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| | |-+  YEAH!!! I start home hemo on April 23rd.
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Author Topic: YEAH!!! I start home hemo on April 23rd.  (Read 1741 times)
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« on: April 06, 2007, 05:14:30 AM »

I have been waiting for a year and a half to start home hemo and I finally got the call yesterday.  I have to go to Toronto for 5 weeks of training.  My fiance is coming with me to learn as well.  We are going to spend some nights in a hotel and other nights staying with friends.  It will be somewhat like a mini vacation.  Of course, we will come home on the weekends as i could never be away from my dogs for that long.  Luckily my mother, who is a fabulous doggie grandma will be staying with them during the week.  I am a little worried about needling myself but i want this so bad that i am sure i will be able to do it.   I am so glad i will be getting away from  my nasty doctors and actually have more control and say over my health.   :clap; :clap; :clap; :clap; :clap;


If anyone has any tips or advice about home hemo i would love to hear them.

I am doing much better.  They have taken 20 lbs of fluid off me in 3 weeks.  And they say there is much more to come.  And to think that my old center said I was just gaining flesh weight!!!! :banghead;  I am using a cane to walk now but find my walking is getting much better.  On my days off from training, I spend a lot of time walking around the city and it is getting easier and easier.  Training is going very well....3 weeks more and I will be at home with my machine!!!  Murray is amazing, he has already cannulated me 4 times and is doing a great job.  I am still very tired but will be getting the CPAP machine when i get home.  I find myself looking forward to the future more and making plans.  All in all things are looking up.
« Last Edit: May 12, 2007, 11:47:12 PM by ILOVEFLUID » Logged

Each day at a time, one drink at a time (or two, or three...etc)
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« Reply #1 on: April 06, 2007, 06:22:52 AM »

Hey ilovefluid I start home training on 16th April .I have to travel 5 hours from home and stay there for at least 6 weeks, my training will be Monday. Wednesday, Friday and Saturday for the first week and then 5 days for as long as it takes to learn. So good luck with yours , I will keep you updated as how i go.Keep us updated .

Cheers  Charee

Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
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« Reply #2 on: April 06, 2007, 06:28:31 AM »

Congrats and good luck with the training.  I'm sure you will do fine.

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« Reply #3 on: April 06, 2007, 06:35:53 AM »

Training on NxStage ? I have been on it since November and love it. It's a shock when your first load of supplies arrive. Ours came via 18 wheeler - the driver set it on the curb (a pallet) and was about to leave - on the invoice it states - Delivery Inside - so he did help by moving it close to our steps. I made copies of the alarm page for quick reference. If you are training on NxStage they probably will train you on the pureflow - and the bags. You'll do fine. The documentation is great. Hope your training goes well........  enjoy



NxStage / Pureflow since 11/06
Fistula 3/07/07, 11/06 (still not working)
Cardio Amyloidosis (already ate my kidneys)
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« Reply #4 on: April 06, 2007, 11:49:37 AM »

Jealous, jealous, jealous!


"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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« Reply #5 on: April 07, 2007, 02:17:25 PM »

ILoveFluid and Charee,  so glad to hear it, sorry you have to do all the traveling and such but it will be so well worth it.  :2thumbsup;  ILF,  dont worry about needling yourself, just keep reminding yourself you are in control now, i too, used to be afraid of needles, now i think it is cool that i can give myself Epo shots.  When i have kids around i always involve them in it, and to see the looks of amazement on their faces is priceless.   ::)  No worries my friend, you are going to do good  :cuddle;

....and i think to myself, what a wonderful world....

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