I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
March 29, 2024, 04:56:39 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  A Psychologist' Tale
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: A Psychologist' Tale  (Read 3061 times)
Charlie B53
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3440


« on: March 25, 2017, 02:39:52 AM »


I wasn't sure whether to post this here or in the 'News' forum but ultimately decided on here as this is NOT ''news', as it is a Psychologist Tale of his experience in learning he has Kidney Failure and how it felt, the physical and mental experiences he is continuing to live with.  This is a very long read, but well worth the time as he spells out many of the things we all have/are experiencing in ways that we are often not able to put into words.

http://www.dialysisethics2.org/index.php/testimonals/12-de-testimonals/56-a-psychologist-s-tale-of-serious-illness-2
Logged
OldKritter
Jr. Member
**
Offline Offline

Gender: Female
Posts: 63


« Reply #1 on: March 25, 2017, 07:29:38 AM »

I don't know if I'm enlighten or sadden
Logged
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325


« Reply #2 on: March 25, 2017, 08:36:32 AM »

Thank you very much for posting this, Charlie.  It is a very important article, and I think it should be pinned on this forum so as to draw our members' attention to it.
Logged

"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114


« Reply #3 on: March 25, 2017, 10:36:22 AM »

 Thanks for posting this Charlie. All I am able to say at this moment is wow!!. I am glad this is available for the future for me. It makes me remember when I first was sent to a Nephrologist and had no idea what kind of Dr. I was seeing. He walked in the room and said Hello my dear. I am going to be your best friend because you have Stage 4 kidney disease!!! Wow, what a shock and I am sure so many of us had that same experience. Again, thank you.
Logged

One day at a time, thats all I can do.
cassandra
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly

« Reply #4 on: March 25, 2017, 04:41:37 PM »

Thanx Charlie
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
SooMK
Sr. Member
****
Offline Offline

Gender: Female
Posts: 610


« Reply #5 on: March 26, 2017, 07:32:33 AM »

Thank you for posting, Charlie.
Logged

SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!

« Reply #6 on: March 27, 2017, 05:13:13 PM »

It was long but I was riveted.

    :flower;
Logged

plugger
Sr. Member
****
Offline Offline

Gender: Male
Posts: 654


I only look like a sheep - but I ain't

WWW
« Reply #7 on: April 01, 2017, 06:01:06 AM »

Seem to recall Dr. Sollod was quite a fellow and quite active back in the day.  He reminded me of someone else, Frank Brown.  Seem to recall Frank was supposed to testify at the 2000 US Senate hearings, but couldn't make it:

http://www.dialysisethics2.org/index.php/testimonals/12-de-testimonals/16-frank-brown-s-story-part-1  (3 part story, can click at the bottom)
Logged

Proud member of DialysisEthics since 2000

DE responsible for:

*2000 US Senate hearings

*Verified statistics on "Dialysis Facility Compare"

*Doctors have to review charts before they can be reimbursed

*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis

*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019

*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years

On my tombstone: He was a good kind of crazy

www.dialysisethics2.org
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!