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Author Topic: hi i'm emily!  (Read 6894 times)
keefer51
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« Reply #25 on: August 18, 2007, 08:27:19 PM »
Hi Emily, When i was 11 they found out i was only born with one kidney. I had many of those stupid 24 hour test along with some other stupid ones. I am now 51 and had one transplant that lasted over 10 years. I lived in Nashville during that time. I am now on hemo dialysis for the past three years. I hate to see someone young being sick it's just not fair. I wish you all the luck.  :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Jill D.
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« Reply #26 on: August 18, 2007, 08:35:57 PM »
Hi Emily! I have FSGS too...diagnosed in 1990 when I was 27. I started dialysis in April of 2006, and had a transplant in Dec. 2006. I have a 20-year old daughter and a 17 year-old son. Glad to have you join us...we're here to help, share info, and support each other! :welcomesign;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
highlite36
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« Reply #27 on: August 18, 2007, 09:14:29 PM »
YAYYY!!!  GLAD TO HAVE YOU HERE!!!!!
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ESRD February 2002
Transplant from living non-related donor November 7, 2002
Lost transplant April 2005
Diagnosed with Heart Failure February 2006
Currently on Peritoneal Dialysis, awaiting to be well enough to FINALLY get placed
on the Transplant List.  :-)  I can't wait!!!!
del
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del and willowtreewren meet
« Reply #28 on: August 19, 2007, 08:47:31 AM »
 :welcomesign;
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Don't take your organs to heaven.  Heaven knows we need them here.
SpeedFleX
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« Reply #29 on: August 19, 2007, 11:02:27 AM »
hi and  :welcomesign;
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brenda
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« Reply #30 on: August 20, 2007, 08:23:20 PM »
Hey Emily, glad you are here!  :welcomesign;
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Life is what happens while your making other plans.
Lori1851
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This is me Lori , Dustin's mom
« Reply #31 on: September 03, 2007, 09:34:28 AM »
HI Emily,
My son is now 22 but was diagnosed with FSGS when he was 17. As of Feb of this year he is now on dialysis. Ask me anything you want. Hopefully I can give yous ome info along with the ppl on this wonderful site. There are some on here with FSGS also.
Lori/Indiana mom to Dustin now 22 with FSGS and now on dialysis
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st789
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« Reply #32 on: December 11, 2007, 06:10:34 PM »
Same here, the stupid 24 hrs thing, I did it for 7 yrs and the frustration of seeing your kidney decline gradually.
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RichardMEL
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« Reply #33 on: December 11, 2007, 11:04:38 PM »
G'day Emily & Welcome to a younger member (yes I know I'm a bit late. You know down here in Australia things are a bit slow at times! :) ). I'm sorry to see someone so young and vibrant have to deal with this crap it totally sucks - but on the upside we're all "with" you in spirit and you can have us to vent to when you need to. I've lost count of the numbers of 24 hour tests I've done over the years - sorry to say but you'll be having to do more of them almost guaranteed!! Still - there are worse tests you could do I can assure you!

I hope you manage to stay off dialysis... well totally.. but for a very long time! Concentrate on school and colleage thoughts and above all.. live your life young lady!!! If Kidney disease has taught me anything it's "never wonder..." - so go for it!! I don't mean do stupid things.. but if you have chances to experience things and do stuff.. go for it! You mever know when you might have the chance again!

Again, welcome to our world!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Deanne
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« Reply #34 on: December 12, 2007, 08:30:42 AM »
Welcome Emily! I'm 44 and also  have FSGS. I'm not on dialysis yet. I was diagnosed with kidney disease when I was 9, but they didn't know it was FSGS until I was 30. I've always spilled protein and like you, I thought it was normal. I think you'll grow up being better informed than me.  :clap; When I was a teenager, I kept waiting to die, but it never happened! I wasted a lot of my life in not living. It sounds like you know better.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Ang
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« Reply #35 on: December 12, 2007, 03:35:50 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
oswald
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« Reply #36 on: December 12, 2007, 04:09:27 PM »
 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
KR Cincy
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Home hemodialysis since May 07
« Reply #37 on: December 13, 2007, 08:26:18 AM »
 :welcomesign;
Hope today is better than yesterday Emily..and that the tomorrow is even better still!
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Not giving up...thanks to Susan.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #38 on: December 13, 2007, 05:56:49 PM »

Just FYI - this member hasn't posted since August 29, 2007  :lol;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #39 on: December 13, 2007, 06:26:41 PM »
Hi Emily!  Welcome, Welcome      :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
MattyBoy100
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What's dialysis?
« Reply #40 on: December 16, 2007, 02:41:12 AM »
Hi Emily,

It was a case of "silly me" as well.  My uncle had kidney problems and had to have diaysis.  Then at 34 yrs BAM, it hit me too.  We had no idea that the condition I have is hereditary.

I've been on dialysis 18 months and am over the initial shock.  I try to live a normal life and stay positive about things - I'm still the same person.  You have to keep doing the things you enjoy and don't let this thing beat you.  You'll get tonnes of support on this site when you need it.

Matty.
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SCOTLAND NO.1
Lori1851
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This is me Lori , Dustin's mom
« Reply #41 on: December 16, 2007, 09:36:08 AM »
 :welcomesign; Hi Emily,
Emily my son was 17 when  he was diagnosed with fsgs. His protein was over 2,000! What is sad some Dr's do not take a simple urine test to check for protein. He actually was 12 when the regular Dr did the urine test.
Write me anytime.
Lori/Indiana mom to Dustin 22 fsgs/dialysis
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kellyt
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« Reply #42 on: December 16, 2007, 05:18:15 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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