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Author Topic: Sugarlump's Wedding!!!  (Read 7446 times)
Sugarlump
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10 years on and off dialysis
« on: August 18, 2015, 10:06:35 AM »
It was a wonderful day!
Sunshine, kilts, sandcastle cake and lots of smiles!  :bandance;  :bandance;  :bandance; :bandance;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Rerun
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Going through life tied to a chair!
« Reply #1 on: August 18, 2015, 10:57:52 AM »
Ahhhh Congratulations!

            :beer1;
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Deanne
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« Reply #2 on: August 18, 2015, 01:27:19 PM »
 :yahoo; Let the honeymoon begin!

I love that heart picture. Is that from a drone?
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
PrimeTimer
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« Reply #3 on: August 18, 2015, 05:42:37 PM »
Congratulations! The pink dress reigns supreme! Love your style!
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Zach
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"Still crazy after all these years."
« Reply #4 on: August 18, 2015, 06:55:54 PM »
Excellent!!
 :waving;
Drinks all around.

 :beer1; :beer1; :beer1;
 :wine; :wine; :wine;
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Sugarlump
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10 years on and off dialysis
« Reply #5 on: August 18, 2015, 11:27:08 PM »
Quote from: Deanne on August 18, 2015, 01:27:19 PM
:yahoo; Let the honeymoon begin!

I love that heart picture. Is that from a drone?

No, it's from a 2nd floor window (we got married at a stately home & garden!)
Looked chaotic on the ground but worked to get the heart shape!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Michael Murphy
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« Reply #6 on: August 19, 2015, 06:03:59 AM »
This is news is the type that puts a smile on my face, it's good to see good people having good thins happen.
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kristina
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« Reply #7 on: August 19, 2015, 06:07:31 AM »
Hello Mrs. Sugar,
Thank you so much for sharing your wonderful wedding-pictures with us...
...You both look very happy and so very elegant !
... With the help of Mr. Google I have tried to decipher
to which clan the green tartan belongs ... (is it MacDonald ?)
... but there are quite a few different answers provided ...
... May you both share a wonderful future together
and I send you my kind regards and all the best
from Kristina. :grouphug;
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
SooMK
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« Reply #8 on: August 19, 2015, 06:16:11 AM »
Congrats!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
kitkatz
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« Reply #9 on: August 19, 2015, 04:40:37 PM »
Happy marriage!!!!  :wine; :wine;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #10 on: August 19, 2015, 05:01:48 PM »
OMG! I love the pictures! Congratulations!

 :bestwishes; :clap; :guitar: :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #11 on: August 20, 2015, 05:07:54 AM »
Fantastic pics, and lots of happiness to you both

       :beer1;


Hugs and kisses, love luck, Cas

     
    :cheer:      :cheer:      :cheer:
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kitkatz
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« Reply #12 on: August 21, 2015, 11:18:34 PM »
Cogratuwedding!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Sugarlump
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10 years on and off dialysis
« Reply #13 on: August 22, 2015, 12:26:14 AM »
Quote from: kristina on August 19, 2015, 06:07:31 AM
Hello Mrs. Sugar,
Thank you so much for sharing your wonderful wedding-pictures with us...
...You both look very happy and so very elegant !
... With the help of Mr. Google I have tried to decipher
to which clan the green tartan belongs ... (is it MacDonald ?)
... but there are quite a few different answers provided ...
... May you both share a wonderful future together
and I send you my kind regards and all the best
from Kristina. :grouphug;

It's "Flower of Scotland" tartan!
And if you think Drew looked cute, look at this :
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #14 on: August 22, 2015, 02:11:46 AM »
Many thanks Sugar for the "Flower of Scotland" - explanation 
... and a big thank you for sharing this lovely picture of the little Braveheart,
he looks very cute and I fell instantly for his wonderful charm !
... I wish you lots of happiness and a lovely honeymoon...
and I send you both my best wishes for a happy future together
from Kristina. :waving;
« Last Edit: August 22, 2015, 02:13:28 AM by kristina » Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cassandra
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When all else fails run in circles, shout loudly
« Reply #15 on: August 22, 2015, 03:05:28 PM »
Real nice hon. Enjoy your honeymoon

     :cheer:     :cheer:     :cheer:
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Jean
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« Reply #16 on: August 22, 2015, 04:44:16 PM »
how beautiful!!! I love pink and roses and the whole idea of a loverly wedding. Congratulations and best wishes.
Logged
One day at a time, thats all I can do.
JW77
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WWW
« Reply #17 on: September 14, 2015, 11:04:55 AM »
Congratulations..  Awesome times ahead!
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Creator of London Kidney Social: https://www.facebook.com/groups/LondonKidneySocial/

Medical stuff, includes 3 kidneys, cancer, meningitis, 1 heart attack and its long and not that interesting! Maybe one day I'll write a book.! `

I have an eclectic taste in music, I fly kites, I read, write, tog, blog and have a bit of a passion for multicellular eukaryotes, and kites.

Founder of Kites4Kidneys - Start making your kites for WKD 2015..
https://www.facebook.com/kites4kidneys
Sugarlump
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10 years on and off dialysis
« Reply #18 on: September 15, 2015, 10:19:17 AM »
Off to South of France on Sunday for 2 weeks. Staying in Juan-les-pins (D in Antibes nearby)
Sun, sea, great food and lots of places to visit. Can't wait  :cheer: :cheer: :cheer:
**Honeymoon Special**
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Angiepkd
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« Reply #19 on: September 16, 2015, 07:20:00 PM »
A www!  Beautiful pictures!  Congratulations!
Logged
PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
lainiepop
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« Reply #20 on: September 17, 2015, 05:37:26 AM »
Congratulations!! Beautiful pics! Xx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
natnnnat
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WWW
« Reply #21 on: September 22, 2015, 04:25:29 AM »
How wonderful!  Congratulations Sugarlump!
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Sugarlump
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10 years on and off dialysis
« Reply #22 on: October 06, 2015, 11:43:55 AM »
Back from a wonderful honeymoon in the South of France.
Sea, sand, sun and wonderful Mediterranean food.
Two weeks was amazing ...  :waving;  :waving;  :waving; now back to rainy England!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
del
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del and willowtreewren meet
« Reply #23 on: October 11, 2015, 01:28:43 PM »
Congratulations!!
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Don't take your organs to heaven.  Heaven knows we need them here.
kitkatz
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« Reply #24 on: November 28, 2015, 09:56:41 AM »
Happy days are ahead for you all.  Have a great time together!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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