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Author Topic: Today (April 3) Is My First Kidneyversary!  (Read 4499 times)
Cordelia
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« on: April 03, 2014, 06:47:18 AM »

Today I am celebrating my first Kidneyversary!  My Kidney named April, is doing well.........

I'd like to share a video of my story here that my loving husband, who donated one of his kidneys to someone in a paired exchange so that I could receive a kidney in return.......

https://www.youtube.com/watch?v=mC_2ThQNKD8&feature=youtu.be

 :bestwishes;            :bandance;            :cheer:

Here is also a write up of my journey that I'd like to share with you also that I had posted on my Facebook page yesterday......



Tomorrow, on April 3 is my first kidneyversary day! One year ago tomorrow I received the Gift of Life and I'm so excited to be celebrating this very special day with my husband, family and friends! My kidney named April is doing well

 I am so grateful and thankful to my special and very loving husband who gave me the gift of life indirectly giving me a kidney so that I could live a new life, free of a dialysis machine to keep me alive.

 I am still in awe of what Don has done for me, helping give me the Gift of Life. He loves me so much and I love him so much. I remember being so scared last year at this time going into surgery, but hopeful at the same time. We never gave up hope and I am so proud of him every step of the way. He stood by me and never gave up trying to help me.

 We have been married almost 19 years this coming June 3. The number 3 has been a significant number in our family. Don and I were married on the 3rd of June and my kidney transplant occurred on April 3. We have 3 children.

 As I reflect back since last year, my very last dialysis session treatment that took place at Grand River Hospital on Tuesday, April 2, I left my amazing dialysis unit with such mixed emotions. I was so excited but I knew that I would also miss my second special little family at my unit and was about to embark on starting a new journey, a new life, one that was unknown but also had hope. I was scared for Don. I was more scared for him than for me because I'd had several major abdominal surgeries in the past, so I was naturally more scared for him, what risks he was up against. I had lost my Dad when I was only 13 years old, so I did not want our children to not have a father while growing up.

 When we married in 1995 I never imagined Don donating one of his kidneys to save me. He is very special to me. I will be forever grateful to him and to my donor for what they have done for me. I will never forget the look on his face when we saw each other the next day when we could see each other.

 During this much-anticipated moment of reuniting after our surgeries, we cried tears of joy, we were so relieved and thankful that we were both alive and well. It was the most special moment in my life when I could say thank you to him. I am teary-eyed right now as I write about this moment. It is definitely a very special time with Don that I will still get emotional (in a good way) the same as when he offered to help me when we first discovered my kidney failure and that I would need to continue dialysis until I could one day have a transplant.

 I give thanks to my donors every day. I hope and pray that the person who helped give me life is also alive and doing well. I also hope and pray that the recipient who received Don's kidney is alive and doing well today also.

 The week that I was at St. Joseph's hospital where I received my Gift of Life, I still remember the day that I was admitted to St. Joseph's Hamilton (my transplant hospital) and my 5 day stay following surgery. I received so many heart-warming compliments from the staff and doctors that they were very amazed how well and healthy I was prior to my transplant. This made me feel so good. I will never especially forget the kind compliments of the gentleman named Jim from the recovery room. A few days after my transplant as he saw me walking in the hallways and was amazed at how good I looked post transplant and as to how well I was doing. The staff, doctors and nurses at St. Joseph's have been absolutely amazing.

 I give thanks to my parents and extended family for what they have done for me, for those who have been there for Don and I and our family. I give thanks also for who they are and what they have done for my family and I. They have all been a very special part of this journey also. You all have stood by us and have supported us since the beginning of our journey. I can't thank you enough for your help.

 For the last year it has been absolutely amazing to be home with my children, my family. I give thanks to my children who have also been so patient and so loving through this whole journey, I love them so much and I'm over the moon that I can be home to see my kids off to school every school day morning and that I can be home on a Saturday morning instead of having to do treatments. Being their Mom is an amazing feeling and it brings me joy and happiness that they are happy that I'm home now. I very much look forward to spending many more years with you. It's because of you that I chose to fight to live and not give up the fight in August of 2010 when I nearly died.

 I give thanks to my many special friends whom I will always remember the kindness of those who came to visit Don and I in the hospital and who helped us with meals and visited following my transplant . Your friendship, kindness and support has meant so much to me and I am so grateful for everyone's help and support. Out of a negative thing of having my kidneys fail me in August of 2010, I have had a very positive blessing come from it and have made many new friends. I'm so grateful and thankful for all of my friends.

 In the last few years I had made a few very special friends who were so inspiring to me in my journey. Since January of this year, Kayla Baker, Jeffery Heffernan and Tim Novak have all passed away and they have been a great loss to the organ donation awareness community and beyond. We have lost some very special and amazing friends and has been very sad and devastating that they lost their battle. But their spirit still lives on and I think of them every day and how inspiring they have been to myself and to many.

 Kayla and I shared April 3, 2013 as our transplant date and I have always felt honored to have shared this very special day with her. I will never forget her inspiration. So on this very special day of my kidney transplant and Go Green for Kayla today on April 3 I will wear green to celebrate and promote organ donation awareness.

