kimcanada
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« Reply #125 on: November 08, 2007, 12:18:51 PM » |
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Angie
you are constantly in my thoughts , all the best to you
Kim
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Sluff
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« Reply #126 on: November 13, 2007, 07:37:17 AM » |
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Just curious how Angie is doing. Has anyone got an update?
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okarol
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« Reply #128 on: November 15, 2007, 09:30:46 AM » |
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From Angie's site:
November 12
Anyway, not in a good mood right now. Just got home from dialysis and I am just fed up. First of all, as you all know, I pee now. But since I hadn't peed in 4 years my bladder is shrunken so I don't hold as much as a person who has peed all along. I sit in the dialysis chair for 3 1/2 hrs and when I had to pee they don't give you a bed pan as it is a self care satellite unit. They disconnect the lines, tape the needles to your arm so they don't flop all over, and let you walk to the washroom. Since they are not supposed to (not that they don't always .. sometimes they want to if I weight more than 64kg even though I pee fully) pull fluid off my BP is always fine. But on Friday and again today I had the same nurse, who is nice but not the best at time management. Both times she wanted me to hold it for the last hour promising to disconnect me early but both times didn't and today my bladder hurt so bad. I don't feel comfortable with this since the reason I lost my original kidneys were due to reflux and bladder infections. The thing is I even told this nurse that she better come by and check on me in 20 min to see if I can't hold it anymore if she expect me to hold it. She never came back til I was done an hour later. I was not happy. She ended up taping my arm anyway so I could run to the washroom because if she pulled the needles I would have to hold my arm first before going. So I don't see why she would have me hold it. It is not like it takes much extra work to disconnect me from the machine. I don't need any extra run back / rince back! I told her next time I will want to be let off to go to the washroom when I ask. She said, "but then you will come off early!" I looked at her and said no I would be put back on! Why would I be taken completely off? That doesn't make any sense.
I really wish I had not accepted this kidney ... it was better before when I didn't pee .. I mean .. now I got the worst of both worlds ... this sucks and is really getting me down! Then the nurse tries to tell me how once she had to hold her pee for an ultra sound .. That's nice .. once in her life .. mean while I have every dialysis from Friday on to look forward to this??
I am sorry but I am not happy right now. Actually, I am pretty pissed since things are just getting me down more and more and I seem to have less and less patience for anything anymore ...
November 14
Here is some info on ATN (Acute tubular necrosis):
Quote: Acute tubular necrosis or (ATN) is a medical condition involving the death of tubular cells that form the tubule that transports urine to the ureters while reabsorbing 99% of the water (and highly concentrating the salts and metabolic byproducts). Tubular cells continually replace themselves and if the cause of ATN is removed then recovery is likely. ATN presents with acute renal failure to the point that the two concepts are used interchangeably.
It may be classified as either toxic or ischemic. Toxic ATN occurs when the tubular cells are exposed to a toxic substance (nephrotoxic ATN). Ischemic ATN occurs when the tubular cells do not get enough oxygen, a condition they are highly senistive to due to their very high metabolism.
Ischemic ATN can be caused when the kidneys are not sufficiently perfused for a long period of time (i.e. renal artery stenosis) or during shock. Hypoperfusion can also be caused by embolism of the renal arteries. Ischemic ATN specifically causes skip lesions through the tubules.
Mine is Ischemic ATN because my kidney lacked blood and oxygen from the get go as my BP was only 76/36 and they just told me the last time I was in London that it also lacked the oxygen because it lacked the blood at that time.
Hopefully it will recover but it has been 6 weeks and they were telling me that if it doesn't by 6 weeks ............
Quote: A cadaver kidney transplant will occasionally perform as a "sleepy" kidney, a condition called acute tubular necrosis (ATN). This means that the kidney is temporarily slow in functioning because of being stored. You may need dialysis a few times, which will not harm the kidney. The "sleepy" kidney usually starts working in two to four weeks.
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angela515
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« Reply #129 on: November 15, 2007, 01:57:24 PM » |
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So sorry Angie... I hope it will start waking up and doing it's job... until then... I am sorry for your frustrations and being on dialysis.
