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Author Topic: Hello from Melbourne Australia HD Dialysis 1 year  (Read 3550 times)
bonkers
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« on: February 01, 2018, 11:19:20 AM »
Hello, from Melbourne Australia, end stage renal disease caught me by surprise in January 2017 I've been on HD dialysis for a year now, (8 hours 3 times a week) I'm coping with it reasonably well, the main thing I notice is restrictions on where I can go, travel has to be organized hospitals notified etc. On a websearch I found this BB so I'll look forward to reading of other peoples experiences. I'm making one mistake on occasions I'm having too much phosphate I pay the penalty with getting itchy skin. (Basically cause I like yoghurt)
Regards to everybody  bonkers.
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MooseMom
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« Reply #1 on: February 01, 2018, 12:35:32 PM »
Welcome!  You've come to the right place!  There are many people who would be very happy to answer questions and share experiences!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kickingandscreaming
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« Reply #2 on: February 01, 2018, 01:21:17 PM »
 :welcomesign; Bonkers
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: February 01, 2018, 02:11:03 PM »
Welcome to the site Bonkers


   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #4 on: February 01, 2018, 07:25:09 PM »

Bonkers, I LOVE the name.  Welcome to IHD!

8 hours per session?   WOW!!!   And to think that I thought my 4 hours at a time made my butt tired!

Binders can help with you phosphorus.  I was taking one or two at a time and found out it wsn't enough.  Now I regularly take three with a small meal, usually 4 when I know anything has much more phosphorus in it.  And it is working much better.  My Labs are within our allowed range.

Two Ladies seated near me told me how they were taking one capsule of a spice to reduce their itching.  Turmeric.  I had forgotten the name there for a minute.  I hate it when I forget words.  Give me a few minutes doing something else and it comes back to me.  Anyway, I bought a bottle of Turmeric Capsules and added one a day to my pill boxes.  Within three days I noticed my itchy Lizard Skin was NOT itching!   Amazing!!!

Always glad to have more members.  There is much greater power in numbers.

Take Care,

Charlie B53
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Paul
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That's another fine TARDIS you got me into Stanley
« Reply #5 on: February 17, 2018, 11:45:47 AM »
 :welcomesign;

Hello bonkers, welcome to the site. Eight hours? Wow, safer for you to do longer, but it would drive me mad (I'm on four and a half and that is more that I would like).
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
Gaffer
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« Reply #6 on: July 02, 2018, 04:49:40 AM »
Gday Bonkers! I’m in Melbourne too, be great to learn from you. Check my intro post. Good luck mate..
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kristina
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« Reply #7 on: July 02, 2018, 07:35:07 AM »
Hello and welcome to IHD and I am amazed about your 8 hours three times a week dialysis-treatments  ...   I "only" have three hours three times a week... and I am not quite sure, how I would be able to cope with 8 hours three times a week...
Hello again and welcome to IHD and best wishes from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Marilee
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Hubby was a PD Person - I was 'support'

WWW
« Reply #8 on: July 02, 2018, 08:11:11 AM »
Welcome Bonkers! I think you'll find a great array of experience here - lots of information, many views, very helpful indeed.

I can understand how travel is restricted - that's probably the #1 reason my hubby chose peritoneal dialysis: He wanted to head out in the motorhome to do some fishing in remote spots each year.
I also 'get' how phosphorus can creep up: So many good foods, so little budget. It was a big deal for me to understand, so I put it all together in a website ( https://mylowphosdiet.wordpress.com/ ) for all to see.

 :welcomesign;
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As my hubby would say, "Don't let what you can't do get in the way of what you can."
kickingandscreaming
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« Reply #9 on: July 02, 2018, 10:42:34 AM »
Beware of phosphorus.  The itching is only the tell-tale symptom.  The real damage is being done to your bones and arteries and it ain't pretty.  So watch what you eat and take your binders.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
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