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talker
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Talkers oil painting

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« on: March 23, 2014, 09:08:52 PM »

Well wishes, to all.
Am called the 'talker' and dislike being a newbee on any forum.
Yes, Have been known to use a hundred words, when perhaps only twenty five would suffice. Still drives my gal up
the wall with my 'on and on' ways of talking. This is a carry over from my days as Field Service Manager, where the
field techs needed to be solidly based in Electro/Mechanics during my show and do classes.
-----------------------------------------------------
(From my daughters captured notes:)
-----------------------------------------------------
Last time to see any doctor (1971 – node removed under right arm.)

(Recent symptoms and why the emergency room visit of Oct 29, 2011)

Symptoms being experienced:  metallic taste, no ability to taste food, no appetite, body weakness, voice is weak,
very cold all the time, hearing completely gone, prostrate, urinary issues – not infected, irregular.  Knees ache but
been over long time.  Phlegm when sleeping/awake.  Quit smoking a month ago.  Vision is impaired.  Stopped all
caffeine.  Extreme vertigo at times.  Kidney maybe or maniers disease??
Not hydrating regularly.  Belching after drinking liquids or any food.
Daddy used herbs and home remedies however has not been using any, in the past several weeks.  He’s stopped
puffing William Penn Braves cigars (after 20 years of puffing away) within past month. Some of his home remedy

routines have been:

Past six weeks:  Tahitian Nono and Zija  - one drop of oil of oregano sublingual over 1-2 days.  Uses baking powder
under his arms in lieu of deodorant. 
Six Plus Weeks Ago:  Backed off of Opti 50 – Energy Greens, Super Foods, daily Zija – 5 day protocol of maple
syrup, baking soda slowly boiled and taken by teaspoon.

Way Back:  Alternate lobelia, cayenne and red pepper

Berry Mo  replaced Opti 50
Copper zinc/balance energy medicine
Zealite –chelating chemical/mineral

Clarify of intent – energy flows where you intend it to flow not the other way around.
 
Inability to cough mucus up from severe coughing.  Usually coughs when immediately lies down.  Coughs anywhere
from 10-15 minutes periods.  Settles down and falls asleep with coughing ceasing.  Has pain in knees.  Both
arthritis.  Daddy is usually very vibrant and alert but not now.  Always known to give compliments or tell jokes but
not now.  Has the gift of gab but that too is gone right now.  Loves to give back rubs to anyone ready willing and
able but hasn't had the strength so something definitely wrong.  Lost strength in the volume of his voice.  Barely can
hear him now.  Extremely cold and wearing layers of clothing to keep him warm. Experiencing difficulty with vision
and does have cataracts on both eyes.   He's lost about 12 pounds in past 4-6 weeks. 
He has always been active on his blogs for hours on end making several trips up and down the stairs to his get away
room in the lower level.  It’s been over two weeks now since he has attended to any of these favorite pastimes.

http://www.thetalker.org/
---------------------------------------------------------

Well, for  87 years of experiencing life in it's many shapes and forms, I've no real complaints, along with only a few
regrets. Yes, did avoid all doctors since 1971, and why I dislike doctors is yet another story and will spare you that
read.

Did have what I call my 1st serious 'off health' event 9/1/2011 (Ha, should have payed attention)
Once my energies were mostly restored:
----------------------------------------------
On April 30, 2012,  I wrote:
------------------------------------------------
Well now , I'm still alive and quite mobile.
This was the start of a surprising journey, and actually was a two part trip.
One trip, being three days at home and the second go round, 17 days in the hospital, where I had nurses and
doctors stopping in just to 'see that special, unusual person' that had 'walked into the emergency room'.
They claim it is impossible to have walked in as I did!
-------------------------------------------------
(My daughters notes showed)
After numerous hours of waiting Daddy is diagnosed with acute kidney failure.
Has high creatine level of 120 and should be low 20s.
-------------------------------------------------
Will fill in the rest of it as soon as I sort out some thoughts, and finish going over the detailed day to day notes the
family made.

were strange, those moments,
standing in the angel of deaths doorway,
all is fogginess gray, aware only of standing there,
neither forward step, nor step to retreat,
I'm stuck in this doorway,
why I question, cannot I enter, I am ready,
are you funning with this one!
why, I ask, the game, what lesson to learn,
no words, no thoughts, no visions,
aware only of still standing there,
feeling only nothingness,
were three days, two nights, just standing there,
then from far away, I hear words,
of these words, many repeats, the same, over and over,
I am healing, I am healing, I am healed,
and then, awareness of,
I've finally returned,
knowing well, we will meet yet, another day.
----------------------------------------------------------

Do believe though, that I blew my kidneys, with my pushing the limits with too many experimental protocols.
(this too is quite another story, on why I did experimental protocols, and will for now spare you the tedious read.)

Were it not for a grandson and family urging, would just as well preferred wrapping up this physical existence.

