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Author Topic: Amanda got the call.. The day before my wedding  (Read 77354 times)
Falkenbach
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« Reply #450 on: May 05, 2008, 03:19:42 AM »

Whoa Richardmel, that's a high creatinine.  :(  (hopefully Amanda's pic made you feel better though lol).
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RichardMEL
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« Reply #451 on: May 09, 2008, 07:02:55 AM »

Whoa Richardmel, that's a high creatinine.  :(  (hopefully Amanda's pic made you feel better though lol).

Well of course... but I can't talk about that on a family website such as ours  :oops;

yeah my creat has been bobbing around 1000 ever since I started dialysis. The doc doesn't seem too concerned since my calcium, phosphate and potassium levels are all pretty good (thank you Sensipar and Renegel!! )
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Falkenbach
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« Reply #452 on: May 09, 2008, 05:06:16 PM »

They told me it was time for treatment when I was still around 500. Apparently this was to do with my small build. So it was go straight to transplant, as I was lucky enough to have that option, or I could go on to dialysis first. They were actually considering putting me on dialysis first for some reason, some logic that went over my head. I just said NOOOOOOOO, give me the ^#*$&#(* transplant.
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RichardMEL
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« Reply #453 on: May 12, 2008, 06:33:51 PM »

They told me it was time for treatment when I was still around 500. Apparently this was to do with my small build. So it was go straight to transplant, as I was lucky enough to have that option, or I could go on to dialysis first. They were actually considering putting me on dialysis first for some reason, some logic that went over my head. I just said NOOOOOOOO, give me the ^#*$&#(* transplant.

I am so envious!!! :)

I didn't start dialysis until I was 900 or so. I think because I didn't have many physical symptoms(apart from being tired) and I was doing this trial to start dialysis later than earlier so that all came into it. The trigger I think was my GFR hitting 6 and they decided enough was enough... and so here I am!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Falkenbach
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« Reply #454 on: May 16, 2008, 06:32:18 PM »

I was very symptomatic, from a very early stage. Mainly with lethargy.
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #455 on: September 11, 2008, 07:40:50 PM »


I *THINK* (and I could have this wrong) that what we call a creatinine reading of 120 is what you would call 1.2  :-\ - can anyone confirm that I've got this correct?


120 is not 1.2 
here's a clinical unit conversion :   http://dwjay.tripod.com/conversion.html

to convert from the large numbers (i.e. 120, 130, ..1200) to the small ones, use (µmol/L) to (mg/dL)
so, 120 would be 1.4
:)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Falkenbach
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« Reply #456 on: September 28, 2008, 03:37:40 AM »

I should bookmark that link. It's okay this time tho, as Richard and I are speaking in the same type of measurement (umol/L).  :)
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