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Author Topic: News about our member Zach  (Read 9450 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: January 04, 2017, 12:22:44 PM »
I spoke with our friend Zach. He is very ill, in New York Presbyterian Hospital - Cornell Weill.
He asked that I post a message to let our members know.
His prognosis is not good and I am heartbroken to share this news.
He sends his love to you all.

Zach has been a member here since Jan. 2007.
He has been on in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KarenInWA
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« Reply #1 on: January 04, 2017, 12:51:28 PM »
 :'(
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
monrein
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Might as well smile
« Reply #2 on: January 04, 2017, 12:54:47 PM »
Sad news indeed Karol. Zach has been such an inspiration to so many of us on IHD and for so long too. I am heart broken.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #3 on: January 04, 2017, 01:07:32 PM »
Oh, this is terrible news.  I don't know how much information Zach wishes to share, but is there anything more you can tell us?

Please tell him that all of us at IHD are thinking of him and are hoping for some better news soon.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Jean
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« Reply #4 on: January 04, 2017, 01:09:29 PM »
Sad news indeed Karol. Did Zach want to mention what happened? He has been well for years. Thank you so much for letting us know. Should you talk to him again will you please tell him I am praying for him.?


Thanks, Love, Jean
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One day at a time, thats all I can do.
Rerun
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« Reply #5 on: January 04, 2017, 01:14:13 PM »
Very sad to hear.  I Love You Zach.  I pray you pull through.

 :pray;  :-*
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #6 on: January 04, 2017, 01:19:54 PM »
Zach....  I do remember you.  You were helpful to many. I hope you get better and enjoy life again.   I love PBS and watch it every day.  Take care please! 
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willowtreewren
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My two beautifull granddaughters

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« Reply #7 on: January 04, 2017, 01:23:26 PM »
Oh, no. This is very distressing. Zach has been a stalwart inspiration for many of us.

I so hope that he pulls through.

 :grouphug; :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kickingandscreaming
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« Reply #8 on: January 04, 2017, 01:33:12 PM »
I'm so sorry to read this.  My best thoughts and hopes are with you, Zach.  Here's to your pulling through whatever this bump in the road is.  Be well.  :(
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
kellyt
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« Reply #9 on: January 04, 2017, 01:36:37 PM »
Thank you for the message, Karol.  This is horrible news.  It's been so long since I've been on.  I miss everyone!

Does he have a virus or has he had heart issues?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
justagirl2325
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« Reply #10 on: January 04, 2017, 01:41:51 PM »
I am sorry to hear that. He's been a great source of knowledge on this board for sure, I've learned a lot from the research articles he finds and posts.
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kristina
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« Reply #11 on: January 04, 2017, 02:00:44 PM »
Dear Zach, I am very sorry to read that you are not well
and I keep my fingers crossed that you pull through this hurdle and please get better soon.
I send you my best wishes and please take great care of yourself,
Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kitkatz
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« Reply #12 on: January 04, 2017, 02:20:12 PM »
Zach I hope you are doing better.  You
have been a role model to many patients here.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
DayaraLee
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« Reply #13 on: January 04, 2017, 03:45:27 PM »
I've read so many of Zach's posts over the years, and he provides in them such good and practical information and advice. My prayers and strongest thoughts for you to pull through this, Zach!
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Husband Dx - CKD Stage 3, Diabetes Type II, Hypertensive, Stubborn...

"What is love? Love is the absence of judgment."  ~Dalai Lama
Michael Murphy
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« Reply #14 on: January 04, 2017, 03:53:39 PM »
I will keep Zach and is family in my prayers, and hope he recovers and keeps on.
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Darthvadar
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« Reply #15 on: January 04, 2017, 04:00:45 PM »
Zach, I'm thinking of, and praying for you!....

Many of your Renal Friendly cookery ideas were put into action during my late mum's 'journey' through kidney failure... You are a leading light...

May you have peace, and until we meet again, may the Lord hold you in the palm of his hand...

Love....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #16 on: January 04, 2017, 04:40:16 PM »
Quote from: kellyt on January 04, 2017, 01:36:37 PM
Thank you for the message, Karol.  This is horrible news.  It's been so long since I've been on.  I miss everyone!

Does he have a virus or has he had heart issues?

It may be his heart. We spoke briefly as they were taking him to dialysis.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Charlie B53
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« Reply #17 on: January 04, 2017, 05:22:11 PM »

Terrible news.   I haven't been a member long enough to know Zach well but I have great respect for the postings I have read.  Many informative posts filled with information I would not have found on my own.

Zach your knowledge and experience have been a guiding force for many of us.

I am sure, we all are Praying for your health issue to be improved, that you may still be a long standing asset to these boards.

I am hoping to be able to hear from you soon.

Take Care,

Charlie B53
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PrimeTimer
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« Reply #18 on: January 04, 2017, 09:32:05 PM »
Hubby and I will be praying for you, Zach. Hope you haven't gone and overworked yourself on any of your film projects. You are one of the few that inspire my husband to continue working. Darn, maybe you need a bowl of that chili you had perfected. We all could use a bowl of "Zach's Chili"! Here's wishing you a speedy recovery and Happy New Year! Do keep us posted! We're right here for you.  :cuddle;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly
« Reply #19 on: January 05, 2017, 01:11:36 AM »
What terrible news. My inspiration for so long, sending positive thoughts his way.

    :cuddle;



Lots of love and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
iolaire
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« Reply #20 on: January 05, 2017, 06:02:53 AM »
Sorry to hear of your challenges Zach.  I hope you are able to recover and read everyone's well wishes for years to come.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
smartcookie
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« Reply #21 on: January 05, 2017, 07:29:24 AM »
Oh no!  I have passed on a lot of Zach's tips and tricks to patients.  Praying for him and his family! :pray;
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
SooMK
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« Reply #22 on: January 05, 2017, 05:57:10 PM »
Terrible news. I'm so sorry to hear this.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Simon Dog
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« Reply #23 on: January 05, 2017, 06:17:32 PM »
I wish Zach well.   34 years is most impressive.

Perhaps we should set up a buddy system on IHD where each person knows their buddy's contact info, next of kin, etc. - so someone can find out the story if a regular drops off the radar screen.   I don't think there is anyone here who would have any idea what happened if I suddenly went TU and disappeared from the forum.
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Rerun
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Going through life tied to a chair!
« Reply #24 on: January 06, 2017, 08:47:40 AM »
Quote from: Simon Dog on January 05, 2017, 06:17:32 PM
I wish Zach well.   34 years is most impressive.

Perhaps we should set up a buddy system on IHD where each person knows their buddy's contact info, next of kin, etc. - so someone can find out the story if a regular drops off the radar screen.   I don't think there is anyone here who would have any idea what happened if I suddenly went TU and disappeared from the forum.

We have an Emergency Contact list.  You need to send Kitkatz a PM and she will add you.
« Last Edit: January 06, 2017, 08:53:49 AM by Rerun » Logged
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