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Author Topic: We got the CALL...at 4:00am this morning!  (Read 18782 times)
Xplantdad
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Health is not valued till sickness comes. T.Fuller
« on: December 22, 2016, 07:09:39 AM »
Well, we got the call that we've been waiting for-for almost 4 years! We got a kidney offer for Holly this morning at 4 am.

We have decided to accept the offer-and we will put Holly on dialysis this morning as instructed by the staff at Mayo-then, go the hospital in anticipation of the kidney arriving. We should be at the hospital by 9:30am. Once the kidney arrives-the folks at Mayo will check it out thoroughly and if everything is good to go with both Holly and the kidney-the transplant should happen around noon.


We ask that you please pray for the deceased donor and the donors family, for Holly's upcoming surgery and a good outcome after surgery.

Here's Holly last year at the Barrett-Jackson auction in Scottsdale with her friend Chris Jacobs from the Overhaulin' TV show (and the Barrett-Jackson auction coverage on TV)
« Last Edit: December 22, 2016, 07:19:57 AM by Xplantdad » Logged
My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
Charlie B53
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« Reply #1 on: December 22, 2016, 07:26:56 AM »

Anticipating a great outcome.

Prayers continuing.
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Hootie
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« Reply #2 on: December 22, 2016, 07:47:11 AM »
Very very happy for you! Praying for a great Outcome!
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Caregiver for wife with ESRD and type Type 1 diabetes (almost 50 years).  HHD with NxStage machine January 2015.
Transplanted  December 7, 2016
MooseMom
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« Reply #3 on: December 22, 2016, 08:09:40 AM »
This is the best news I've heard in a long time.  I am so excited and am fervently hoping for more good news from you as the day goes on.

Prayers to your family and to the donor's family.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #4 on: December 22, 2016, 08:19:15 AM »
Off to the hospital now! We will update as we can :)

Thanks everyone. :grouphug;
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
Rerun
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Going through life tied to a chair!
« Reply #5 on: December 22, 2016, 09:24:15 AM »
Merry Christmas! 

              :pray;
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PrimeTimer
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« Reply #6 on: December 22, 2016, 10:33:31 AM »
Many many prayers for Holly, the kidney and her donors family. Best wishes for a VERY Merry Christmas!  :santahat; 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
iolaire
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« Reply #7 on: December 22, 2016, 11:16:25 AM »
Good luck
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
cassandra
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When all else fails run in circles, shout loudly
« Reply #8 on: December 22, 2016, 11:40:02 AM »
Much luck to all!!

    :grouphug;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kickingandscreaming
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« Reply #9 on: December 22, 2016, 12:17:22 PM »
Best of luck.  I hope everything works out to a "T."
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #10 on: December 22, 2016, 02:07:04 PM »
Transplant is done and she's in recovery.  The transplanted kidney has already made a bit of urine :) . Thank you everyone for your prayers and positive thoughts
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
cassandra
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When all else fails run in circles, shout loudly
« Reply #11 on: December 22, 2016, 02:09:03 PM »
Fantastic news, hugs for the both of you!!!


    :cheer:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cattlekid
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« Reply #12 on: December 22, 2016, 03:04:13 PM »
Great news!  It's been a rough day on my end and I am so happy to end it with such great news.
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MooseMom
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« Reply #13 on: December 22, 2016, 03:10:09 PM »
Quote from: Xplantdad on December 22, 2016, 02:07:04 PM
Transplant is done and she's in recovery.  The transplanted kidney has already made a bit of urine :) . Thank you everyone for your prayers and positive thoughts

Oh, this has made me rather teary.  I hope everything goes well.  Please keep us posted!  We're all so excited for you both!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
PrimeTimer
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« Reply #14 on: December 22, 2016, 05:31:38 PM »
Quote from: Xplantdad on December 22, 2016, 02:07:04 PM
Transplant is done and she's in recovery.  The transplanted kidney has already made a bit of urine :) . Thank you everyone for your prayers and positive thoughts

