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Author Topic: Adult related topic: intimacy post tx  (Read 11435 times)
UkrainianTracksuit
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« on: March 02, 2018, 12:31:57 PM »

This is more for my husband than me. He’s the one already asking the questions so it shows his one-track mind. I haven’t even reached the point of consideration yet (big incision, soreness, a drain...)

My word, I am so embarrassed to even post this and more so to ask my team.

The post-tx handbook suggests 2 kinds of contraception. Their suggestions were a mix of condom or IUD with spermicide. My husband isn’t too pleased with either option. I mean, he understands well that getting pregnant on Myfortic is not good but he hates barrier methods. The success rate of spermicides on their own is too dangerous to consider. I’ve never had an IUD but if I have to, I will. What worked for you?

Are there forms of intercourse that should be avoided? My husband is concerned about performing oral. The team kind of got him concerned over the immunosuppressive stuff in stools/urine (so flush twice... etc etc) and how he can’t touch the anti rejection drugs. Besides vaginal and oral, you can deduce the other option and I am of the belief of no way, too risky.

Were any of you told you could get sick once you resume relations? They told me it is a possibility because of infectious disease concerns. (Things my husband doesn’t really have control over like EBV.)  And did you get UTI’s soon after?

We are a fairly young couple and my husband is a healthy male so he’s wondering all these things.

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MooseMom
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« Reply #1 on: March 02, 2018, 02:44:52 PM »

Wait a minute.

You've had major transplant surgery, are now on a cocktail of powerful drugs, and YOUR HUSBAND DOESN'T LIKE "BARRIER METHODS"?

What is wrong with this picture?

Can't he be a bit considerate and use a condom for at least the first year post tx?

I've never been told that my husband couldn't touch the anti rejection drugs.  What does that even mean?  He can't touch them?  What?

Is being a "healthy male" synonymous with abdicating from his responsibility for keeping his wife safe?

This topic really annoys me, as you can tell.   :boxing;  I'm sorry you even have to ask, but I'm glad you did!  But to answer his very valid question, use a condom, dammit!  LOL!  I wouldn't suggest any sort of spermicide just because it means subjecting your body to yet more chemicals, and IUDs mean yet more dr visits.  A condom is so much easier.

And no, "the other option" is off the table.  You're right...too risky for anyone who is immunosuppressed.  Nope, nope, nope.  Besides, if you are in the least bit concerned about that option, your body just won't allow it to happen, anyway.

Too bad if he doesn't like my answer.   :rofl;

BTW, I'm glad you posted this.  This is an important issue, and we look out for each other here on IHD.  You don't have to be embarrassed with us, but I still do understand your embarrassment, so thanks for giving us the opportunity to discuss this.  :thumbup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Naynay99
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« Reply #2 on: March 02, 2018, 04:47:12 PM »

Hey.  So I had a tx as a kid that is just now on its last legs so I have been in relationships my entire life with a kidney transplant.  Personally, in my opinion condoms are a PIA.  They are great for safe sex from stds esp when in a new relationship but as long term birth control they kind of suck.

I have a copper IUD which lasts for 10 years, no hormones,  no thinking about it, no spermicides, nothing to put in or on, 99% effective.  The guy can’t feel it during sex (tho he may be able to feel the strings when fingering you).  Idk why more people don’t use IUDs.  The putting it in part is kind of a bitch as in quite uncomfortable but by the time 10 years has passed and was time for a new once I had forgotten that it hurt to get inserted!  My only side effect was somewhat heavier periods, but I actually got less cramps than before.   

As for your husband being afraid of performing oral sex bc of the antirejection meds, unless you are taking them vaginally, that is totally ridiculous!!  Is he equally afraid of being exposed to them in your saliva while on the receiving end of oral?  Somehow I doubt it...  My ex bf was very generous with giving oral and we never had an issue. 

