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Author Topic: Mum is slipping away.....  (Read 12765 times)
willowtreewren
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My two beautifull granddaughters

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« Reply #25 on: July 08, 2014, 05:15:40 PM »
This certainly is a roller coaster ride!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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« Reply #26 on: July 08, 2014, 10:55:28 PM »
Quote from: Darthvadar on July 08, 2014, 12:14:03 PM

Humour hasn't gone, though, although any little bit of tact certainly has... One female doctor hasn't got the nicest legs in the world... Mum said today, loudly 'Doctor Stumpy Legs was here today!'... The other patients howled with laughter!.... I didn't know where to put myself!...Thank God ' Dr Stumpy Legs' wasn't there!!!...


Bahahahaha!!! That's funny!!  :rofl; :rofl; :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MaryJoe
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« Reply #27 on: July 08, 2014, 11:38:15 PM »
 :2thumbsup;  I Love Elsie's sense of humor! It's good to hear she seems to be rallying.  I think she's letting everyone know she'll move on when she's ready, and not a minute sooner! i know this is a very hard time for you, emotionally and physically. I hope you listen to the nurses and take care of yourself as much as possible. Remember to eat and rest when you need to. Praying for strength and peace of mind for you both. I'm glad Elsie is with people she knows and trusts, let that ease your mind. You are a wonderful, loving daughter, always looking for ways to make your mum feel more comfortable and I'm sure Elsie recognizes the love that goes into everything you do for her. Hang in there Darth, keep us posted as you can.

 :cuddle;   :cuddle; to both of you! 
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
Darthvadar
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« Reply #28 on: July 09, 2014, 05:45:45 AM »
Thanks everyone....

They've stopped waking her now... They realise that when she's woken, she's never 'with it' and is inclined to be very confused... So the strategy is now to let her wake when she's good and ready (Was 10.30 this morning)... They got her a cup of tea, and some toast which she ate and drank... They then washed her, changed her, put a fresh nightie on her, tucked her up again, and she went back to sleep... I think this is how it will be now...

I'll bring her in some more ice for the Pepsi this afternoon... She told me yesterday that she'd like a banana and some jelly beans... She LOVES her jelly beans... Whether she'll eat many, I don't know, but hey, she'll have them there if she fancies them...

And God help the poor doc, I hope she never walks in on Mum when she's been spoken of...  Dr Stumpy Legs has been abbreviated to 'Stumps'!!!... Oh dear Lord... She certainly doesn't have much of a future in the Diplomatic Corp... LOL!....

Love to all....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Zach
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« Reply #29 on: July 09, 2014, 05:47:14 AM »
You have my love.
 :cuddle;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Darthvadar
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« Reply #30 on: July 09, 2014, 05:52:30 AM »
Thanks Zach....

Much appreciated!....

Darth....

P.S... Tried your chili recipe a few weeks ago... VERY tasty!... Thanks!...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Rerun
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Going through life tied to a chair!
« Reply #31 on: July 09, 2014, 10:15:36 PM »
Hi Darth. Blessings to you.

                  :flower;
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Darthvadar
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« Reply #32 on: July 10, 2014, 12:49:08 AM »
Quote from: Rerun on July 09, 2014, 10:15:36 PM
Hi Darth. Blessings to you.

                  :flower;

Thanks Rerun.... Appreciate that....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
willowtreewren
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« Reply #33 on: July 10, 2014, 05:29:27 AM »
I'm thinking of you every day as I journey this road with my dad. ..

 :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Darthvadar
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« Reply #34 on: July 10, 2014, 10:09:49 AM »
Thanks Aleta...

I'm metaphorically holding your hand, too... This journey's SO hard!....

Love to all...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Darthvadar
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« Reply #35 on: July 12, 2014, 01:29:01 PM »
Hi All... Bad news, re: Mum...

She's in what a nurse referred to as 'a pre-death' phase... Clammy skin, great confusion, shallow breathing...

The doc has told me to come home, try to get some sleep, pack a bag, and clear my diary... I'm SO sad right now, but if I'm honest, for her sake I'd like her to go...

Lord, please guide me.. Please pray for her, Friends...

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
MooseMom
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« Reply #36 on: July 12, 2014, 03:24:00 PM »
This is such a difficult thing for you to go through, and I feel badly for you.  I hope your mum feels no pain.  My thoughts and prayers are with you.

It is time for your mum to rest peacefully now.  :grouphug;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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« Reply #37 on: July 12, 2014, 03:47:12 PM »
We're all thinking of you Darth

        :grouphug;      :grouphug;



Lots of love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
willowtreewren
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« Reply #38 on: July 12, 2014, 06:09:39 PM »
Sending love, love, love.....

 :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
boswife
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us and fam easter 2013
« Reply #39 on: July 12, 2014, 09:04:52 PM »
Sending prayers of strength for you Darth..... And much love... I know, its hard, your faith will carry you... God bless you both at this time, and gift you with a peaceful passing... hugs....
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Darthvadar
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« Reply #40 on: July 13, 2014, 12:02:38 AM »
Thanks Folks....

No, she doesn't seem to have pain, thank God, and the Palliative Care Team are very good....

Thanks for the thoughts and prayers... Really appreciate it....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Sue
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« Reply #41 on: July 13, 2014, 01:12:43 AM »
Keeping you and your mum in my prayers Darth.  I pray that mum will pass peacefully and that you are comforted by the wonderful memories of times you shared. This is such a difficult time,  God bless you and give you strength.
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Poppylicious
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« Reply #42 on: July 13, 2014, 08:23:16 AM »
Thinking of you, darth.

*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
lainiepop
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« Reply #43 on: July 13, 2014, 10:10:59 AM »
 Will pray for u and your mum Darth. xxx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
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« Reply #44 on: July 13, 2014, 02:15:42 PM »
Thinking of you
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
Joe
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« Reply #45 on: July 13, 2014, 03:47:33 PM »
Prayers to you for strength and all that is needed Darth.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
galvo
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« Reply #46 on: July 13, 2014, 04:02:23 PM »
Strength to you, Darth!
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Galvo
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« Reply #47 on: July 13, 2014, 04:54:11 PM »
May I, with out offense, and from the Poems segment, offer:

   Oh, That Angel 

Weep mine eyes, a river flow,
for those, who stay, to pass, on another day.
Your loss is painful,
and yet I say, fear not, your day, will also arrive,
but not today.
Many, fear my arrival,
and yet I say, I, The Angel of Death,
am sent to get, those ready spirits, to accompany me,
their willing servant, their personal guide,
to hold your hand, and remove your fear,
for you, will never again,
need to shed a tear.
Your hand, I hold, as we enter the Light,
my spirit  delights, as you, behold the sight, of,
 the Father of all,
arms open,
to welcome you Home.
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Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
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