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Wanted to share
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Topic: Wanted to share (Read 1341 times)
galasso
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Wanted to share
«
on:
October 12, 2022, 08:20:33 PM »
I had an interesting (positive) experience throughout September. Backstory: In 1996, when I was 15, I had my first kidney transplant, with my (adoptive) father as the donor. During the surgery, the artery kinked, causing a significant amount of damage to the kidney. It was never able to get the body to produce blood without Epogen, Procrit, or Retacrit; and never brought my creatinine below 2.0. My main nephrologist wanted to keep me on the transplant list since she didn’t think it was going to make it, then a prediction that it would just get me out of High School (1999) then “maybe just out of college”. In 2015, the nurse practitioner saw the numbers declining and thought I was starting to lose the kidney. After some doing, in 2019, I was relisted for the kidney transplant, but my dad’s kidney bounced back to low 20’s so I was put on hold. On 9/2/2022 I got a call saying that I have been reactivated on the transplant list and to “Keep my phone on me”. On 9/9/2022, I got a call at 10:00am saying I had a kidney offer: Sadly, it belonged to a man in his early to mid 20’s who had gotten into a car accident and didn’t make it. I accepted and had surgery that afternoon. The new kidney has my creatinine at 1.09 and GFR at 87. I had the sutures removed on 10/3/2022 and the stent removed on 10/10/2022. (I was working remote before the transplant, which is why) I’m set to return to work on 10/17/2022.
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plugger
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I only look like a sheep - but I ain't
Re: Wanted to share
«
Reply #1 on:
October 13, 2022, 09:28:00 AM »
Great News!!!
May that kidney do you right for a good long time! I also can testify they can. Looks like you and my daughter are proof a transplant can last quite awhile! I gave her a kidney back in October of 2000 when she was 18 - and she still has it! There have been a few bumps along the road, but the kidney has held up! May you keep on rolling!
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
SooMK
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Re: Wanted to share
«
Reply #2 on:
October 13, 2022, 04:24:42 PM »
What wonderful numbers. May it always be so!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
okarol
Administrator
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Photo is Jenna - after Disneyland - 1988
Re: Wanted to share
«
Reply #3 on:
October 14, 2022, 12:47:48 PM »
That's awesome! It just goes to show, they never can predict an outcome.
So happy for you and your new bean!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
cassandra
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When all else fails run in circles, shout loudly
Re: Wanted to share
«
Reply #4 on:
October 15, 2022, 05:15:56 AM »
Congrats!!!
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I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
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