I think this is a totally valid concern to bring up.  My personal vote for birth control would be an iud.  It’s basically just a piece of copper that makes your uterus an inhospitable place for a fertilized egg to make its home.  Whatever you decide,  best of luck.
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Naynay99
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« Reply #3 on: March 02, 2018, 04:54:30 PM »

Oh and I never got a UTI.  I always made to sure to pee right after sex to prevent from getting one. I’m not sure where I heard that but it seems to work.
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MooseMom
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« Reply #4 on: March 02, 2018, 05:04:31 PM »

Just to be clear, my post was meant to address short term "concerns".  What sort of birth control best suits you for the long term is a different topic.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #5 on: March 02, 2018, 05:40:48 PM »

I had an IUD a number of years ago, and it was horrible to get it inserted and then it got embedded and had to be surgically dug out. Not fun.
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UkrainianTracksuit
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« Reply #6 on: March 02, 2018, 06:24:28 PM »

My husband can be a little bit selfish at times but he acknowledges it. Well, once you remind him that he's being selfish. He spent a lot of time as an athlete which creates a mindset of me-me-me-me (my training, my food, my schedule, etc) So, yes, there is something wrong with the picture where I am the one that had a double organ tx and a cocktail of drugs and he's concerned about his ummm, preferences? Without being insulting and in no way an insult to my husband, but he is a bit of a pig.  ::)

I admit that I know nothing about birth control in the first place. Transplant has opened all these questions I never considered before. And since I never expected to follow the transplant route, and everything happened so fast, I never had time to explore. My team is all male and Middle Eastern so we don't have that kind of rapport to broach the subject yet.

And yes, my concerns are for the short term or at least until I am stable. Really, I don't know. I don't know if things get better but right now the thought of intimacy scares me. Once patients are stable, do the rules or suggestions become less stringent? I see people that have gotten pregnant and had healthy children post-tx (once stable) but right now, I just don't know. It seems like a whole new planet now.

I explained to my husband that the condom market/selection??? is so vast and expansive now. It's not like the terrible things he is thinking of like Russian-produced ones. It is not the end of the world if he has to use one until something better is figured out. Honestly, I was kind of peeved off that he would bring this topic up now when he knows/sees I am in discomfort. (I must stress that he wasn't looking to do anything but just wondering when he can get back to business.) A part of it is cultural where he has to be big man in charge and I guess having a wife with a tx is a sign of weakness/failure. Don't get me wrong, he is very happy I got transplanted and excited for a future of more freedom, but there is that.

I wonder why my center stresses the use of 2 forms of contraception at once? I mean, I understand to be "double careful" but it just seems a bit overwhelming for me. While reading, I read how spermicides could cause irritation to the woman and the man, so, rather unappealing. At this point, I want to run off to a convent.

As for the "no touching" of the anti-rejection drugs, what happened was he wanted to help me pop them out of the package and they stopped him. They said because the drugs can be absorbed through the skin and the "dust" (no pill dust was present btw) inhaled into the lungs, he shouldn't handle them for the sake of his own immune system. Then, he really had an anxiety attack with all this "cytotoxic" warnings all over the place... especially the bathroom. So, it got him wondering, what other bodily fluids are to be avoided? Hence, he's concerned about oral. As for saliva and kissing, he hasn't kissed me (even a peck) at all. However, it is good to know and a relief to him to know someone (NayNay) has noted his concern never really was a problem.

He figures that this part of his life will go downhill now. Again, selfish thoughts. He believes that it is going to take a lot of sacrifices that "other people don't have to do" and as a result, things won't be the same. Obviously, yes, they are not the same! I remind him these are very early days and he is going to get to know a better version of me since he's only known me as the ESRD/dialysis patient. Think of things positively... but it goes back to his sex life.

Now, I am really not sure about the IUD route. One says good experiences and then I see the cons...

While I am glad that this discussion is appreciated, and something I am sure a lot of people question, I still feel pretty exposed!
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Naynay99
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« Reply #7 on: March 02, 2018, 07:32:44 PM »

Wow. You have a lot of things that you are stressing about right now.  Your post tx recovery should definitely be one of them. But while Its great u are being so responsible re pregnancy and thoughtful of your husbands preferences, don’t forget that sex is supposed to be fun! It should not be another source of stress!