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Live Donor Transplant From My Mom 12/14/1999 Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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okarol
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« Reply #130 on: November 18, 2007, 10:41:37 AM » |
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New update.Hope you get good news Angie:
Nov 15th - Nephrologist in London said no dialysis for Friday and come back Monday. This way they can see if the kidney is finally functioning more / waking up. Hopefully those tubules have recovered ... My blood pressure has been high enough to pump plenty of blood through the kidney for the past few weeks now. Can only keep fingers crossed. Have no ride on Monday so I am driving myself. Disability won't pay for a cab that far and only will pay for a train if I pay up front .. which I can't afford right now. Maybe next month. So I am sooooo glad I got my car in the summer. Now that is paying off. Will update more on Monday once I get back from London. Keep your fingers crossed!
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paddbear0000
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« Reply #131 on: November 18, 2007, 12:53:44 PM » |
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Good luck Angie!
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tamara
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« Reply #132 on: November 18, 2007, 03:21:50 PM » |
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Fingers and Toes Crossed !
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ABO Incompatible Transplant from my loving Partner 23/10/07 after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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Amanda From OZ
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« Reply #133 on: November 18, 2007, 05:10:44 PM » |
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Good luck angie. I hope that kidney wakes up soon. Amanda xxoo
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Wattle
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« Reply #134 on: November 18, 2007, 05:18:54 PM » |
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Good luck Angie
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PKD June 2005 Commenced PD Dialysis July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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MyssAnne
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« Reply #135 on: November 19, 2007, 01:58:34 PM » |
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Good luck Angie, fingers AND toes crossed for you!!!!
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angela515
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« Reply #136 on: November 19, 2007, 02:57:25 PM » |
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Good luck
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Live Donor Transplant From My Mom 12/14/1999 Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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Joe Paul
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« Reply #137 on: November 19, 2007, 11:48:43 PM » |
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Good luck to you Angie
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"The history of discovery is completed by those who don't follow rules" Angels are with us, but don't take GOD for granted Transplant Jan. 8, 2010
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okarol
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« Reply #138 on: November 21, 2007, 10:28:54 PM » |
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Nov 19: From Angie's website: Finally!!!
GOOD NEWS!!
Today Dr. Hodsman said that creatinine only went up a little (from 179 to 202 without any dialysis! The last time I had dialysis was last Wednesday. So it looks like the KIDNEY IS FINALLY WAKING UP!!! So I can hold off on dialysis and see the transplant hospital NEXT Monday!!
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Amanda From OZ
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« Reply #139 on: November 21, 2007, 10:31:38 PM » |
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Thanks Karol. Great News Angie.. hope that kidney keeps up its good work.
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tamara
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« Reply #140 on: November 22, 2007, 01:06:22 AM » |
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WOOHOO
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ABO Incompatible Transplant from my loving Partner 23/10/07 after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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Joe Paul
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« Reply #141 on: November 22, 2007, 02:13:06 AM » |
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Thats great news, thanks Karol
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"The history of discovery is completed by those who don't follow rules" Angels are with us, but don't take GOD for granted Transplant Jan. 8, 2010
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Sluff
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« Reply #142 on: November 22, 2007, 05:08:30 AM » |
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Good for you Angie!!
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lola
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« Reply #143 on: November 22, 2007, 05:15:55 AM » |
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Bajanne
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« Reply #144 on: November 22, 2007, 05:39:46 AM » |
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Wonderful news! Praise the Lord!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!
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glitter
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« Reply #145 on: November 22, 2007, 05:53:59 AM » |
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Jack A Adams July 2, 1957--Feb. 28, 2009 I will miss him- FOREVER
caregiver to Jack (he was on dialysis) RCC nephrectomy april13,2006 dialysis april 14,2006
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Ken Shelmerdine
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« Reply #146 on: November 22, 2007, 06:47:17 AM » |
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So happy for you Angie!
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Ken
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paddbear0000
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« Reply #147 on: November 22, 2007, 08:07:07 AM » |
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kimcanada
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« Reply #148 on: November 22, 2007, 03:03:27 PM » |
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OH WOW this is awesome....
I am Canadian, but on this Thanksgiving I am thankful for Angie's kidney waking up!!!
Kim
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angela515
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« Reply #149 on: November 22, 2007, 09:39:26 PM » |
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Live Donor Transplant From My Mom 12/14/1999 Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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