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Author Topic: Dialysis Dilemma  (Read 1392 times)
Whamo
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« on: August 15, 2018, 01:11:50 PM »

 :oops; :banghead; :banghead; :banghead; :banghead; :banghead; :banghead; My doctor gave me a choice today.  I could either increase the volume of my PD cycles or add another cycle.  I hate large volume so I bit the bullet.  I already do 10 1/2 hours 7 days a week.  Now I have do 80 minutes more a day.  Transplant, please!  I hoping I'll be back on the list once my three surgeries heal.  Thank God they're doing well. 
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iolaire
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« Reply #1 on: August 15, 2018, 01:40:41 PM »

Sorry to hear that.  You already are committing a lot of time to dialysis...  Bumping that up to over 1/2 a day is quite a lot.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Jean
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« Reply #2 on: August 15, 2018, 02:02:05 PM »


Bummer Whamo. Hope your transplant comes in soon.
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One day at a time, thats all I can do.
laniepoo7
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Lane

« Reply #3 on: August 15, 2018, 02:07:29 PM »

I'm sorry to hear that!  I also hate larger volumes with PD, I JUST got used to 2.0L and could not imagine more... :cuddle;

I hope your transplant comes through soon!
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Diagnosed with ESRD 4/30/2018
In-Center Haemo 5/8/2018
Peritonneal Dialysis 8/1/2018
kickingandscreaming
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« Reply #4 on: August 15, 2018, 03:48:51 PM »

I'm in the same boat, Whamo.  It is tolerable... barely.  After I lost some of my peeing ability after a couple of hospitalizations, my clearance went way down.  So They changed my PD RX to a program that eats up 14 hours of my day--I do a manual, followed by 6 exchanges on the cycler and ending in a final fill/dwell/drain on the cycler.  So that's 8 exchanges total. It's a lot!  In my case it's somewhat mitigated by my being a high average transporter, so each exchange is not more than 1 hour/25 minutes. And, apart from the manual which is 2L fill, all the rest are 2400ml each.  So a lot of volume.  At first it was hard and then with time it has become quite tolerable.  I'm just a barely 5'4" woman so 2400 is a lot for my stature.  If I can survive it so can you.  Making that change increased my clearance by quite a lot.  I'm expecting that the next time my clearance tanks I will have to go on HD  or go to hospice (since I hate in center HD with a passion.)
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Whamo
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« Reply #5 on: August 15, 2018, 11:39:57 PM »

Thanks to all for the kind words.  Kicking and Screaming,  :cuddle; :boxing; :boxing; :boxing; :boxing; :boxing;I feel sorry for complaining after hearing your plight.  Later last afternoon I learned I will need another green bag.  That is four bags a day.  As Mick Jagger once sang on an "Emotional Rescue" song, "...Life just goes on getting harder and harder..."  Now that I'm healing from surgeries I think I'll use the time to finishing a couple of writing projects.  One is about a man of a thousand voices that never wants to leave Disneyland.  When I was three I was the first kid to go into Fantasyland and I've always wanted to never leave there when I go.  The other one is a story about Captain Cook's fatal voyage around the world three times.  The Hawaiians kill him for some good reasons I reveal in the script.  I'm also anxious to exercise again.  It makes me feel better. 
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