I would imagine that becoming intimate again will probably take some time to feel comfortable, I know it would for me. I couldn’t even laugh or cough w/o pain for a while after my transplant.
I would agree w others that condoms r probably the way to go at least for now. U can always choose a longer term method later on. While I am pro IUD and have had only positive experiences Its clear from another poster that’s not always the case, so I guess look into it more later on and see if it seems right for u or not.

I had never heard anything about It being dangerous for others to touch  antirejection meds.  My mom filled my med cases my entire adolesce and she was fine.  But I guess every center has its own specific concerns 

And don’t be embarrassed- that’s why internet anonymity is so great- u don’t have to ask this in person to a uptight doctor!  Best of luck to you!  Congrats on the transplants.
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MooseMom
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« Reply #8 on: March 02, 2018, 09:21:28 PM »

U-Track, I have never EVER heard of any sort of warning about avoiding kissing/saliva while on immunosuppressants  because it may cause problems for the person you're kissing!  If you can't kiss or be intimate with someone after tx, why have the tx?  What kind of life would that be?

While it is true that immunosuppressants do just that...suppress the immune system...., it doesn't meant it is obliterated.  I have a WBC differentiated done each month, and all of my blah blah phils are within perfectly normal ranges.

Speaking of cultural lenses, I just have to ask; since your tx team is made up of Middle Eastern men, do you think that if your husband had been the one transplanted that they would have told him that his wife couldn't help him fill his pill box because it would be dangerous for her to touch the meds?  I bet not!  I can't escape the feeling that this is a case of one group of men providing an excuse for another man not to do something as emasculating as helping his wife fill her pill box.   ::)

And no, "this part" of his life can only get better because you will be healthier! 

Could you possibly consult with a female gynecologist and discuss these issues with her?  You'd most likely feel way more comfortable taking to her than to your all male, all Middle Eastern tx team!  She could help you decide what method of birth control might be better for you and your husband both in the short term and in the long term.  There is no one right answer.  You may have to experiment a bit, once you can even contemplate having sex again, of course!

And yes, once a patient is stable, there are fewer restrictions.  Of course, one could say this about ANY patient and not necessarily specifically about a transplant patient.  You've just undergone major surgery  and are on a medication protocol that will most likely not stabilize for some months to come, and that's entirely normal.

Keeping your wife safe while she is recovering from major surgery is a "sacrifice"?   ???

I agree with Naynay!  Sex should be fun, not an obligation.  Being of a certain culture is no excuse for putting your wife in peril just because you have an itch to scratch.

(On an entirely different matter, U-Track, I was reviewing some of your early posts and found one about the 2014 Winter Olympics in which you talked about the Russian curling team.  Did you know that the US curling team won the gold by beating Sweden?  Isn't that something?!)

Oh, and UTI's are a definite concern, even in "healthy" women.  Not that it WILL happen, rather, if it DOES, it can become a real danger in a kidney transplant patient.  That's another thing you can discuss with a gynecologist.

If you don't mind, please keep us posted on your thoughts and decisions.  Like I've said, this is an important topic.  Tranplants are meant to make life somewhat normal again, and having sex with your husband is about as normal as things are supposed to get.  Perhaps the most important thing right now is to try to be patient with your body, and tell your husband that, too!

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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Charlie B53
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« Reply #9 on: March 03, 2018, 03:14:33 AM »


I havea poor record with condoms.  Too many failures.

Spermicidal as a back up was a good back up, and it doesn't necessarily have to be inserted until immediately before actual penetration, so you both can go ahead an enjoy whatever foreplay you want before it becomes time to get serious.

Definately schedulae an appt with your Gyn to find out any other options available.

The failure rate of IUD's is actually not so many, but it does happen and can be very discerning to those affected.
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UkrainianTracksuit
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« Reply #10 on: March 04, 2018, 06:33:43 AM »

Thanks again to each of you for your posts and suggestions.

