27 PM »

 :clap; George,
Sounds like they got the ball rolling. I know the transplant team at Methodist Hospital here in Indianapolis the Dr's , Nurses and staff are awesome. Very caring people wanting to get the kidney for people. The are as excited as the person getting it is. Thats what more hospitals need to be like. Goodluck and keep me informed!!! :bandance;

Lori/Indiana
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