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arktraveler
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« on: April 06, 2016, 06:59:11 PM »

diagnosed with a rare blood disorder monoclonal gammopathy  ended up on dialysis (pd) very weak and no energy.  hemotologist is treating gm with velcade  injection every two wk  this is a chemo drug  wondering if anyone else has had a similar diagnosis  about 12-15 % kidney function at best
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kickingandscreaming
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« Reply #1 on: April 06, 2016, 07:18:27 PM »

I can't help you with the GM, but I do welcome you to IHD.  I hope there is someone else who can give you some direct support.  And I'm sorry you have to be here. 
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: April 07, 2016, 02:52:18 AM »

Welcome to the site arktraveler

    :welcomesign;


I hope someone of the site can be of some assistance

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Vt Big Rig
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« Reply #3 on: April 07, 2016, 04:52:27 AM »

Sorry I cannot help with your particular issues but I wanted to Welcome you to the site.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
Charlie B53
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« Reply #4 on: April 07, 2016, 06:27:25 AM »


Welcome to IHD.

We have many Members with maine different kidney afflictions, unfortunately not all Members read all of these boards every day.  It could be a while before you get the response you are looking for.

Until then please continue to use anything and everything IHD has available to you.   Any questions, or problems feel free to post those questions and we will see how we can assist you in understanding, or suggesting methods that may be of assistance to you.

We are always glad to welcome new Members.  It is all of us together that lends strength to help make our journey more bearable.

Take Care,

Cahrlie B53
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Rerun
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Going through life tied to a chair!

« Reply #5 on: April 27, 2016, 08:32:57 PM »

Hello Arctraveler,

Unfortunately, not everyone reads introductions.  Go pose your question on Dialysis General Discussion.  They may have more information for you there.

Welcome -  Rerun, Amdin.   :welcomesign;
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