Yes, I think a visit to the gynecologist is in order once we go home. One would be in the know about all the relevant forms of birth control and what would work. I got absolutely frustrated with my GP because he kept trying to push pills when he was aware of my health issues. As for the whole other world of birth control, I don't know much.

MooseMom, I do think it could be a situation of males sticking together. While they are good, concise and on the ball doctors, I kind of get the feeling like they think I am a dumb girl. You know, I actually had an Israeli (male) home care nurse who told me, the patient, that I have to "take care of my husband." His words! As in once I am on my feet, he should be my priority.

My husband is just being paranoid it seems. No one said anything to him about saliva but it is like kissing would give him cooties now or something. The other thing NayNay quickly mentioned in a previous post.. let's call it "digital penetration." He said he guess he has to wash his hands really well and I said, shouldn't you always?  ??? He thinks his hands will give me an infection... it is common sense at times to just keep things clean.

I have never had a UTI in my life but hearing my friends talk about them/reading about them, they seem horrible. And yes, my patient information has informed me how bad they are for tx patients. So, I do have this fear that one will show up...

I mean, everyone is different, but once a patient is stable, will birth control be so stringent? I know with Myfortic they want pregnancy tests regularly because the drug is so dangerous to the unborn. Further, I know, if we plan to get pregnant or think I am, there have to be drug adjustments and it must be discussed first. (Personally, I couldn't imagine that right now.) But, that would mean, at some point, patients are having sex without protection? I am sure my husband would like to hear that.  ::) I won't get into the complex virus concerns...

To make matters worse, my husband hasn't had sex in over a month so he's getting edgy. Patience is key here. He has seen my incision more than I have (he's watched bandage changes), he knows I still have stents and a drain... where is his pea brain? Another thing that doesn't help is that his male friends think he is married to a science experiment now. As in there are so many healthy good looking women from our part of the world, why are you staying with a miscreation? Our church teaches that sacrifice is part of marriage, so this is his "sacrifice".... he doesn't want to get me sick, he wants me to be safe, but he is apparently a source of pity.

I need patience with my own body as well. Thanks for the reminder, MooseMom. I knew prior to surgery I would end up with a large scar but it still bothers me. And I have 4 drain holes that need to close as well as a 5th that needs to come out. My body in general has just taken a hit all over and I feel completely gross now. The high doses of prednisone (really high in the beginning because it was a double) dried me out so bad I had cracks on my face! My hair dried all out and I have lost a lot so far. I know this is temporary and will get better but it is still upsetting. So, at least for me, I don't think anything is going to happen for awhile and my husband is going to be crabby.

Edited to say: Yes, MM, I saw that the USA won curling gold which is pretty special! Your comment took me back to 4 years ago and how life was so different then. I am thankful the Olympics were on while I was hospitalized because I would have lost my mind. The last time, I was there and this time, I got a tx. Makes me wonder what will happen for Beijing!  :rofl; ) My husband is going to the World Cup "just because" even though he isn't too concerned about football or has no faith in the Russian team.  :P
« Last Edit: March 04, 2018, 07:08:28 AM by UkrainianTracksuit » Logged
MooseMom
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« Reply #11 on: March 04, 2018, 09:45:35 AM »

U-Track, is there any reason no one has mentioned oral contraception?  (And that's a general question to any ladies out there of childbearing age.)  Are they contraindicated for female tx patients because of the immunosuppressants?  I really don't know!  Or are you merely not keen on the idea, U-Track?

I don't understand how a man would be afraid of getting cooties from his wife's saliva but would be just fine with having sex with her.  One would think that such a man, who is afraid of even touching the meds, would be eager to use a barrier method.  What am I missing here?  (I think I know, but I thought I'd ask, anyway!)

