Hello all from Pa

Tkski

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Hello all from Pa

« on: December 15, 2015, 08:44:51 PM »

Hello. I am a 47 year old male that has PKD. Currently, I am stage 5. My health has declined very quickly in a matter of 6-7 weeks. My fistula will be put in place after the holidays, sometime in Jan. Glad to be here and hope that I can learn a lot of what is to come.


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renalwife

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Re: Hello all from Pa

« Reply #1 on: December 15, 2015, 10:56:44 PM »

:flower

Nice to meet you. There is a wealth of information here. We learn from each other.

Post often. We really care for each other.


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Darthvadar

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Re: Hello all from Pa

« Reply #2 on: December 16, 2015, 01:31:04 AM »

Hello....

to our community....

You'll find that we're a friendly bunch... Always happy to have new people on board....

Hope to see you around loads...

Darth... Moderator...


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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....

stayingalive

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Posts: 48

Re: Hello all from Pa

« Reply #3 on: December 16, 2015, 03:56:44 AM »

Welcome aboard mate!! Sorry you ended up joining our ship but hey we welcome all who are experiencing CKD.
Its a great place learn and interact with people who go thru the same thing and understand.
They may not all agree all the time but they are willing to share their vast knowledge with the rest of us.
WATCH OUT THOUGH......some of them can be

at times
they will

you on to help you as they always want to share their

with us.

All joking aside my friend...WELCOME and ask when you need to....don't forget as you learn sometimes you might also teach an old dog new tricks


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SMILE!! CAPD since June 2014
Polysystic kidney disease

Michael Murphy

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Re: Hello all from Pa

« Reply #4 on: December 16, 2015, 04:16:58 AM »

Welcome to The wonderful world of CKD patients, the reason I have maintained my tenuous grip on reality is the wonderful people on this board and the amazing information provided here, it made my transition to this life easier and occasionally provided a necessary chuckle. This online party always needs more participants so I am glad you joined.


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Vt Big Rig

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Re: Hello all from Pa

« Reply #5 on: December 16, 2015, 07:34:46 AM »

Welcome to the site.

Glad to have you here and sorry you had to join us. I remember those last few weeks before starting ... UGH!!

I think it is a good idea to get the fistula installed as soon as possible. It needs time to heal and mature. Do the exercises they give you as soon as you can and as often as you can.

I wish you the best of luck with that. Fistulas are not a normal part of your body. Most work great, some not so good. Hopefully they have done some vein mapping and your's will work great.

Again

and don't be afraid to ask questions or share concerns.


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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months, New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help

cassandra

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When all else fails run in circles, shout loudly

Re: Hello all from Pa

« Reply #6 on: December 16, 2015, 04:45:44 PM »

Welcome to the site Tkski

Take care, Cas


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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

still on waitinglist, still ok I think

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