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Author Topic: hi i'm emily!  (Read 6892 times)
emilyc
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« on: August 16, 2007, 12:45:26 PM »

why hello there! i'm emily, 15 years old, and i'm just figuring out that i have kidney problems. my grandpa had fsgs and that's what they're figuring is the problem with me too. not the PROBLEM, but what's going on. he was on dialysis and now that i might have to be on it too at some point, i'd like to learn more about it! this message board is probably the best i've ever seen. thanks for all the information everyone! the kidney problems kind of came as a surprise...i've had protein in my urine for 5 years straight...4+ even and no one said anything to me about it! and i had no idea my grandpa had kidney problems at all...so this is all kind of a shock. i thought it was normal.  :oops;

silly me!

well thank you for reading and thanks for all the info it's really great to be here!
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-emily!
goofynina
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He is the love of my life......

« Reply #1 on: August 16, 2007, 01:00:39 PM »

Hi Emily, Welcome to ihatedialysis.com.  You will find alot of good and important info here and what you dont find, you can always ask, we are here to help you and support you any way we can  :2thumbsup;   Have they said if you are a good candidate for a transplant yet?  are you on the list?  I am sorry you are even experiencing this, especially being so young, but i have learned to just keep living and take it one day at a time ;)  Looking forward to hearing more from you soon  :clap;


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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Romona
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« Reply #2 on: August 16, 2007, 01:21:09 PM »

Hi Emily. I am a 42 year old Mom with 4 kids. Some are your age. I had a kidney transplant. I also had FSGS. You will love this site so visit often. I wish I'd have found it before my transplant. You are not alone, so talk. Look forward to hearing from you!
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Sluff
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« Reply #3 on: August 16, 2007, 01:57:33 PM »

Hi, Emily welcome to Ihatedialysis.com.

I am 46 years old and have FSGS. Diagnosed only a year ago in May. I keep watching those protein numbers every time I have my appointment with my nephrologist also, it's kind of a drag but guess things could be worse. Only difference is our age. I hope you have a long time before you face the challenges associated with dialysis. If it must come to that it would be nice if it could wait until your out of school. So much to deal with sometimes. Like goofynina said you will find lots of information here and this is the most informative site around.

Enjoy the site, and feel free to post all you want.

Sluff/ Admin
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lola
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« Reply #4 on: August 16, 2007, 01:59:16 PM »

 :welcomesign;
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Hawkeye
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« Reply #5 on: August 16, 2007, 02:26:06 PM »

Hello and  :welcomesign;
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thegrammalady
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« Reply #6 on: August 16, 2007, 02:48:29 PM »

 :welcomesign;  this is a good place to be
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If you can smile when things go wrong, you have someone in mind to blame.

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boxman55
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« Reply #7 on: August 16, 2007, 04:06:29 PM »

Hi Emily, welcome to this site...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Laurie
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« Reply #8 on: August 16, 2007, 04:07:41 PM »

 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Razman
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« Reply #9 on: August 16, 2007, 04:48:24 PM »

Hi Emily . Its great that you found this site.   Stay in touch and let us know how things work out.   :)
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #10 on: August 16, 2007, 06:13:45 PM »

Hey Emily !

 :welcomesign;

Great to see you here, hope you find all the info your looking for, but hey we are here to have fun too so if you wanna join in go for it !

Take Care Tamara xxx ooo  :cuddle;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
angela515
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i am awesome.

« Reply #11 on: August 16, 2007, 07:41:22 PM »

Hey Emily!  :welcomesign; 

So sorry your having to go through this at 15, but I am so glad your educating yourself about it and hopefully will be able to better take control of your medical situation.

I look forward to getting to know you. :)

Angela
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Ohio Buckeye
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« Reply #12 on: August 16, 2007, 08:29:42 PM »

Hi Emily, welcome to the IHD Family.
You will find lots of helpful info and lots of support and good friends here for you.
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paris
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« Reply #13 on: August 16, 2007, 10:46:40 PM »


Glad you found us! I also have FSGS. Welcome to the family! It is a great site for sharing and learning.
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okarol
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« Reply #14 on: August 16, 2007, 11:02:47 PM »

 :waving; Hi Emily,
Welcome to IHD! My daughter was 15 when we discovered her kidney problems, she is 21 now and has had a new kidney for 6 months now. I hope you learn a lot here. There's great support from some really nice people too! Good luck to you!!


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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
st789
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« Reply #15 on: August 16, 2007, 11:12:13 PM »

When things are so overwhelmed, just to remind yourself to step back and take it one day at a time and keep on living to the best that you know how.
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sophiasmom
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« Reply #16 on: August 17, 2007, 01:01:12 AM »

Hi Emily,

Welcome to a great online family.  Don't be afraid to ask anything, even it if seems like a stupid question.

 :welcomesign;

Chris
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #17 on: August 17, 2007, 03:08:40 AM »

 :welcomesign; Emily welcome to IHD.
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Ken
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me and my donor Joyce

« Reply #18 on: August 17, 2007, 05:41:38 AM »

 :welcomesign; Emily!!!

You have found the best board!!  Look forward to hearing from you. :cuddle;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
emilyc
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« Reply #19 on: August 17, 2007, 12:37:06 PM »

thank you guys so much :] i just started smiling reading all of the replies. this is such a great place. i'll be sure and check everything out :]

 :yahoo;
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-emily!
kitkatz
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« Reply #20 on: August 17, 2007, 08:55:20 PM »

Welcome to the board.  We have a lot of information to read here.  Good for you that you are trying to educate yourself on renal disease.  The more you know the more involved in the decisions medical professionals make in your life. Good luck.




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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Adam_W
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« Reply #21 on: August 17, 2007, 09:16:47 PM »

 :welcomesign;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
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« Reply #22 on: August 18, 2007, 02:20:23 AM »

Welcome to our community, Emily!  We are so glad that you found us.  This site has become a family, so you have lots of readymade aunties and uncles right here!  That means that you have to let us know how things are going with you.  I am a teacher, so I also want to know how you are doing in school.  There is so much to read here, so get going.  As Sophiasmom said, don't be afraid to ask questions.  That is what this is for.  I am so pleased that you took the initiative to find out about this condition. :thumbup;
Here is a hug from all of us -  :grouphug;


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I LOVE  my IHD family! :grouphug;
emilyc
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« Reply #23 on: August 18, 2007, 02:51:38 PM »

I'm feeling pretty cruddy right now but it could be a lot worse! I just had some blood tests and I did the annoying 24 hour urine test so I'm just waiting for all that stuff to come back! the test is really a pain in the butt. I've already done it 3 or 4 times so I'm kind of ready to move on from that.  :lol;

I'm really excited for school though. ill be a sophmore and I want to be a teacher. so maybe we can talk college choices  ;)

ill definitely post everywhere and you guys will all get annoyed with how much I bug you! I'm quite talkative.

thanks =) 
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-emily!
Romona
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« Reply #24 on: August 18, 2007, 04:35:35 PM »

Emily, You crack me up!  :bandance;
I don't think I could have handled everything like you are at your age!
You remind me of my sixteen year old. I think the 24 hour urine is horrible too. Especially for the ladies. The guys have such an advantage.
Keep us posted on how you are doing. 
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