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Author Topic: Raw Obsession: Need Suggestions  (Read 8082 times)
PrimeTimer
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« on: June 25, 2014, 10:55:22 PM »

Help! I am obsessed about hand washing before touching anything in our "treatment area" at home (we do home hemo). I swear, I probably wash my hands dozens of times in a 3.50 hour session before using hand sanitizer and gloving up and...my hands are RAW! And they HURT! I've been trying different things (Nivea cream, Corn Huskers Hand Lotion and Vaseline) at bedtime but does anyone else know of something that helps to heal raw hands that is cheap or can be found at Walmart??
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
amanda100wilson
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« Reply #1 on: June 26, 2014, 08:57:06 AM »

Maybe you do have an obsession if you are washing your hands as often as you say you do.  Do you think that it is the soap, have you tried switching?  your skin is breaking down, then you are doing more harm than good, washing your hands should not be that extreme.  Do you think that you could be susceptible to obsessive compulsive disorder?  Are you like this at other times?  If you think that this may be the case, then you may need to get some therapy to overcome this.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
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« Reply #2 on: June 26, 2014, 09:27:39 AM »

I agree with Amanda.

When we were doing home hemo (2.5 years), as a care partner I washed my hands before setup and before pulling the needles.

I also was on IV antibiotics for almost a year. There I could only wash my hands before connecting. I was tethered when it was time to disconnect, so I couldn't wash my hands again.

In neither case did we EVER have an infection.

 :grouphug;

Aleta
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Wife to Carl, who has PKD.
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Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
PrimeTimer
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« Reply #3 on: June 26, 2014, 04:40:18 PM »

Thanks, amanda and willow. I wash my hands any time I am going to touch anything in the "treatment area" and of course, if I am going to do anything requiring me to glove up, such as setup, connections and removing needles. This also includes; touching the cycler to adjust numbers or mute alarms, checking blood circuit tubing and/or blood connections for air, leaks, clots, etc or anything on the little treatment table I use where I write down vitals on the treatment logsheet every 30 minutes and where I store small supplies. I probably do have a compulsion but I am also paranoid of causing my husband any infections. Anyways, my hands are dry, rough and hurt! I always wash thruout the day, depending on what I'm doing, where I've been and what I've touched but my hands weren't so rough like this before we began doing home hemo. Need some relief! 
« Last Edit: June 26, 2014, 04:41:49 PM by PrimeTimer » Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Jean
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« Reply #4 on: June 26, 2014, 06:50:43 PM »

Vaseline under soft cotton gloves?
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okarol
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« Reply #5 on: June 26, 2014, 09:28:13 PM »

It sounds like overkill on the hand washing. Were you trained to do this much??
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
PrimeTimer
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« Reply #6 on: June 26, 2014, 10:10:52 PM »

It sounds like overkill on the hand washing. Were you trained to do this much??
No, I wasn't trained to do all this handwashing for dialysis but I was when I went through an intense dental assisting school in my younger days. No joke, we were taught and then graded on handwashing and if the instructor ever saw that we touched anything, ANYTHING, then we had to get up and go back to the sink and wash again. We also learned about germs and bacteria. We actually had to clean/disinfect areas in the school clinic and then as a lesson/project, take sample swabs of the same areas and grow cultures in petri dishes. You'd be shocked at the amount of bacteria left on surfaces even after being swabbed down with alcohol wipes. We used different cleaners and disinfectants, etc and the best one that killed more bacteria than any other was -Mr. Clean. Yup, that's right, the household cleaner. Of course we couldn't use that to wipe down treatment trays or things that touched patients or went into their mouths but it was a real eye opener to discover that plain old alcohol wipes don't do much. Anyways, I guess ever since that is why I have been so diligent about handwashing. And perhaps I still fear my old dental asst instructor..  :stressed;
« Last Edit: June 26, 2014, 10:13:51 PM by PrimeTimer » Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
PrimeTimer
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« Reply #7 on: June 26, 2014, 10:20:28 PM »

Vaseline under soft cotton gloves?
Thanks. I may go back to doing that, except that I used old cotton socks because I didn't have gloves. Vaseline is messy so I stopped using it but I don't know that there is anything that works better. Maybe I need to cut back on the handwashing just a bit and just use hand sanitizer ???
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
okarol
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« Reply #8 on: June 26, 2014, 10:25:52 PM »

Hand sanitizer can also be pretty rough on the skin, and as I recall, studies show it's not nearly as effective as soap and water.
Have you tried Bag Balm? "It's a time-tested solution for soothing and softening chapped and chafed skin, as well as promoting healing of cuts and scrapes." http://www.bagbalm.com/
I use it when my feet get rough. It was originally for cows udders, to keep them from chaffing!

