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Author Topic: Rant About Renal Diet!  (Read 11050 times)
hyperlite
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« Reply #25 on: June 06, 2006, 07:31:59 AM »

Ewww that saying bumping uglies is wrong lol
I dont think any sort of dialysis is suited for single life, unless you meet someone who is very understanding. I met my fiance prior to dialysis, but at the time I knew I would end up on it. I explained it to him as best I could, I dont think I went into great detail, and he hung around. I really dont think he thought it was anything like it is.
If anyone here on dialysis has the energy to go out and party (and try to pick up in your case), well whats your secret, because I really would like to know!

I dunno I usually feel fine on the weekends...I guess just eating right, a little excercise and probably being young helps?  :D
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Panda_9
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« Reply #26 on: June 06, 2006, 08:48:42 AM »

LOL good for you!
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julian230
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Ah cha cha!

« Reply #27 on: October 01, 2008, 07:55:56 PM »

Even when I'm really good, my Phosphorus is 8.8.  I don't know if that is "really" bad, but my Dietition sounds like I've committed a crime!  So, if I cheat and get away with it, I'll just do it more and more!  I don't do that great when I'm trying!!   :(  I'm scared to eat french fries because of the potassium.  Like after the fourth one my heart will stop or something!  Sometimes I wish there was just "another" pill I could take that would satisfy my nutritional needs and I wouldn't have to eat!

That is one of the saddest things I have ever heard. Damn, I love to eat. I eat a lot of French Fry's (YUM! Chili Fries, Extra Crispy) But I have over done it before and my Potassium can get high. I know my Potassium is high when by Sunday night I have diarrhea. Diarrhea is the body's own natural way of getting rid of excess potassium. Believe me Rerun eating a order of Fries is not going to STOP your heart, if it did I would have been dead years ago.  :-[ ;)

- Epoman

This may sound gross , but I don't mind getting the diarrhea , get rid of all that extra fluid! (And I'll be able to drink a bit more)  :P
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twirl
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« Reply #28 on: October 01, 2008, 08:12:23 PM »

Julian
i feel the same way about diarrhea
I always weight less after diarrhea
but I do not like to have it when I am in the chair in center
techs are slow about getting us off the lines
glad to know I am not alone
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monrein
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Might as well smile

« Reply #29 on: October 01, 2008, 08:32:23 PM »

Problem is, high potassium can kill a person pretty suddenly.  First time I was on D, a guy in my unit lived, but only because his heart attack happened in the parking lot and someone noticed him and they brought him back from the brink.

I don't mean to scare you guys, cuz I know you know this stuff, but getting high potassium symptoms is dangerous living. 

Julian, you're new, you're a cutie pie.  We don't want to lose you.  Don't know you near well enough yet to have you slip off the cliff.

Twirl.  I hope by now you know how much I think of you.  I can't take any unnecessary trauma here so.....please take care.

I don't mean to scold, but the cheating has to be smart.

Diarrhea to lose fluid is like bulimia to lose calories.  Interesting in the short term but hard as crap on the whole body and could be fatal.  Nothing to do with sounding gross, just worries me.


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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Wallyz
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« Reply #30 on: October 01, 2008, 09:30:19 PM »

After I switched to home nocturnal, my diet normalized. I havelow potassium and good phosphorus . Just sayin'.

An I had an ice cream float tonight. :2thumbsup;
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draven
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« Reply #31 on: October 02, 2008, 01:36:27 AM »

Have to agree with monrein, i had my levels undercontrol or so i thought. feeling perfectly fine on a saturday afternoon, had a burger and fries and by the evening had a b.p of 180 over 112 and throwing up and unable to walk.

"eat what u like but in moderation"

i also think if u cheat on the diet you should do it in the week, not when there are long gaps towards your next dialysis session.
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KarenInWA
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« Reply #32 on: October 02, 2008, 12:28:28 PM »

After I switched to home nocturnal, my diet normalized. I havelow potassium and good phosphorus . Just sayin'.

An I had an ice cream float tonight. :2thumbsup;

So, Wallyz, does this mean you can have a Steaming Pile of Manure with me at that coffee and ice cream place?  Couldn't resist, I just had to go there!

In case anyone is wondering, Steaming Pile of Manure is a chocolate mint ice cream dish at a place called The Spotted Cow!  I had to order it just for the name.  ;D

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
julian230
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Ah cha cha!

« Reply #33 on: October 02, 2008, 09:58:40 PM »

Have to agree with monrein, i had my levels undercontrol or so i thought. feeling perfectly fine on a saturday afternoon, had a burger and fries and by the evening had a b.p of 180 over 112 and throwing up and unable to walk.

"eat what u like but in moderation"

i also think if u cheat on the diet you should do it in the week, not when there are long gaps towards your next dialysis session.

Exactly ! I never understood people who would skip a friday dialysis session and come back all bloaty and horrid looking on monday ! And Before I cheat on my diet , i usually do it rightBEFORE dialysis in front of my dietitian who gives me the evil eyes, and walks away
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RichardMEL
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« Reply #34 on: October 03, 2008, 12:37:47 AM »

After I switched to home nocturnal, my diet normalized. I havelow potassium and good phosphorus . Just sayin'.

An I had an ice cream float tonight. :2thumbsup;

So, Wallyz, does this mean you can have a Steaming Pile of Manure with me at that coffee and ice cream place?  Couldn't resist, I just had to go there!

In case anyone is wondering, Steaming Pile of Manure is a chocolate mint ice cream dish at a place called The Spotted Cow!  I had to order it just for the name.  ;D

KarenInWA

Sounds like an awesome dish to order on a date.... "I'd like a steaming pile of manure... - no dear I mean the dish not you...."

(you can see why I'm single now, can't you? :) )
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Zach
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« Reply #35 on: October 03, 2008, 05:01:44 AM »


This may sound gross , but I don't mind getting the diarrhea , get rid of all that extra fluid! (And I'll be able to drink a bit more)  :P


Along with fluid, you may also lose some nutrition.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
RightSide
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« Reply #36 on: October 07, 2008, 12:27:57 AM »

I guess everybody's different.  Two weeks ago, my nephrologist told me that based on my blood work, my potassium level is dangerously LOW.  He told me to eat one banana a day and he'll check my blood work again in a few weeks.  I was stunned.
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kitkatz
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« Reply #37 on: October 07, 2008, 03:53:34 PM »

Hurray for you! I would kill someone for a banana!  :bandance;
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