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Author Topic: Newbie PD patient  (Read 1019 times)
Sierramadre
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« on: April 23, 2016, 05:30:44 AM »

Hi everyone! I'm from California and I recently just started PD tx after having CKD for over 10 years. Had my cath placed in Jan of this year.  About 15 years ago, I was diagnosed with Acute glomerulonephritis and got treated and I thought that would be last time I'm going to have to deal with any kidney problem. In 2005, I applied to a nursing school and was required to submit a urine sample for medical clearance. The school clinic made me pee 3x bec they thought maybe there was a mistake in the way it was processed - protein was 4+. I was advised to see my MD and so my journey began. Biopsy confirmed IgA nephropathy - very aggressive. The kidney MD told me I had about 6-7 years before starting dialysis. I was in shock but had to accept the fact that it's inevitable. Finished nursing school, started working in a hospital and life went on.  Finally in the beginning of this year, after being so tired all the time and dealing with constant life struggles, I was told "it's time"
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Xplantdad
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Health is not valued till sickness comes. T.Fuller

« Reply #1 on: April 23, 2016, 06:37:21 AM »

Welcome to IHD. I am a newbie too...a caregiver for my daughter. There are tons of knowledgeable folks on here!
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My name is Bruce and I am the caregiver for my daughter Holly who is 26 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
Michael Murphy
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« Reply #2 on: April 23, 2016, 07:03:31 AM »

It's time is a nasty thing to hear, what I admire in your tale is that you did not let your diagnosis dominate your life.  Hopefully as you go on you will continue living well.  Too many people when they get the news that their kidneys are failing let the disease dominate their lives.  You continued your education and entered into the work force, I hope this focus carries you on to a great rest of you lift.
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kickingandscreaming
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« Reply #3 on: April 23, 2016, 07:53:19 AM »

Welcome, Sierramadre.  Sorry you have to be here, but there's a lot to be learned.  I, too, am a PD newbie (since January).  I wish you well in your transition to your "new life."  Your nursing training should come in handy for you.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Michael Murphy
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« Reply #4 on: April 23, 2016, 06:20:57 PM »

It's time is a nasty thing to hear, what I admire in your tale is that you did not let your diagnosis dominate your life.  Hopefully as you go on you will continue living well.  Too many people when they get the news that their kidneys are failing let the disease dominate their lives.  You continued your education and entered into the work force, I hope this focus carries you on to a great rest of you life.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #5 on: April 24, 2016, 04:57:01 AM »

Welcome to the site Sierramadre

    :welcomesign;

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Charlie B53
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« Reply #6 on: April 24, 2016, 06:24:09 AM »



Welcome to the 'Family'.   Sadly, we are growing at such a rate with little we can do to slow it down.

Have you been paying strict attention to your diet, reducing the kidney load in your food selection?   Some on here had been quite successful in putting off starting Dialysis for many years doing so, but alas, the disease always wins.   I am beginning to think this game is 'rigged' against us!

Are you able to continue working?   Many have found their working has been a great boost to their continued health.  Exercise, whatever the manner, even in small amounts, are a great assist in health.

Take Care,

Charlie B53
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Sierramadre
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« Reply #7 on: April 24, 2016, 09:47:51 PM »

Welcome to IHD. I am a newbie too...a caregiver for my daughter. There are tons of knowledgeable folks on here!

Thanks! I'm so grateful for infos I'm finding here :cheer:
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Sierramadre
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« Reply #8 on: April 24, 2016, 10:41:49 PM »

It's time is a nasty thing to hear, what I admire in your tale is that you did not let your diagnosis dominate your life.  Hopefully as you go on you will continue living well.  Too many people when they get the news that their kidneys are failing let the disease dominate their lives.  You continued your education and entered into the work force, I hope this focus carries you on to a great rest of you lift.

Thanks! I know, tell me about it!! It was scary and of course I cried and it took a long  time for me to move on but i just had to focus  on what i needed to do and with the help/support of friends/families, they made it a bit easier to deal with.

Welcome, Sierramadre.  Sorry you have to be here, but there's a lot to be learned.  I, too, am a PD newbie (since January).  I wish you well in your transition to your "new life."  Your nursing training should come in handy for you.

Thank you! Hello there!  We started at the same time then. I'm glad there's a forum like this where you could  find infos shared by people who's been thru it. I've been in the medical field for a while now but it's totally different to be on the other end  but yes, my training comes in handy.
Welcome to the site Sierramadre

    :welcomesign;

Take care, Cas

Thank you!! It's very cool to find this place


Welcome to the 'Family'.   Sadly, we are growing at such a rate with little we can do to slow it down.

Have you been paying strict attention to your diet, reducing the kidney load in your food selection?   Some on here had been quite successful in putting off starting Dialysis for many years doing so, but alas, the disease always wins.   I am beginning to think this game is 'rigged' against us!

Are you able to continue working?   Many have found their working has been a great boost to their continued health.  Exercise, whatever the manner, even in small amounts, are a great assist in health.

Take Care,

Charlie B53


Hi there! Thanks for welcoming me! I agree, it's very sad! Ever since I was diagnosed CKD,  I became very religious when it comes to diet, exercise not so much but I walk about 2-3 miles at work and some when not working and did yoga every once in a while.  I was warned from the beginning that my kidneys would fail no matter what and was offered an option to take high dose steroids to prolong the progress, which i declined bec of horrible side effects. I did not want another disease to my medical history.

Anyways, I went back to work a couple of weeks ago already and so far it's great. My boss and colleagues are accomodating ang willing to assist me with my requests and everything. I just feel bad that I have limitations on lifting/carrying which is required of me but oh well...otherwise life is good😊
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