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Author Topic: The guy, that's new.  (Read 5070 times)
YouDontKnowCecil
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The more you know ...
« on: March 26, 2007, 01:30:37 AM »
Hello fellow mostly No-Pee-ers! Much thanks to goofynina for recognizing my registration!

I'm a private person, so I do not want to give too many personal details. I'm a 28, soon to be 29 year old dude that's been on in-center hemodialysis for 5+ years. I'm currently contemplating home hemo (if I can just convince my family that it really isn't that difficult) or possibly even PD. I feel as though I need a break from having to go to a clinic, especially after they banned food. :( They at least let me have sugar-less drinks though.
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1987 summer (age 9), Renal biopsy confirms kidney disease (Alport Syndrome).
2001 January (age 22), Arterio-venous fistula put in left forearm.
2002 March (age 23), Started in-center hemodialysis (12 years!).
2014 April (age 35), Now training for self home hemodialysis with NxStage.
Joe Paul
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« Reply #1 on: March 26, 2007, 01:41:04 AM »
Welcome YouDontKnowCecil, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #2 on: March 26, 2007, 03:15:20 AM »
 :welcomesign; YouDontKnowCecil,

Good to see you here, have a really good think about home hemo, it will be the best decision you will make in my opinion when it comes to doing dialysis. If you have to do this thing, and you are capable of doing it in the privacy of you own home, go for it!

Anyway hope to see you around the forum, or maybe come and see us for a chat in the chatroom.

Tamara xxx ooo  :cuddle;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
carolyn77531
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« Reply #3 on: March 26, 2007, 05:07:24 AM »
 :welcomesign;
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YOU are stronger than you realize.
Wiser than you know.
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kimcanada
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WWW
« Reply #4 on: March 26, 2007, 05:16:58 AM »
:welcomesign; YouDontKnowCecil :welcomesign;

I hope that you take full advantage of this forum, it has many views on what you are going through

Kim
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Zach
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"Still crazy after all these years."
« Reply #5 on: March 26, 2007, 06:15:03 AM »
Great to have you here!  Looking forward to your posts.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Sluff
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« Reply #6 on: March 26, 2007, 08:06:16 AM »
Welcome to IHD Cecil,

Glad you joined our family. You will fit right in here because we are all here for one reason or the other regarding dialysis or renal disease.

Take your time and look around the site and familiarize yourself a little and post often.

There is plenty of reading material here.


Sluff, Administrator
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Hawkeye
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« Reply #7 on: March 26, 2007, 10:04:28 AM »
 :welcomesign;
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thegrammalady
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« Reply #8 on: March 26, 2007, 10:39:13 AM »
 :clap; welcome
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Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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For You Are Crunchy And Taste Good With Ketchup
anja
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« Reply #9 on: March 26, 2007, 09:10:24 PM »
 :welcomesign;  youdontknowcecil, to the community!  Glad you are looking into other modalities of dialysis- you'll be glad you did.
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kitkatz
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« Reply #10 on: March 26, 2007, 09:13:40 PM »
Banning the food! How cruel!  I would have a fit all over my clinic if they did that to me!  I eat lunch at 10:30 in the monring and do not get a break until I am on dialysis at three.  Anyway, welcome to the site.  We have a lot of information here.

kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
YouDontKnowCecil
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The more you know ...
« Reply #11 on: March 26, 2007, 09:58:03 PM »
Thanks for the warm welcome folks. I really like this site compared to other online dialysis support groups I've seen. Other sites have a really morose, morbid feel to them, and seem as if tact is more important than veracity.
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1987 summer (age 9), Renal biopsy confirms kidney disease (Alport Syndrome).
2001 January (age 22), Arterio-venous fistula put in left forearm.
2002 March (age 23), Started in-center hemodialysis (12 years!).
2014 April (age 35), Now training for self home hemodialysis with NxStage.
kitkatz
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« Reply #12 on: March 26, 2007, 10:26:34 PM »
That is exactly why Epoman started this site. To allow people to have a say!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chicken Little
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« Reply #13 on: March 28, 2007, 08:54:16 PM »
Hiya!   :welcomesign;
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Hephs-little-lady
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Always dance like no one is watching!

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« Reply #14 on: March 29, 2007, 12:14:36 AM »
 :welcomesign; Helloooooooooo  :welcomesign;
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:D Knowledge Is Knowing That A Tomato Is A Fruit, Wisdom Is Not Putting It In A Fruit Salad.
MyssAnne
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« Reply #15 on: March 29, 2007, 05:51:26 AM »
Welcome, Cecil!! You don't have to worry about sharing anything you don't want to....we have
plenty of people who LOVE to talk!! Just sit back and listen!   :welcomesign;
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Earlinda
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« Reply #16 on: April 29, 2007, 12:33:08 PM »
 :welcomesign; So good to have you here with us! :clap;

Earlinda "Early"
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YouDontKnowCecil
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The more you know ...
« Reply #17 on: July 17, 2007, 08:20:52 PM »
Hey guys,

I'm back again. I went on some sort of hiatus. Been busy!
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1987 summer (age 9), Renal biopsy confirms kidney disease (Alport Syndrome).
2001 January (age 22), Arterio-venous fistula put in left forearm.
2002 March (age 23), Started in-center hemodialysis (12 years!).
2014 April (age 35), Now training for self home hemodialysis with NxStage.
Sluff
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« Reply #18 on: July 17, 2007, 08:24:26 PM »
Great to have you back. How about coming to Vegas with us? Hope things are well with you and yours.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #19 on: July 18, 2007, 04:11:48 PM »
Thanks for coming back.  It gave me another chance to welcome you to our caring and sharing community. You probably joined at a time when I was having computer problems.   Great to have you with us!  Looking forward to hearing more from you.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
angela515
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i am awesome.
« Reply #20 on: July 18, 2007, 09:19:29 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
KICKSTART
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In da House.
« Reply #21 on: July 19, 2007, 12:36:57 PM »
 :welcomesign;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Ohio Buckeye
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« Reply #22 on: July 20, 2007, 07:01:17 PM »
Welcome!
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If I must do this to live, I must strive to live
while I am doing this.
del
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del and willowtreewren meet
« Reply #23 on: July 21, 2007, 06:24:46 PM »
 :welcomesign; Cecil.  That's my brother's name too!!  Hubby was in center hemo for 6 years and started home hemo nocturnal in Oct. o6 and loves it ( as much as you can love dialysis).  far better than having to travel to a center.  Feel free to set me a private message if you want info or just want to chat about it.
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Don't take your organs to heaven.  Heaven knows we need them here.
YouDontKnowCecil
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The more you know ...
« Reply #24 on: November 29, 2008, 11:36:18 PM »
I apologize, I have not been here for a long, long time. Since I started school, I hadn't been around the social networks online that much. I think I'll be paying a little bit more attention to them from now on.

Oh, and before I confuse anyone else, my name isn't Cecil ... my handle here is just derived the name from the person that discovered a certain type of renal disease. That person's name is the name of the disease ... Cecil is his first name (but not the name used to identify the disease). Bonus points to anyone that can figure out his last name. :)
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1987 summer (age 9), Renal biopsy confirms kidney disease (Alport Syndrome).
2001 January (age 22), Arterio-venous fistula put in left forearm.
2002 March (age 23), Started in-center hemodialysis (12 years!).
2014 April (age 35), Now training for self home hemodialysis with NxStage.
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