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
PrimeTimer
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« Reply #9 on: June 26, 2014, 10:40:24 PM »

Hand sanitizer can also be pretty rough on the skin, and as I recall, studies show it's not nearly as effective as soap and water.
Have you tried Bag Balm? "It's a time-tested solution for soothing and softening chapped and chafed skin, as well as promoting healing of cuts and scrapes." http://www.bagbalm.com/
I use it when my feet get rough. It was originally for cows udders, to keep them from chaffing!
Thanks! I will look for that! That sounds familiar, the part about the cow udders. Might be less messier than vaseline. Thanks!
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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« Reply #10 on: June 26, 2014, 11:21:59 PM »

Maybe also use more gloves? I thoroughly wash my hands once, glove up, set up, and change gloves about 2/3 times while doing connections, and the like, so I have clean hands to do the needling. I used to wash my hands obsessively too, but bacteria will infect your hands through the dryness of the skin, so sort of defears the .....
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Jean
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« Reply #11 on: June 28, 2014, 12:45:43 AM »

Bag Balm is really great stuff.
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One day at a time, thats all I can do.
obsidianom
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« Reply #12 on: June 28, 2014, 07:03:39 AM »

Ok I will add my input as I have had to deal with this for years in the OR and at home dialysis.
What I found works the best is CVS brand "Advanced Healing Ointment"  which is similar to Aquaphor healing ointment.  The key is to put in on thick at bedtime and wear a pair of nitrile gloves (like the kind we use for dialysis) all night. When you wake up take off the gloves and you will see the softess hands ever. Do it every night until they heal or just forever if you prefer. It saved my poor hands. It heals cracking and wounds.
The ointment is 41% petrolatum so it is messy but the gloves keep it on just your hands at night. I would avoid the hand sanitizer as the alcoholis very drying to the skin., Just use the antibacterial soap to wash. I wash 20 times per day and this all works in the office and at home .
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
PrimeTimer
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« Reply #13 on: July 21, 2014, 11:58:56 PM »

Want to thank everyone for their advice and suggestions. That's why I like this site, people actually participate and talk to each other, so big thanks!
Okay, so I started washing a little less. For instance, I don't go to the sink and scrape (wash) my skin off just to record my husbands numbers every 30 minutes anymore. Finally got brave enough to realize that if I am not touching him or making a blood line connection, no need to wash. I have also stopped using the disinfectant gel, even the kind that claims to not have any alcohol in it but burns anyway. I also found a cheap generic dry skin lotion (compared to Vaseline Total Moisture Body Lotion) and that seems to work pretty good for my hands and not nearly as messy as just plain 'ol vaseline. Ahh! Relief at last! But THEN...I noticed the handwashing escalated again tonite and ouch, raw hands again! I connected it to being stressed out about my husband's appt with the vascular surgeon tomorrow. His AV fistula is acting up. AGAIN. Higher pressures on the cycler, pulsating, oozing around the needles. Probably will need another angioplasty. Third one in 6 months. More loss of income. So I've connected my handwashing obsession to times when I feel things are spiraling out of control and when I'm stressed and the only way (I guess in my mind) to contain it, is to do something that I can control, like wash my hands to get back the feeling of everything being all neat and tidy and orderly. Would so rather have a pill to take for this but cannot take on anymore expenses or doctor appts. My new cheap skin lotion will have to do for now! Was so much easier when I was younger just to have a strong drink and relax. Nowadays, if I had a drink I'd probably have just one and then have to go to bed or else it would make me sick. Wow. Never thought I'd get to the age of when I'd be too tired to have a drink. Ah well...  :2thumbsup;
« Last Edit: July 22, 2014, 12:04:04 AM by PrimeTimer » Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly

« Reply #14 on: July 22, 2014, 02:34:31 AM »

Dear PT, how did you get on?

Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #15 on: July 22, 2014, 08:45:56 PM »

Dear PT, how did you get on?

Love, Cas
Doing less handwashing, only when I touch blood line connections, needles, etc. Also stopped using the disinfectant gel. Found a cheap hand lotion that is a generic of a Vaseline brand lotion and my hands are much better off now. Husband had to have another angioplasty on his fistula today but all went well and it's working fine, so less stressed out, less handwringing/handwashing...thanks for asking. Stress sure can have multiple effects on us!
Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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