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Author Topic: Hello... Where Do I begin.......  (Read 2575 times)
Mr Ken
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« on: August 05, 2018, 11:37:47 AM »

Been doing Hemodialysis since June 2017... It sucks. Took me a long time to finally get into a PD program lots of stories to tell on that journey. Been doing PD since July of this year..... it sucks. Because I have no social support for post operative care I cannot be considered for a transplant. What else could I say. I HATE DIALYSIS.
If anyone has any questions I a full of experiences here....

Thanks

Ken
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kickingandscreaming
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« Reply #1 on: August 05, 2018, 03:53:29 PM »

I empathize.  I have also been told not to bother getting on the list because I, too, have no available network to help me recover from TX.That sucks.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Charlie B53
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« Reply #2 on: August 05, 2018, 06:43:06 PM »

Welcome to IHD.

A number of members have tried both PD and HD.  Depending on individual tastes and lifestyle either system can work near equally well.  It is all in how you can make it 'fit' to you.

BOTH systems do require a certain amount of 'adjustment' in your behavior, like diet and fluid control.  PD is far more lenient concerning diet and fluids than the strict limitations I force on myself with HD.

Neither method is perfect, but both do allow us to keep on living and still have some enjoyment, quality of life.

It is pretty much what you make of it, depending on other medical issues.

Tx is not an option for many of us with 'other' issues.













Sp mod Cas
« Last Edit: August 05, 2018, 10:00:21 PM by cassandra » Logged
cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: August 05, 2018, 10:01:48 PM »

Welcome to the site Ken


  :welcomesign;


Keep strong, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #4 on: August 07, 2018, 03:07:34 PM »

 :welcomesign;
Hello Mr Ken, welcome to the site.

I am grateful for your post as it has giving me something to think about. When/if I get the opportunity to go on the list I guess I will have to make sure I have a support network, even if I have to bribe people to be my support network.

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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
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