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Author Topic: Travelling with NX stage machine  (Read 3259 times)
Sugarlump
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10 years on and off dialysis
« on: December 31, 2014, 01:28:38 PM »
We are finally getting NX stage machines (slowly) into the UK  :2thumbsup;
I am curious how it works when you travel with the machine. To use it do you need (a) a clean water supply and (b) electricity?
I am wondering how easy it is to get off the beaten track with one?
At the moment all my holiday plans involve complicated arrangements with other dialysis units every 2/3 days which is pretty limiting for travelling.
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
obsidianom
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« Reply #1 on: January 01, 2015, 05:25:26 AM »
Quote from: Sugarlump on December 31, 2014, 01:28:38 PM
We are finally getting NX stage machines (slowly) into the UK  :2thumbsup;
I am curious how it works when you travel with the machine. To use it do you need (a) a clean water supply and (b) electricity?
I am wondering how easy it is to get off the beaten track with one?
At the moment all my holiday plans involve complicated arrangements with other dialysis units every 2/3 days which is pretty limiting for travelling.
Nxstage is a completely self contained system . You just need electricity .  You can travel with premixed dialysate bags so no water is need. You can run the outflow into a sink or toilet. Its really quite simple.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
cassandra
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When all else fails run in circles, shout loudly
« Reply #2 on: January 01, 2015, 08:02:41 AM »
It really is that simple. You don't need a special adapter plug either for travel, just the standard adapter for that country. Every box has 2 x 5 liter bags of your dialysate, so if you do 30 liter a session you'll fit easily 6 boxes dialysate, 3 bags saline (1 spare), 1 machine + needles etc in car to get off the beaten track. You just plug the machine in someones socket.

   :angel;


Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: January 01, 2015, 11:03:55 AM »
We routinely went camping in our little camper with our machine. We ran the waste into a tank. We took a generator with us in case the power went out, but never had to use it.

We also took our machine to visit our daughter several times a year. You have to be organized to remember all the things you need, but otherwise, traveling is a cinch!  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Zach
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« Reply #4 on: January 01, 2015, 12:21:00 PM »
And let's not forget Bill Peckham's 8-day trip down the Colorado River in the Grand Canyon!
http://www.billpeckham.com/from_the_sharp_end_of_the/2013/08/dialysis-is-like-running-a-river-it-s-best-to-have-your-own-momentum-.html
https://www.youtube.com/watch?v=7VqIZxPyLo0
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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