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Author Topic: My re-introduction  (Read 3423 times)
Chris
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« on: February 26, 2016, 05:37:41 PM »
I have been gone awhile, almost 4 years partly due to Facebook, health, time management working on technology, and logging in issues. A lot has changed here I see  and with myself and yet my kidney and pancreas transplant keeps going ( nothing to do with Energizer Bunny though!).
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
SooMK
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« Reply #1 on: February 27, 2016, 06:28:37 AM »
Welcome back Chris.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
kristina
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« Reply #2 on: February 27, 2016, 07:27:05 AM »
Hello Chris and welcome back !!!
You are right; lots of things have changed... I am meanwhile on dialysis and since January 2016 I have been put on the kidney-transplant-waiting-list... and that was very lucky because I had some cancer-issues in the past... and my husband wanted to donate one of his kidneys to me and during the work-up he was diagnosed with cancer ... and fortunately it was still in the first stages and after two operations (just to make sure) and a short course of chemotherapy he is finally alright again ...
I do hope you had no health-matters to worry about and I am very glad to “see” you again... :grouphug;
P.S. Have you heard of the Motor-Car Museum in Beaulieu? They have a wonderful classical racing car collection and when we visited I saw for the first time the 1927 Napier-Campbell Blue Bird racing car and some wonderful classical Rolls-Royces and the collection of beautiful Jaguars... of course, such cars are not readily available for ordinary mortals, but one can still keep on dreaming .....
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Jean
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« Reply #3 on: February 27, 2016, 09:30:43 AM »
Welcome back Chris.
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One day at a time, thats all I can do.
justagirl2325
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« Reply #4 on: February 27, 2016, 09:57:45 AM »
Hi I am new since you've been gone, my husband is currently on dialysis and trying to get a kidney/pancreas transplant.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #5 on: February 27, 2016, 10:22:54 AM »
Welcome back Chris, missed you much.

   :welcomesign;

Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Vt Big Rig
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« Reply #6 on: February 27, 2016, 11:00:39 AM »
Welcome back to the site.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
Rerun
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Going through life tied to a chair!
« Reply #7 on: February 27, 2016, 11:40:35 AM »
Ahhhh Chris good to hear from you.  It will be good to catch up.  It sounds like you are doing well.  Keep us posted.

             :yahoo;
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cattlekid
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« Reply #8 on: February 27, 2016, 04:33:35 PM »
Welcome back!   :beer1;
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Chris
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« Reply #9 on: March 02, 2016, 06:32:40 PM »
Quote from: kristina on February 27, 2016, 07:27:05 AM

P.S. Have you heard of the Motor-Car Museum in Beaulieu? They have a wonderful classical racing car collection and when we visited I saw for the first time the 1927 Napier-Campbell Blue Bird racing car and some wonderful classical Rolls-Royces and the collection of beautiful Jaguars... of course, such cars are not readily available for ordinary mortals, but one can still keep on dreaming .....


I believe I have from the Velocity Channel and Discovery Channel Specials.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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Gender: Male
Posts: 9219


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« Reply #10 on: March 02, 2016, 06:34:46 PM »
Quote from: justagirl2325 on February 27, 2016, 09:57:45 AM
Hi I am new since you've been gone, my husband is currently on dialysis and trying to get a kidney/pancreas transplant.


I can try to answer questions you may have.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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