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Author Topic: 11 years post transplant  (Read 144 times)
rookiegirl
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« on: February 04, 2020, 05:42:37 PM »

Good Evening,

Itís been 9 years since I last posted. Iím so sorry for being a slacker and really miss this forum. Especially the site administrators. Hope you are still here. I just read my introduction that I posted in 2007...wow I wrote a short novel. It reminded me the journey I went through before/during dialysis and transplant. This March will be my 11th anniversary post transplant (cadaver).  Iíve had no major issues except for my Prograf levels goes up and down. My current immunosuppressant are Prograf-1mg x2, Myfortic 180mg x2, Prednisone 5mg. My life has been and still is a blessing. Very grateful for each moment.

Thank you!
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
iolaire
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« Reply #1 on: February 04, 2020, 06:02:30 PM »

Thank you for coming back for a checkin. How often do you check your Prograf/Tacrolimus level these days?
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
rookiegirl
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« Reply #2 on: February 04, 2020, 06:19:10 PM »

I check my Prograf levels monthly
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
MooseMom
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« Reply #3 on: February 04, 2020, 07:45:19 PM »

What sensational news!  Thank you so much for coming back to us to let us know how you're doing!  Eleven years!  How wonderful for you!

 :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly

« Reply #4 on: February 05, 2020, 01:49:34 AM »

Great update, glad to have you back


   :cheer:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
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