 I hope that people will be inspired and will wear green today. Please sign up at beadonor.ca to register your consent to donate your organs and become an organ donor today. You could be that someone who can help make a difference and save someone's life.

« Last Edit: April 03, 2014, 06:50:08 AM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Ninanna
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« Reply #1 on: April 03, 2014, 07:36:53 AM »

Congrats on your one year kidney-versary! So happy to hear everything is going well!
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
Zach
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"Still crazy after all these years."

« Reply #2 on: April 03, 2014, 07:56:27 AM »

 Congratulations!!!
:beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jeannea
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« Reply #3 on: April 03, 2014, 09:01:10 AM »

Congrats! I hope that kidney keeps plugging away for a long time.
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MooseMom
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« Reply #4 on: April 03, 2014, 10:27:57 AM »

What a nice FB post!!  Congratulations!

You know, Don got something good out of this deal, too.  We all know that dialysis impacts an entire family.  It couldn't have been much fun for your husband.  But now he has a healthy wife whose time on dialysis can now be spent doing fun things with the entire family.  Everyone benefits from Don's gift to you.   :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
tigtink
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« Reply #5 on: April 03, 2014, 10:48:33 AM »

Happy Kidneyversary!!  That's for sharing your story in such a meaningful way.  It really gives hope and inspiration to those of us who are going through the process of getting on the list and finding a donor. It is such a mixture of excitement, fear, hope, and frustration looking ahead to a transplant.  Stories like yours are wonderful to hear. May you have many more happy and healthy years with your husband and children!
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Angiepkd
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« Reply #6 on: April 03, 2014, 01:37:10 PM »

What a beautiful tribute to all those wonderful people!  Especially your hubby!  He is definitely a keeper!  I hope everything continues to go smoothly for you both and you have many more years with April.  Congratulations on one year!   :yahoo;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
jeannea
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« Reply #7 on: April 03, 2014, 02:25:33 PM »

Congrats! I hope that kidney keeps plugging away for a long time.
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Rerun
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Going through life tied to a chair!

« Reply #8 on: April 03, 2014, 05:29:27 PM »

Yippee!   :birthday; 

                               :flower; 
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RichardMEL
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« Reply #9 on: April 03, 2014, 06:19:40 PM »

awesome! time flies!
congrats :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
lainiepop
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« Reply #10 on: April 04, 2014, 05:11:11 AM »

Wonderful!  congratulations glad u r doing well xxx :bandance;
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
cdwbrooklyn
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Positive Thoughts equal Positive Energy

« Reply #11 on: April 04, 2014, 01:45:28 PM »

God bless you and April for many years to come.  I enjoyed reading your story.  Hope I can read many more in the near further.  :clap;
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
Cordelia
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« Reply #12 on: April 05, 2014, 07:16:56 AM »

Thank you so very much everyone for all of your really sweet compliments on my first anniversary and for your congrats! Your really sweet and kind words mean a lot to me, thank you!      :thx;

Thank you so much also for your really sweet compliments on my story too, I'm so glad you enjoyed it!       :clap;        :bandance;

Big Hugs to each and everyone of you!

 :grouphug;         :flower;       

Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
raj_blr
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WWW
« Reply #13 on: April 19, 2014, 09:03:03 PM »

Congratulations!!

My story is quite similar to yours and I got transplanted on Jan 3rd 2014. My wife was the living donor and I am stable and my wife has recovered well ( touch-wood).

I have documented the actual procedure here - http://rmishra111.wordpress.com. I hope this would be helpful to folks who like me are apprehensive about he procedure itself.

Before the transplant I was on Dialysis for a year. 5-6 months on in-center dialysis and remaining time on PD ( nightly at home).
Thanks,
Raj
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Kidney Disease: IGA Nephropathy
Since: 2001
ESRD: Nov 2012.
Fistula Done: Aug 2012 ( third surgery was successful, first two failed).
Dialysis start date: 10th Nov 2012.
PD Catheter inserted: Mid 2013
PD ( at home nightly) start: July 2013
Transplant done: 3rd Jan 2014
Donor: Living donor, my wife
Surgery Done: Apollo Hospitals, Bangalore, India
Cordelia
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Posts: 2012


« Reply #14 on: April 28, 2014, 05:56:24 AM »

Congratulations!!

My story is quite similar to yours and I got transplanted on Jan 3rd 2014. My wife was the living donor and I am stable and my wife has recovered well ( touch-wood).

I have documented the actual procedure here - http://rmishra111.wordpress.com. I hope this would be helpful to folks who like me are apprehensive about he procedure itself.

Before the transplant I was on Dialysis for a year. 5-6 months on in-center dialysis and remaining time on PD ( nightly at home).
Thanks,
Raj

Thank you Raj!           :thx;

Congrats to you also!         :bestwishes;           :bandance;         Hope your wife is still doing well!

Thanks for sharing your journey also!           :clap;
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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