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enginist
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« on: October 06, 2018, 03:42:56 PM »

I have some questions about the side-effects of hemo.  The main one is, can I run?  Could I do a 5k?  The second one concerns the dialysis diet.  Is it more restrictive than the standard renal diet, which is bad enough?  Finally, would my mind be enveloped by a fog?  Would I be able to read with as much pleasure and comprehension as I do now?  And could I still enjoy my hobby, recreational math?

It all comes down to quality of life.  I don't mind needles and can deal with pain.  But if the QOL is lost, then there is no point.  It's just staying alive to stay alive, forgoing most or all of the things that make life worth living.
« Last Edit: October 07, 2018, 05:10:46 PM by enginist » Logged
Cowdog
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« Reply #1 on: October 09, 2018, 06:58:48 AM »

Hi Enginist and welcome,
Sorry for the late reply.
Yes there is QOL. If you don't have a lot of other issues you can continue with pretty much everything you did before kidney failure.
I'm fortunate that I "only" have kidney failure. I've been on HD since Oct 08. I still work and still have my farm. HD to me is just a part time job with no days off and no vac.
Some days I'm a little worn out after treatment buts that's usually because I had on and had to remove more fluid than I should.
HD diet calls for a lot of protein, low phosphorus, low potassium and low sodium. I eat pretty much what I want in moderation. Your labs will dictate what works for you and what doesn't.
I've never experienced the fog you ask about. Only side effect that I have is what I call dialysis brain post treatment. my body will be tired and I need to go to sleep but my mind is racing thinking about everything. I've always thought the clean blood stimulates my brain.
If I can help don't hesitate to ask.
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kristina
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« Reply #2 on: October 09, 2018, 07:40:26 AM »

Hello enginist and welcome to IHD,
I am not sure about the running, I never run, but I go for walks and that is possible.
The dialysis-diet is in my case the same kidney-friendly vegetarian diet as I was adhering to when I was still pre-dialysis.
Whether your mind develops a fog or not, depends possibly on your diet. Please ask your dietician. In my case it goes like this : the more I adhere to my vegetarian kidney-friendly diet, the better my grey cells serve me and there is no fogginess. Mind you, after a long weekend, there is on TT (=Terrible Tuesday) sometimes a little fog to be noticed, before I  start with my first dialysis-session of the week ... and then it is all back to normal again without any fog. I have noticed that the more strictly I adhere to my vegetarian kidney-friendly diet, the better is my quality of life, including a bit more energy, less fog etc. It is all a balancing act ... and I do hope you find your own way with this...
Best of luck wishes from Kristina. :grouphug;
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  He was completion and fulfillment in itself, like a meteor which follows its own path.
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enginist
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« Reply #3 on: October 11, 2018, 02:24:02 PM »

Thanks for the response, Katrina and Cowdog.  Both of you seem to have adjusted well to what seems dread to me.  Like you, Cowdog, I have no comorbidities, so maybe I can remain as active as before.  If you can run a farm, I can probably run a couple of miles.  And like you, Katrina, I'm thinking of going all-vegetarian to try and reverse the decline of my GFR.  Last year, it jumped from from 16 to 24, which made me euphoric, but then it dropped five points this year, an ominous decline.  I may have gotten a little complacent about my diet.  Again, thanks to both of you for being such good examples for me to follow.   
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Charlie B53
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« Reply #4 on: Today at 05:41:38 PM »


I can answer every one of your questions with the same one question.  WHY NOT?

Dialysis doesn't lilmit us.  We tend to limit ourselves.

Diet and fluid control is essential.  Period.

Learning to control those foods high in potassium and phosphorus is critical.  You can still have some, just not much.  Moderation of things is the key.

Fluid control is critical.  The more fluid that needs to be taken off with treatment the more 'shock' this places on body systems.  Tiredness, muscle cramping are the two major symptoms of large fluid take-offs.  Limiting my fluids, keeping my take-offs at or under 2 liters makes it far easier to stay more active.

Runners carb load, you can still do this.

You will learn how much fluid you sweat off and what fluids you can best use to stay hydrated during a run.

It takes a lot of practice. Keep a good scale at home sso you can check your progress.

Like already mentioned, wear pretty much the same weight clothes to treatments as the clinic scale won't tell if your new boots are 3 pounds heavier than your tennis shoes, they will assume you have a few more pounds of water to remove.

Always go to the bathroom and make sure you are not full of it as that is weight.  Here again, they will assume that is water needing to come off.

Eventually you will cramp.  Mine usually occurs while sleeping.  Get UP!  Stand up and walk.  Moving for me is the quickest way to end leg cramps.
Watching my diet and fluids as hard as I do I am still losing the extra weight I have always carried.  I am already 20 pounds under my High School Football weight, years in the Army, and most my adult working life.  For me, it hasn't been the easiest, but not bad either.

Take Care,

Charlie B53

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