You know what?  While I understand your concerns, why not give yourself a bit of a break and stop thinking about this for a while.  Nothing's going to happen in the foreseeable future, anyway, and you have other things to be thinking about.  Maybe set this one topic aside for the moment.  Or, maybe suggest to your husband that HE talk to your tx team privately.  Or, maybe he can talk to a gynecologist himself!!!  If HE has all of these questions, let HIM to the asking for the time being! 

He thinks himself to be a source of pity?  Oh, that made me snort with derision!  LOL!

PS.  I'd love to go to a World Cup!  I did go to a qualifying match several years ago, and it was really exciting!!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #12 on: March 04, 2018, 02:08:59 PM »

Hi! My kidney transplant is nearly 6 years old and before I had it done hubby had a vasectomy. We had 2 kids a boy and a girl  (now 10 and 6) and he thought this would be the best idea 😂. Which it is but he is so paranoid still wants to use condoms around my fertile time. He agrees about me not taking the pill again am on enough pills. To be honest his whole though process revolved around what was best for me post transplant not for him. So sorry can’t be a lot of help 😂
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UkrainianTracksuit
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« Reply #13 on: March 04, 2018, 03:46:44 PM »

MooseMom, oral contraceptives are off the table because they apparently cause an increase in Advagraf levels. At least, that is the situation in my case. The information also says there are no restrictions on sexual activity and can resume once comfortable. However, my husband has to split hairs and break it down to categories.

I hate to be so slow but could you explain what I am missing re: not touching pills, cooties but okay to have sex? You see an explanation but I don't know it. I chalk it up to my husband being a little egotistical.

Hehehehe, yes, it would be nice if he could go ahead and ask all the questions since it all so important to him. But you're right, I should not stress about this right now although he gives me stress.  :o He doesn't mean to, or maybe he does, I don't know. I kind of feel that if I am not running on all cylinders, that he will find someone else. I don't appreciate his friends considering me to be a science experiment and saying they could "never do it." It's probably an overblown worry but you know, prednisone makes everything worse.

Hi! My kidney transplant is nearly 6 years old and before I had it done hubby had a vasectomy. We had 2 kids a boy and a girl  (now 10 and 6) and he thought this would be the best idea 😂. Which it is but he is so paranoid still wants to use condoms around my fertile time. He agrees about me not taking the pill again am on enough pills. To be honest his whole though process revolved around what was best for me post transplant not for him. So sorry can’t be a lot of help 😂
Oh my gosh, if someone mentioned a vasectomy to my husband, his brain might explode!  :o He takes great pride in his virility... and yes, he's had all that checked. It's just such a shame he fell for me and not someone to give him 20 kids! However, I am glad that it worked out well for you guys and your husband is so caring!
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MooseMom
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« Reply #14 on: March 04, 2018, 05:03:07 PM »

Thanks for informing us about the pill and Adagraf levels.  I did not know that.

I am sorry you are feeling a psychological burden of being seen as an experiment of some sort.  I DO hope it's just the prednisone talking.  And I'm more sorry that you have that feeling that if you're not good enough in some way, your husband will find you lacking and will leave you.  Is this something you can talk to him about?

Sometimes my meds make me really shaky, both physically and emotionally.  It's worse when I'm tired or hungry.  If I am feeling this way, I warn my husband.  He's very understanding once he knows what's going on with me.  Perhaps if you share your concerns with your husband, he could reassure you.  Only you can decide if this is a good idea, though.

 :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #15 on: March 05, 2018, 06:47:29 PM »

No problem about letting people know about Advagraf and birth control.

As for talking to my husband, I could, but I am unsure I would get a sufficient answer. Let's face it: it is true that there are super-women from our part of the world seeking a stable man. They are very open in their behavior too so why come home to this mess? In such a case, he wouldn't have to worry about any of this and have all the barrier method free sex he wants without drugs and scars. As well, I am unsure how much weight the opinions of his friends have on him. They say how they could never do what he is doing. It was bad enough on dialysis but my prescriptions were few and tame. Now, with this treatment option, where I am able to live more normally, they think it is a turn off. I don't understand but acknowledge they are vastly uneducated. He is a grown man and capable of his own decisions but I wonder.