That is great news! Will continue cheering and praying for you guys!  :cheer:
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #15 on: December 22, 2016, 06:20:28 PM »
She's out of recovery and in her room. They are monitoring urine output now. She is asleep. It's been a long day. Lots to do tomorrow. Lots to learn...but a lot is the same as the cardiac transplant follow up. 21 appointments set up already...sounds about right :)

Thanks to everyone for their positive comments...and prayers :)
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
Hootie
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« Reply #16 on: December 22, 2016, 07:07:49 PM »
Bruce so happy for you guys! I can really say I know the great feelings and happiness you and your family now have. It's great. Prayers are with you and your daughter as the recovery begins. :flower;
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Caregiver for wife with ESRD and type Type 1 diabetes (almost 50 years).  HHD with NxStage machine January 2015.
Transplanted  December 7, 2016
DayaraLee
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« Reply #17 on: December 22, 2016, 07:30:59 PM »
What fabulous news to see this evening!!! Congratulations and many prayers for a smooth recovery! So, so happy for you, Holly, and your family!
 :2thumbsup;  :clap;
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Husband Dx - CKD Stage 3, Diabetes Type II, Hypertensive, Stubborn...

"What is love? Love is the absence of judgment."  ~Dalai Lama
Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #18 on: December 23, 2016, 07:22:02 PM »
Update part 1:

Here's the update for holiday after transplant still waiting for the kidney to output urine. But that's to be expected on kidneys that have been out of the body for awhile. They will probably do dialysis today to help her clear the toxins from her body. We will be moving out of the critical room to the regular care room. Doctor's rounds will happen here in a bit. As if on cue, Holly's long term nephrologist, Dr. Thomas came by and visited, too. We thanked him for his outstanding care...as we will now transition to the Kidney transplant team docs.

Merry Christmas everyone!

And part two:

Update for the afternoon. Holly is in dialysis now. They are not pulling off any fluid...just filtering the blood. Transplant surgeon came in and thinks everything looks good. Transplant follow up team and doc think everything looks great, too. Word is that we may be home for Christmas eve! We have 70 plus appointments so far over the next couple of months...and dialysis starts (for the short term) on Monday evening.

Part three:early evening today-Cardiac team came by and said everything looks great on their end. Praise God!


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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #19 on: December 23, 2016, 07:24:07 PM »
And thank you to all of you who have followed along! You are the best  :thumbup;
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
PrimeTimer
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« Reply #20 on: December 23, 2016, 11:00:59 PM »
Hopefully Holly will have her beautiful self with her new beautiful kidney snuggled up with her beautiful family for Christmas Eve.  ;musicalnote; Joy to the world... ;musicalnote; ;musicalnote; Something tells me there will be a lot of singing and spontaneous giggles this year at your house..have a Merry Christmas!
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
SooMK
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« Reply #21 on: December 24, 2016, 06:04:57 AM »
Hope Holly is going home today. Wishing your family a wonderful Christmas! Congrats.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Charlie B53
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« Reply #22 on: December 24, 2016, 06:10:20 AM »

Glad to hear everything going as well as planned.

Hoping all continues on schedule with no surprises.

Wishing everyone a Merry Christmas and a much better New Year.

Take Care,

Charlie B53
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lainiepop
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« Reply #23 on: December 24, 2016, 01:27:56 PM »
Wonder ful news for Christnas and New Year!xxx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #24 on: December 25, 2016, 05:05:53 AM »
Quote from: SooMK on December 24, 2016, 06:04:57 AM
Hope Holly is going home today. Wishing your family a wonderful Christmas! Congrats.

And we have been home since last night. We have one outpatient IV to do today, plus a blood draw to check her levels of immunosupression ( a normal thing)....then home to celebrate the best Christmas ever. I have said so many prayers for the donor and the donor family...and will continue to do so.


Merry Christmas everyone!
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
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