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Author Topic: Vitamin D deficiency  (Read 3848 times)
Sugarlump
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10 years on and off dialysis

« on: February 12, 2015, 08:28:46 AM »

My blood tests have come back extremely low in Vitamin D this month (yet not done anything different) and my cholesterol has spiked too (Understand there maybe a link?)
Have been a bit tired of late too...
Anyone else have this problem and have any info on why and curing it  ???
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
obsidianom
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« Reply #1 on: February 12, 2015, 10:04:07 AM »

My blood tests have come back extremely low in Vitamin D this month (yet not done anything different) and my cholesterol has spiked too (Understand there maybe a link?)
Have been a bit tired of late too...
Anyone else have this problem and have any info on why and curing it  ???
Vit D requires the kidneys to make it active . It is a whole metabolic process that requires the liver then kidneys. So with kidney disease it is always a potential problem.   The liver is involved in cholesterol synthesis. So that may be a common path with vit d as the liver is very involved with vit d also. I would simply recheck before doing anything. Then if it is still an issue talk to you nephrologist . My wife takes Lipitor for her cholesterol and it works well.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
Charlie B53
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« Reply #2 on: February 15, 2015, 06:05:04 AM »


I'd have to go get the bottles for the names, but the Dr's have tried three different Vit D's as my labs at one point listed it so low the Dr said it was virtually undetectable.  The first two didn't do much at all other than my calcium kept climbing.  Calcium was over 10.4 to begin with so they soon stopped those calcium supplements and ordered the this one, which was supposed to be the correct one for kidney patients.  Calcium still rose to 11.7, so they stopped that one also.   Calcium has finally dropped back as low as 10.4

I was told by my Pain Dr that Vit D is essential for pain management.  I didn't feel any difference in pain levels at any time taking any of the Vit D's.

My concern is bone density, if there has been, or is  a loss occurring.  Dr's are not yet willing to have a density scan done.

I have been asking about the advisability of taking renal vitamens.  Waiting for a response from my Neph.
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Sugarlump
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10 years on and off dialysis

« Reply #3 on: February 18, 2015, 02:08:10 PM »

Interesting point about pain because my joints in particular knees and wrists have been really painful since
I'd stand outside but apparently my bp tablet reacts badly to sunlight and turns you grey ( not a good look)
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #4 on: February 21, 2015, 04:40:36 AM »

Interesting point about pain because my joints in particular knees and wrists have been really painful since
I'd stand outside but apparently my bp tablet reacts badly to sunlight and turns you grey ( not a good look)
Hello Sugar,
please tell me what sort of BP-medication are you taking that it reacts badly to sunlight?
I am wondering because I have been reading that about 15 minutes in the sun every day
prevents us from any Vitamin deficiency, but if you take a medication which makes you to avoid the sun,
it would defeat the purpose of getting your Vitamin D "naturally"...
Best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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10 years on and off dialysis

« Reply #5 on: February 22, 2015, 01:37:35 AM »

Ramipril commonly used bp med that reacts to sunlight. I haven't gone grey yet in normal life but wouldn't recommend sunbathing on beach or sunbed.  8)
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #6 on: February 22, 2015, 01:58:36 AM »

Thank you for the helpful information Sugar,
I am very interested in this, because I have to make a careful balance
about my daily exposure to bright sunlight and bright ultraviolet artificial light
because of my photosensitivity, which is caused by "my" Systemic Lupus and MCTD...
... That is the reason why I am with a wide-brimmed hat and protective sunglasses whilst outside...
...and added to this, I better watch out in the future about anti-hypertensives like "Ramipril"...
Thanks again from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cassandra
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When all else fails run in circles, shout loudly

« Reply #7 on: February 24, 2015, 06:30:35 AM »

If your kidneys don't work, they can't 'activate' the vitamins from the sun, so don't bother about the sunbeds (if you're doing it for vit.D)
I've started eating quite a bid of cashewnuts in stead of taking Alpha calcidol, as my Ca kept rising.
There's calcitriol in cashewnuts, and I like them, and my Ca and Vits are okay
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis

« Reply #8 on: February 24, 2015, 09:25:22 AM »

I love cashews and peanuts and will ets them occasionally but they are high in potassium doi am not sure about eating them on a regular basis. I also love twiglets!!!! 
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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