I haven't had many prednisone mood swings as of late but I usually end up crying and say, "It's a mood swing!", and he'll try to talk to me. I married the man so why complain now, I know what I got myself into, and that meant a lot of vanity. Not sure how to balance that with life's ongoing changes and transplant though. I had very little issues on dialysis (an easy patient) so I managed to be fairly inconspicuous. As I become more stable with tx and certain side effects subside, I am sure that inconspicuousness will return... as least when clothed. So, no wonder we are both on different pages on the intimacy part.

Anyway, he learned today that he should wait 4-6 weeks for intercourse or until the incision is healed. However, other forms are a go once comfortable. He was also advised that post-tx desire returns better than when patients are on dialysis. That made him chipper. Lastly, the social worker reminded him that sexuality includes hugging, kissing, general touching... and all of that is completely safe to do even right now.
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MooseMom
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« Reply #16 on: March 06, 2018, 10:35:35 AM »

U-Track, now that you've seen this sort of mindset in your husband, do you see him in a different light?  Have your feelings for him changed?  Do you feel resentment?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #17 on: March 06, 2018, 11:34:33 AM »

No, my feelings for him have not changed. I am still in love with/love him. And no, I don’t resent him either but rather am woefully sad at his lack of understanding in regards to transplant. Transplant is a complicated matter for patients and for families as well but he never really took the time to understand that it’s the treatment option that offers the most normal life.

He learned about dialysis, and became knowledgeable about it, but didn’t like the thought of it and tried to block it out. For transplant, he knew it offered more of a life but again, blocked out information.

I just don’t know how to balance his expectations of vanity and sexuality with all that is happening.
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« Reply #18 on: March 06, 2018, 01:30:41 PM »

*standing on soapbox, filled with righteous indignation*

U-Track, you know what?  It is NOT YOUR JOB to "balance" his expectations about ANYTHING!  NOT YOUR JOB!

He has made certain decisions in life, and now he has to live with them.  He has chosen to block out information.  He has chosen to be willfully ignorant.  That is something you cannot change without his help.  And you shouldn't have to work so damned hard to make his sex life easier for HIM.

You are a saint for not resenting him because I certainly do on your behalf.  If that were my husband, I'd be seething.  You have a generosity of spirit that I obviously lack. I would have skipped "sad" and would have fast forwarded to "resentful".   :rofl;

Actually, transplantation is not really that complicated.  It really isn't.  It can be formidable.  It can be scary.  But it is not complicated.  Transplantation is nothing new.  The meds are nothing new.  Sure, it is all a balancing act, but that doesn't make it complicated.  So he cannot use "Oh, dearie me.  It's all TOO COMPLICATED for my little man brain and my man bits!" as any excuse whatsoever.

He needs to man up and grab some courage from YOU.  YOU have been through the wars of dialysis and the victory that can come from transplantation, and somehow YOU've been able to wrap your head around it just fine.  Are you just smarter than him, or can he think with only one little part of himself?  Or are you just BRAVER than he is?  Smarter and braver.  Yeah, that could be it.

*steps down from soapbox and apologizes for getting angry at a man I've never even met*

Have mercy upon yourself.  For right now, don't offer to fight his battles for him.  Remind him and yourself that this state is temporary.  Things get better.   :cuddle;

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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
UkrainianTracksuit
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« Reply #19 on: March 06, 2018, 06:32:16 PM »

MooseMom, I honestly don’t know what to say cause all of it is the truth.  :rofl;

It is true that I really have no control on how he perceives these issues or how he has “managed” (or not) them. He needs his own examination of thought on how he wants to come to terms with the situation. Conversely, on my end, I am concerned he might not even find me attractive anymore. It is temporary but high dose prednisone did a number on me and after such a major surgery, I look chronically exhausted.

By the way, technically, I am smarter than him.  :yahoo; It would be wrong to chalk it up to cultural blips but it does colour his thinking and perception of what a woman should be. Part of that is an attention to grooming which is lacking right now. (I groom but working with limited tools!) All of this is really temporary and can only get better in time.

