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Jayy
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« on: February 22, 2019, 10:50:36 PM »

Hello all, the name is John/Jayy, I am 25 y/o and been on dialysis for about 3 years now. Currently on HD using AV fistula( hating the bumpy arm due to aneurysm btw   :stressed; ) but used to be on PD for 2 years.
At one point, I noticed the growth of my fistula, developing bumps and looking like an alien hand or some sort, so I started to regret for like a day that I should have just went with the chest catheter but then it came to me it's already there so might as well go with it.
Nevertheless, I found this waterproof fistula cover on the web, bought it which is actually pretty awesome it covers my fistula well and decreased my self-consciousness in public.

Surfing through the web looking for people around my age and how they're handling dialysis with school, work and social life. Then, I found this website with a community of helpful people, people with years of experience with dialysis, maybe people at my age range and people just started on dialysis.

I've actually been lurking in the website for a while now, reading people's experiences/stories with dialysis and some of them I can really relate too which helps me with what I'm going through at the time. So, one day I thought to
myself, why not become a member of the IHD community ask for advice, share some of my own experiences and struggles with dialysis.
So, here I am introducing to you all who are all over the world but on the same adventure with dialysis.  :bandance;
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jambo101
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« Reply #1 on: February 23, 2019, 01:22:47 AM »

Welcome to the forum Jay  :waving;
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Jim
cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: February 23, 2019, 04:39:50 AM »

Welcome to the site Jayy


   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
iolaire
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« Reply #3 on: February 23, 2019, 07:59:06 AM »

Welcome to the group.

Please would you share the website or brand name of this?  ďwaterproof fistula cover on the webĒ

Last year I was looking for something to protect my now removed fistula.  I didnít have much luck and also worried about finding something protective that would work with the bump. So the details might be helpful for others.

I took out my fistula in December as Iím 1.5 years post transplant and the fistula was in a bump growth spert.
« Last Edit: February 23, 2019, 12:33:52 PM by iolaire » Logged

Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Michelle2016
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« Reply #4 on: February 23, 2019, 09:31:13 AM »

To Iolaire:

You can find the Waterproof Fistula Cover@amazon.com.  Itís a smart idea.

Take care.
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Jayy
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« Reply #5 on: February 23, 2019, 09:53:29 AM »

@iolaire

 I got the fistula cover on this website https://www.etsy.com/listing/251347537/water-resistant-arm-band-fistula-cover
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Simon Dog
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« Reply #6 on: February 23, 2019, 10:20:53 AM »

I took out my fistula in December as Iím 1.5 years lost transplant and the fistula was in a bump growth spert.
I sure hope not!!!!
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iolaire
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« Reply #7 on: February 23, 2019, 12:34:20 PM »

I took out my fistula in December as Iím 1.5 years lost transplant and the fistula was in a bump growth spert.
I sure hope not!!!!

Thanks thatís auto corrected from post.

Thanks for the link @jayy
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
kickingandscreaming
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« Reply #8 on: February 23, 2019, 01:25:38 PM »

Welcome, Jayy.  Good that you finally joined this band of "merry dialyzors."
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #9 on: February 24, 2019, 10:25:21 AM »

 :grouphug;

Hello John, welcome to the site.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
Charlie B53
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« Reply #10 on: February 25, 2019, 05:22:12 AM »


Hi Jay and Welcome to IHD.

I can easily understand what you mean about finding this place as most every one of us had much the same experience getting here.  It is great to be able to share with others going to many of the same conditons.

Being on Dialysis is troubling enough, and staff haven't a clue what i.t is like on the business end of the needle.

Many here have years and years experience, so many of the things that puzzle us newer members have been done and dealt with long ago by others.  Sharing those solutions is a great help to making those adjustments to our Dialysis treatment lives.

Open communication is critical.  Never be afraid to ask anything.  This is exactly why Epoman started this place.  We are all so fortunate that he did.

Take Care,

Charlie B53

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