Well, after the emergency room was done doing their tests, was admitted in to the hospital.
 Was in for 17 days. (daughter captured notes for me for all 17 days, bless her patience)
MRI's, cat scans, a thousand blood tests (OK I'm exaggerating a tad here) bland distasteful meals and so it went.
Was a few days before they finally decided that the emergency room stats really pointed to kidney failure.
 
------------------------------------------------------
So am doing three times a week / 4 hour sessions at a near location.
Logged

Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
Zach
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"Still crazy after all these years."

« Reply #1 on: March 23, 2014, 09:11:32 PM »

Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Darthvadar
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« Reply #2 on: March 24, 2014, 01:44:51 AM »

 :welcomesign; to IHD...

Keep talking.. We like talkers!!!... Makes the place interesting!....

Darth, Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
talker
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Talkers oil painting

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« Reply #3 on: March 24, 2014, 03:02:55 AM »

Thank you Darth and Zack for the welcome.

Have seen many posts here, that amplified what research I've done to date on ESRD.

What really tossed this naive one for a loop, was the 'Sex while on dialysis' posts.
First impression was 'Sheesh, what dialysis center allows sex while hooked up to a vampire machine?'.Ok, Ok, laugh all you want. I'm still laughing about that.

Have more to add, but needed to get the first post up and running.

The candle is one of my oil paintings. My blog has more of my paintings shown.

Like from the Sinatra song :

I've loved, I've laughed and cried
I've had my fill, my share of losing
And now, as tears subside, I find it all so amusing
To think I did all that
And may I say, not in a shy way,
"Oh, no, oh, no, not me, I did it my way"
------------------------------------------------
Yes, have shared all those emotions on my life path, painting my 'Tapestry of Life '.

Were it not for all the loving souls that prompted and prodded me along, would have wrapped it all up back
in Nov 2011. Nah, not depressed, only weighing all the 'next' best options.
(Ha whole nudder story, as yet untold)

So, many thanks and hugs to my loving family, that swayed me to hang around for a few more.....................

Be Well
talker
« Last Edit: March 24, 2014, 06:58:35 AM by talker » Logged

Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
Rerun
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Going through life tied to a chair!

« Reply #4 on: March 24, 2014, 05:31:49 PM »

Hi Talker, and welcome to IHD.  This is the place to be if you like to talk.

Stay well,

Rerun, Admin       :welcomesign;
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talker
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Talkers oil painting

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« Reply #5 on: March 26, 2014, 02:22:25 PM »

Hi Talker, and welcome to IHD.  This is the place to be if you like to talk.

Stay well,

Rerun, Admin       :welcomesign;

Thank you Rerun.

Ha, talk, yak away, speak, are strange ways of communicating any type of message.

Realize I'm the newbee here,  :Kit n Stik; , so am very slowly poking in and out of topics and posts. ::) .

So many places/posts that one could make a comment, but that 'over 120 days' would be popping up frequently. :oops;

Oh well will continue  :shy; peeking my way.

Be Well

talker
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Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
Charlie B53
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« Reply #6 on: March 29, 2014, 04:46:38 PM »


I am still quite new to IHD but I lurk, a lot, reading many postings regardless of their age, to get more of a 'sense' of what others have been going thru.

I hope that now you are on D that it has made a maked improvement from the sickness you felt before.  I know it has made a big difference when I started PD.  Still tired, but nowhere near the sick and tired I was before.

Take Care, Stay active within reason,

Charlie B
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shayron1982
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1 Corinthians 13

« Reply #7 on: April 02, 2014, 03:01:32 PM »

Talker, welcome. I LOVE reading your posts. May I ask what is your age? I am trying to get a mental picture of you so when I read your posts I can feel like we are having a conversation. If you do not want to disclose I understand, just curious.
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~Sharon~
Diagnosed with FSGS 2003
AV Fistula upper right arm 2007
On transplant list @ MUSC 2008
PD Cath placed 2013
Started PD at home 2014
talker
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Talkers oil painting

WWW
« Reply #8 on: April 02, 2014, 07:59:52 PM »

Talker, welcome. I LOVE reading your posts. May I ask what is your age? I am trying to get a mental picture of you so when I read your posts I can feel like we are having a conversation. If you do not want to disclose I understand, just curious.

Well now, for the record, will be 88 this June.

Would you believe, it was early this morning that I beckoned my daughter to take a peek at your picture.
Course it was some where around 5:30/6:00 AM, she already walking toward the door to leave for work.
I said 'here is a gal that strongly resembles you, when you were her age'.

I, as time permits, actually bring up the profile of a commenter and read what they posted, to get 'feeling tones' . :clap;
Have numerous tid-bits on my blog that reflect the other side of talker. :bandance;

http://ihatedialysis.com/forum/index.php?topic=30961.msg479209#msg479209

http://www.thetalker.org/archives/250/3-me-do-oils/
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Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
Shaks24
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« Reply #9 on: April 07, 2014, 05:41:26 AM »

A belated welcome to you Talker. Glad you found us!  :welcomesign;
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
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