Introduction

bjp81757

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Introduction

« on: December 16, 2015, 08:05:20 AM »

6 year dialysis patient, just recently switched to PD. Good to find a place to talk about the ordeal that has been dialysis. Live in the beautiful Texas Hill Country. The thing I hated most about in-clinic Hemo was empty chairs. People you get to know and care about then there is an empty chair. Really struggled with the fact that this was my life. Everything revolved around treatments. PD has given me a sense of control. The transition to PD has not been a smooth one. Problems with catheter and pain when I drain, but it beats Hemo. Hope to be able to contribute to the conversation and get to know a few folks.


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MooseMom

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Re: Introduction

« Reply #1 on: December 16, 2015, 08:31:36 AM »

Thanks for joining our community, and I'm sure your contributions to this site will be welcomed.

I agree with you about how beautiful the Texas Hill Country is! I grew up in Houston and attended Trinity University in SA, so the Hill Country was always a quiet bit of paradise. You are very fortunate to live there!


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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."

Vt Big Rig

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Re: Introduction

« Reply #2 on: December 16, 2015, 08:38:08 AM »

Welcome to the site and our little family of warriors. Glad for you that you feel you "graduated" from in center to PD. I have zero experience with either as I do home hemo.

However I am glad you joined us and I am sure you will both be able to add to the discussions and to get information and answers to your questions.

Always wanted to go to the Texas Hill county and chase some deer around!!!

Post away


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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months, New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help

Darthvadar

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Re: Introduction

« Reply #3 on: December 16, 2015, 09:08:25 AM »

Hello, and

to our 'family'....

Good to have you on board... And yes, you've come to the right place... We really 'get it'...

Visit and post often... We like the talkative ones!...

Darth... Moderator...


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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....

stayingalive

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Re: Introduction

« Reply #4 on: December 16, 2015, 10:52:40 AM »

HOWDY!!! Its a great website for people just like us. I'm willing to learn and teach when I can.....Don't you hesitate to jump right in to. We don't bite.

Hope you hang out for awhile and you'll find they even talk about other things. Which helps me to see some humor along with the help provided.
I too am PD. Watch out for them hemo folk.......they're all around us.


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SMILE!! CAPD since June 2014
Polysystic kidney disease

cassandra

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When all else fails run in circles, shout loudly

Re: Introduction

« Reply #5 on: December 16, 2015, 04:35:04 PM »

Welcome to the site bjp81757

take care, Cas


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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

still on waitinglist, still ok I think

bjp81757

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Re: Introduction

« Reply #6 on: December 17, 2015, 07:45:32 AM »

Thanks for the welcome everybody. I rarely sleep nights so my computer is my best friend. I also tend to ramble on a bit, but I hope to contribute to the conversation here without getting too far off subject. My loss of kidney function was brought on by twenty years of NSAIDS use to battle arthritis. No one told me what I was doing to myself, I took what the Dr. gave me thinking they actually knew what they were doing. Lucky me I have developed cardiovascular disease to go with my ESRD and Psoriatic arthritis. So sometimes in the wee hours of the morning I type angry and say out loud how I really feel. I want to quit all this stuff but have 20 year old twins who still need their father around. So I put myself through it. In the last 24 months over a dozen surgeries to try and keep my access open, 4 new stents in my heart, a defibrillator placed, now three surgeries trying to make PD work. I can truely say I hate dialysis.


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