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Author Topic: Information for Kidney Donors  (Read 13047 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: May 17, 2007, 09:43:52 AM »

Here are a couple resources for living donors.

--------------------------------
LIVING DONORS ONLINE: About Living Kidney Donation
You'll learn about living kidney donation in this section of LDO. Information is organized as follows:

    * Why living kidney donation?
    * The tap on the shoulder (being asked to donate)
    * Now...about your health (donor evaluation)
    * The gift (the surgical process)
    * Afterwards...

Keep in mind that policies and procedures vary from transplant team to transplant team. We've attempted
to capture "typical" policies and procedures to the extent they exist.
Go to ---> http://www.livingdonorsonline.org/kidney/kidney.htm

---------------------------------------
NATIONAL KIDNEY FOUNDATION: For some "Helpful Tips" from
previous donors and caregivers, visit
http://www.kidney.org/transplantation/livingDonors/infoTips.cfm.
This will give you a good idea of what assistance might
be needed or helpful in the days following the surgery:
driving, cooking, cleaning, running errands, child care, etc.
The living donors here can give you some idea of how much
help they needed following the surgery, if you decide to hire
outside help.

If you have many family members/friends who would want to
help, you can organize their efforts by using a website
called "Lotsa Helping Hands". The NKF has partnered with Lotsa
Helping Hands to provide an online resource for caregivers.

Lotsa Helping Hands is a simple, immediate way for friends,
family, colleagues and neighbors to assist loved ones in
need. It is an easy-to-use, private group online calendar,
specifically designed for organizing helpers, where everyone
can pitch in with meals delivery, rides, and other
necessary tasks. There is no cost to your family to use this
system. For more information on how this site works visit or to
set up an account visit: www.kidney.lotsahelpinghands.com

It's a good resource for people who will be living donors
or recipients.
-----------------------------------------------

                   :)




Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: April 13, 2009, 12:23:37 AM »

If you have a living donor who is interested in learning more about the process of donating there's a website that can offer good information and support from other living donors.
Living Donors Online is an online community for living donors, potential donors, their families, and medical professionals. There is no fee to join.
Go to: http://www.livingdonorsonline.org/
Here's the direct link for kidney donation http://www.livingdonorsonline.org/kidney/kidney.htm

A question often comes up about expenses for living donors. LDO Mentions this: While medical expenses usually are covered, travel, living expenses, child care, and lost wages from taking time off for testing, surgery, and recovery are not covered. Ideally, you have benefits from an employer, such as paid vacation or sick leave, and personal savings to cover living expenses. In the US, it is illegal to be paid for donating an organ. However, an exception is allowed for "reasonable payments" to the donor for "travel, housing, and lost wages incurred by the donor of a human organ in connection with the donation of the organ." Therefore, it is possible for a recipient to pay the donor within these legal constraints. Such payments are rare. Also, some states provide for a tax credit to lessen the financial burden of living donation. A list of states can be found here http://www.transplantliving.org/livingdonation/financialaspects/legislation.aspx . There is also a US government-funded program, the National Living Donor Assistance Center, that will cover nonmedical expenses related to donation for eligible donors. For Georgia residents, the Georgia Transplant Foundation has a financial assistance program for living donors.

To communicate with other living donors, or ask questions, go to the message board here: http://www.livingdonorsonline.org/cgi-bin/dcforum/dcboard.cgi

Our daughter met her donor on LDO in the "Looking for" section of the message board. We had a great deal of contacts from all over the world and we were offered kidneys in exchange for a cash donation, or help getting a job, or assistance with a visa. We turned down all these requests. Jenna's donor wanted nothing in return. We did reimburse her for expenses for travel and hotel, and she turned around and donated it to another needy family (she's a saint!)
« Last Edit: April 27, 2009, 09:56:19 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MizzKristi
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« Reply #2 on: May 08, 2009, 02:56:00 PM »

 :thumbdown; After a person donates a kidney, Has anyone heard if drinking is a No-No? :thumbdown; :beer1;








EDITED:Fixed smiley tag error-kitkatz,Moderator
« Last Edit: May 08, 2009, 04:34:05 PM by kitkatz » Logged
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: May 09, 2009, 01:05:46 AM »

I haven't heard of any restrictions for donors except for the recommendation to avoid NSAIDS (such as Advil.)
« Last Edit: May 09, 2009, 09:20:17 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!

« Reply #4 on: May 09, 2009, 06:10:56 AM »

My father-in-law donated 30 years ago and still enjoys :beer1;
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monrein
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Might as well smile

« Reply #5 on: May 09, 2009, 09:23:34 AM »

My donor still likes a beer or two on a semi-regular basis but of course moderation will be the key in all things....kind of like for all of us.
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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