You’re right I can’t fight his battles not only because it’s uncalled for but I don’t have the energy. I have other more important priorities such as a good recovery. I am developing some post-op complications now (both organs are working great though) so his sexual frustration has to wait.

However, he is back sleeping in the same bed as me and he touched my feet. So, I guess I’m not as dangerous as he thinks. A hug would be nice though.

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UkrainianTracksuit
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« Reply #20 on: March 19, 2018, 05:29:52 PM »

There is going to be TMI in this post but I have a medical concern so it is needed.

I thought it would take a lot longer to become intimate with my husband (as previous posts noted) but we started up again almost a week ago. To be blunt, once the last wound drain was pulled. We are in the 4-6 week window (5 weeks) where information said it is safe to resume.

1) The first time was terrible. My abdomen is still numb and I felt too tight. We tried again later (so 2x in one night) to see if it got better/felt better. I woke up with some pain all located in my groin but it felt like muscle strain.

2) Did it again twice in one night and things felt better....but still, groin soreness and muscle strain all localized.

3) Next, there was 4 times in one day. Now, at this point, the muscle strain was really obvious and I was aching a lot. We decided to give it a break for a few days to see if the pain/ache subsided and to be extra sure it was the physical activity that was causing it.

4) After a couple days, we became intimate twice and in a fairly short time period. At this point, I noticed my abdomen felt extra sore, hard and like a firm lump was on my kidney side. I am unsure if there is actually a lump but it sure feels as though it is that way because of the firmness. It feels tight there too.

Naturally, my mind flashes to a hernia, like they warn you about. Now, I am further worried about having developed a seroma around the site where the last drain was removed. Thank goodness I go to clinic soon but this is going to stress me out.

I wish I would have waited much longer like my original plan and was a bit more paced with myself. If I have caused problems due to stupidity, I will be so upset. Has this happened to anyone else or had similar symptoms? (Hernia or seroma?)
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Simon Dog
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« Reply #21 on: March 20, 2018, 07:24:43 AM »

Have you considered doggie style?  It might put less strain on the abdomen.
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Charlie B53
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« Reply #22 on: March 20, 2018, 01:52:26 PM »


Remember that ALL muscles atrophy much quicker than we think.

'Soft' muscles can be over used and develop spasms much quicker than developed muscles.

Think of returning to an active sex life as more like addressing physical therapy, take it SLOW and easy.  Try not to over exert yourself.  If it hurts that is a sure sign you are doing too much too fast.  Slow down. Take a day off in between 'sessions' to allow the muscles to rest and possibly heal from any excess exertion.

I'm sure that he is more than willing to have you return to your previous schedule, but you need to pace yourself.  He needs to understand this.
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lulu836
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« Reply #23 on: March 20, 2018, 03:05:56 PM »

KAMASUTRA
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Of all the things I've lost, I miss my kidneys the most.
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« Reply #24 on: March 21, 2018, 12:28:27 PM »

Thanks everyone for the advice, from change of styles to muscle atrophy.

I complained to my surgeon (yes, a Middle Eastern one) and he felt around but he was not concerned. Naturally, I am still concerned because my belly is really swollen and doesn't "feel" like it did before we got back to things happening. It is not uncommon to have a bit of a "distended" abdomen (so I read) post-tx but I didn't have it until this.

He said to stop "going at it like rabbits" and take it slow. This fell on deaf ears with the husband as again, 2x in the evening and 2x this morning. TMI, but a lot of the issue comes at climax with the muscles doing what they have to do. I agree with Charlie that at this point he has to understand that things need to slow down and take a break.

Still concerned that I did something wrong. I will be seeing my old renal clinic soon and if this continues, will ask for an ultrasound...

KAMASUTRA
  :rofl; That is exactly what my husband is making a list of today.

Have you considered doggie style?  It might put less strain on the abdomen.
Yes...
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