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Falkenbach
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« Reply #25 on: September 11, 2007, 07:28:57 PM » |
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My neph said today that my most recent blood tests are showing the CMV is trying to come back again, so we have done more bloods today to see whether I should go back on the valgancyclovir as a preventative. The good news is, my white blood cell count is right back up. I guess if I have to go back on valgancyclovir, it'll probably go back down again, and around and around we go.......  |
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Falkenbach
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« Reply #27 on: September 11, 2007, 08:35:01 PM » |
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Thanks  |
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Lulu
Jr. Member
 Offline
Gender: 
Posts: 80
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« Reply #28 on: September 11, 2007, 11:11:06 PM » |
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Hi Cyco - Justed wanted to say sorry you ahd to be in that hospital room all by yourself. I am glad you are feeling better and hope the CMV stays at bay. Wishing you the best.
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Falkenbach
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« Reply #29 on: September 12, 2007, 12:18:44 AM » |
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Thanks Lulu.
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Joe Paul
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« Reply #30 on: September 12, 2007, 12:39:07 AM » |
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Hoping things continue to go good for you Cyco  |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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Falkenbach
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« Reply #31 on: September 12, 2007, 02:05:12 AM » |
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Aww, you're all awesome. I'm sure I'll be feeling much less grumpy once this horrible cold is gone (yep, got that as soon as I left hospital, maybe before). I'm just at home resting for now, it's boring but at least I'm not getting sicker, I'm getting better.
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Wattle
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« Reply #32 on: September 12, 2007, 02:19:40 AM » |
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 I am glad you are home and feeling better.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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Falkenbach
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« Reply #33 on: September 14, 2007, 06:19:02 PM » |
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I just got a phone call from my neph (most unusual on a Saturday morning), saying that my most recent bloods are showing increased levels of CMV. So it's back on the valgancyclovir (Valcyte) for me. I hope this is all going to be okay in the long run.  |
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angela515
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« Reply #34 on: September 14, 2007, 08:43:38 PM » |
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Cyco. How long were you on it the first time?
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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Falkenbach
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« Reply #35 on: September 14, 2007, 09:46:38 PM » |
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A couple of months, as a preventative measure. Then I was taken off it for about a week, then I landed in hospital with norovirus (a gastro virus) but the docs feared CMV then, and put me onto gancyclovir through the IV. When they discovered it was norovirus rather than CMV that was making me sick, they took me off the IV drugs. That was a little over a week ago.
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angela515
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« Reply #36 on: September 14, 2007, 09:47:27 PM » |
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Wow... Well here you gotta be in it the first 4-6 months at least.
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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Falkenbach
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« Reply #37 on: September 14, 2007, 09:50:32 PM » |
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Yeah it was strange, I can't remember for sure, but I think both dad and I were CMV positive, and one of the doctors had mentioned that it seemed like I should have been on it from the start.
When I was taken off it, it was because firstly, the CMV had stopped showing up on my bloods, and secondly, my white blood cell count had become so horribly low (apparently valcyte lowers the count).
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angela515
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« Reply #38 on: September 14, 2007, 09:53:40 PM » |
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Hopefully you get it under control soon and can get it behind you  |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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Falkenbach
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« Reply #39 on: September 14, 2007, 09:58:57 PM » |
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Thanks. I hope so too. I wasn't worried before, but it's starting to bother me now, because it just seems to keep popping its ugly head back up. lol.
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Wattle
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« Reply #40 on: September 20, 2007, 05:31:54 AM » |
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Most of the world's population has been exposed to CMV.
O.K I found out today that I am CMV negative. So who is going to come down here and cough on me!!   |
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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tamara
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« Reply #41 on: September 20, 2007, 05:50:06 AM » |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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kitkatz
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« Reply #42 on: September 20, 2007, 07:38:45 PM » |
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I will.
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 lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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Falkenbach
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« Reply #43 on: September 20, 2007, 08:10:15 PM » |
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lol, no shortage of offers. If only people would come forward offering kidneys so quickly! |
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I Hate Dialysis Message Board
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