I Hate Dialysis Message Board
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I Hate Dialysis Message Board
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Topic: hello (Read 320 times)
October 24, 2016, 08:31:06 AM »
Hi everyone, my mother started HD 3 months ago and been through many ups and downs, thought I'd join this site since we are new to HD and looking for answers to many questions
Reply #1 on:
October 24, 2016, 10:07:05 AM »
Welcome, Overtaker. Sorry you have to be here, but it's good that you are advocating for your mom. I don't do Hemo, so I'm not an expert on that (I do PD), but I'm sure others than give you answers and support you need.
Diagnosed with Stage 2 ESRD 2009
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Reply #2 on:
October 24, 2016, 10:26:40 AM »
Welcome! Your mom is fortunate to have you looking out for her.
Lots of great information and support here. Wishing you and your mom the best.
Reply #3 on:
October 24, 2016, 12:10:54 PM »
Welcome to IHD. Dialysis sucks, no doubt about it. But the alternative is far worse.
You will find IHD to be like an extended Family. All either on Dialysis or helping a family member on dialysis. So you are among many people well experienced in what can, and often will, go wrong. Most everything tht can happen has, but it is a huge surprise when things do go wrong. Keep your wits, develop great relations with her Dr''s. Communication is essential to understanding,, both for what is going on, as well as learning how to better manage her condition.
Do not be afraid to ask questions. You may learn to use the search feature and find many things but there will be many times it still isn't perfectly clear, so do not be afraid to post questions about anything and everything. There is no such thing as a dumb question.
Welcome to the Family.
Global Moderator/Premium Member
When all else fails run in circles, shout loudly
Reply #4 on:
October 24, 2016, 01:04:29 PM »
Welcome to the site Overtaker
Take care, Cas
I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
still on waitinglist, still ok I think
Health is not valued till sickness comes. T.Fuller
Reply #5 on:
October 24, 2016, 01:30:13 PM »
Hi There Overtaker!
My name is Bruce and I am the caregiver for my daughter Holly who is 26 years old and received her kidney transplant on December 22, 2016
Holly's Facebook Kidney page:
Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
Reply #6 on:
October 24, 2016, 02:12:17 PM »
it is very sweet of you to care for your mother in such a wonderful way
and I send you both all my best wishes from Kristina.
Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
Reply #7 on:
October 24, 2016, 04:26:12 PM »
I'm a caregiver, too, though he's still pre-dialysis. It's great to have a place to come to ask questions and share in the benefit of so much experience!
My husband is the one with CKD, but I'm who needs the coping strategies!
CKD Stage 3A, Diabetes Type II, Hypertensive, Stubborn...
"What is love? Love is the absence of judgment." ~Dalai Lama
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