Dani

[Sluff]

Lola you are a gem! You need to get to Vegas this year.

[lola]

Lola you are a gem! You need to get to Vegas this year.

I WISH ,but I'm doing the NKF walk on the 11th so I'll be thinking of my chica Susie and all my IHD Family

[okarol]

Lola you are a gem! You need to get to Vegas this year.

I WISH ,but I'm doing the NKF walk on the 11th so I'll be thinking of my chica Susie and all my IHD Family

  You go girl!

[lola]

We are starting to see the return of the  Dani also has a "virus"? we are waiting a few more days to see for sure and praying this is not the meds as if it is we really don't have any options.

[Marley]

HI Lola

I just read all three pages of your thread and I must say you are one amazing woman!!  What a lucky little girl your Dani is to have a mom like you and I just wanted to know I'm pulling for her too.  It must be terribly hard to have a child who has sick kidneys, my heart goes out to you!!

Marley
 

[lola]

Well  Dani is to much for this Mama so yesterday her Dr decided to stop her BP meds. We may try something else this summer but we can't have her like this during school.

[okarol]

 

[Sluff]

Maybe it's a reaction to what your family has been through with Otto, children express themselves differently. I hope this passes and that it is not the meds. 

[pelagia]

 

[lola]

Maybe it's a reaction to what your family has been through with Otto, children express themselves differently. I hope this passes and that it is not the meds. 

It started b-4 everything with Otto, since things with Otto she just needs to be attached to me. I wish she wouldn't have these reactions but for whatever reason every time we have tried it we get the same 

[vandie]

Amy,
Hang in there, my friend.  You have been through the ringer.  I am so impressed by your strength. 

xoxo

[pelagia]

sending a  for you Amy.

[kitkatz]

Just you wait until she becomes a teenager and goes through puberty!

[lola]

Well Dani was started on Cozaar and is doing GREAT no more  Dani. They just got her labs back and her #'s look AWESOME the Dr said it's not what he'd call victory but I do. Some kids on this become immune but we will keep her on it and keep our fingers crossed that it keeps her at stage 2 for a VERY long time. Today she also was told only 2 more weeks in a cast oh for those of you who didn't know she fell ice skating and broke her leg.

[okarol]

Good to hear the meds are working!
Wow - that's a long time in a cast - it must be tough with showers, snow, school!

[paul.karen]

Lola i also had bad spells on certain BP meds.    Mood swings, ups downs ect ect.
I am also on Cozaar and i can see/feel the differnce but karen even more so.  So I am glad Dani is doing well on them.

Also glad she is getting out of the cast soon

[pelagia]

Sending you loads of {{{hugs}}}.  I am really happy to hear that Dani is doing well.

[The Wife]

 

[lola]

Dani's cast is off and besides a really good limp she is running around like any other 6 year old She will have repeat labs in April and that her labs continue to look good.

[Sluff]

Glad to hear Dani is cast free.

[paris]

Yea, the cast is off    Small victories are wonderful.  You are an amazing Mom and Wife!!

[kitkatz]

 

[The Wife]

Celebrating the small victories with you...

[lola]

  well we just got Dani's labs and they are the WORST ever of course me I asked a millon ?s as to what I maybe fed her or had her drink that would make her levels jump and he said nothing so OK then lets increase her meds but he wants to 1st do another 24 urine to see if maybe somehow last week labs are wrong and then we will decide what the next step is. Dani has been stable at the high end of stage 2 but this last set of labs put her at the low end of 3 almost 4 I soooooo don't need this, I need to get Otto better and a new kidney. WTF!!!!!!

[G-Ma]