Rerun
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« on: February 08, 2006, 07:36:49 PM » |
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Okay, now that all the Steroid Withdrawal symptoms are gone, I still have a low grade fever and my old transplanted kidney (area) hurts when I cough, or push on it. They told me that "very rarely, a kidney will need to come out." Have any of you who have lost a transplant had to have it out? If so, what happened? Chronic, not Acute.... I know those have to come out. I don't have anyone to call. What search words should I use? I can't find anything on this.
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« Last Edit: February 10, 2006, 04:56:49 AM by Rerun »
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Sara
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« Reply #1 on: February 09, 2006, 11:43:24 AM » |
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Rerun, try searching under "graftectomy" or "kidney graftectomy." I found one or two things searching through Google using those words, but nothing at WebMD.
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Sara, wife to Joe (he's the one on dialysis)
Hemodialysis in-center since Jan '06 Transplant list since Sept '06 Joe died July 18, 2007
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oswald
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« Reply #2 on: February 09, 2006, 12:11:04 PM » |
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my first kidney died and the docs said that it did not have to come out.i had the pain in the kidney,thought i had pulled a muscle.this went on for about four months continually getting worse.i finally went to the hospital to have the "pulled muscle" looked at, thank god i was in the hospital, i sneezed and the entire right side of me exploded.they operated and pulled out 25 pounds of infection and dead tissue, including the dead kidney.if your in pain, your dead kidney is infected.have the docs run tests for that.get that dead kidney out as soon as possible.
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ESRD 11/95 1st Transplant 7/1996 (failed; Nephrectomy 12/1996) 2nd Transplant 3/1999 (lasted 6 years) 3rd Transplant 5/2007 (lasted 4 years)
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kevno
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« Reply #3 on: February 09, 2006, 02:24:37 PM » |
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Rerun, get that kidney checked out straight away, just in case they is a infection in the dead kidney. DO not let the doctors mess you around, like they did with the steroids. Better to be sure now than sorry later. Kevno (Don't forget! Keep at the Doctors)
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But this little saying keeps me going!!
"RENAL PATIENTS NEVER GIVE UP!!!!!!"
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Rerun
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« Reply #4 on: February 09, 2006, 07:34:58 PM » |
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Oswald....thank you. I have a Nuclear scan scheduled for next week sometime. They are going to call me with the time. The "Dr." stopped by my chair today and asked me if I was going to change centers being she was the doctor there. I told her no, that I was comfortable there and I was not leaving. She said it would be hard if I didn't trust her. I told her I didn't trust anybody! So, she is the one ordering me the Nuclear Scan. I think she will pay a little closer attention to me this time around. I'm pretty sure my kidney is going to have to come out. DAMN!! Sara, thank you too for the "search" words. That helps!
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« Last Edit: February 10, 2006, 04:54:38 AM by Rerun »
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geoffcamp
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« Reply #5 on: February 21, 2006, 09:10:47 PM » |
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How is this going rerun.. I watch with curiosity because I still have my old transplant in too. It has been 3 years, it is a little tender and the area is puffed out a bit but no real pain. A doctor has not examined it in more then 2 years and I am thinking of asking them to take a look and make sure it is ok in there.
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Geoffrey Campbell Diagnosed with ESRD at 26 Transplanted in 1999 rejected 2001 In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
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Rerun
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« Reply #6 on: February 21, 2006, 09:22:35 PM » |
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Well, I went to get the first half of the Nuclear scan today. They took out 60cc of blood (A LOT) and spun it to divide the red and white blood cells. Then they attached radioactive isotopes to my white blood cells and put them back in me. Tomorrow I go back at 9AM and they do the full body scan. They trace the white blood cells. They will go to an infected area. My kidney is killing me. It now hurts when I cough or blow my nose. My little dog jumped on me when I was sitting in a chair watching TV and I about went through the roof!! I would think that after 3 years you would be okay. But, it wouldn't hurt to have your doc check it out. I know this one has to come out. I just don't know why they are acting like we have all fricken' year to do it.
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Rerun
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« Reply #7 on: February 22, 2006, 07:44:35 PM » |
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The Nuclear Scan lit up my kidney. I have an appointment with the transplant surgeon tomorrow. It hurt like hell yesterday and last night and today NO pain!! WTF?
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Black
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« Reply #8 on: February 23, 2006, 11:08:39 AM » |
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The Nuclear Scan lit up my kidney. I have an appointment with the transplant surgeon tomorrow. It hurt like hell yesterday and last night and today NO pain!! WTF?
If you had PKD, I'd say a cyst/abscess ruptured. What did the Doc say?
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Lorelle
Husband Mike Diagnosed with PKD Fall of 2004 Fistula Surgery 1/06 Fistula Revision 11/06 Creatinine 6.9 1/07 Started diaysis 2/5/07 on NxStage
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kevno
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« Reply #9 on: February 23, 2006, 01:51:49 PM » |
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I happy you are getting the kidney sorted out. Don't worry, you will be alright. Now the Doctors have done there Job(at last!) At least you are getting it sorted out a lot faster than the problem you had with the Steroid. How are you doing back on the steroids. I know you said you felt a bit better. Is it getting easier for you.
Kevno
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But this little saying keeps me going!!
"RENAL PATIENTS NEVER GIVE UP!!!!!!"
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Rerun
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« Reply #10 on: February 23, 2006, 07:43:12 PM » |
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Again, this is my transplanted kidney that worked for 17+ years, not my native kidneys that are still in me somewhere I guess it could have PKD and I wouldn't know it. Say the donor had a history in his family. I guess we'll see next week because it is coming out. They need to get back to me on a day and time. GEEZ The only good thing is he said he would take out the Hickman catheter at the same time.
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Rerun
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« Reply #11 on: February 26, 2006, 09:27:02 AM » |
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I have surgery scheduled for March 2, this Thursday. My sister is flying down to be with me and is staying a few days. Then my friend from Phoenix is flying over for another 4 days. It sucks being alone and that is why I have to move back home. I'm going to turn in my disability application for wonk tomorrow (Monday).
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kevno
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« Reply #12 on: February 26, 2006, 03:07:30 PM » |
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Well, I wish you the best with the surgery on the 2nd March. I'm Sure I talk for all on the site Rerun. I hope it sorts out that transplanted kidney, so you do not have any more pain. Will be thinking of you on Thursday, When going on the machine. Yours always Kevno
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But this little saying keeps me going!!
"RENAL PATIENTS NEVER GIVE UP!!!!!!"
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susie q
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« Reply #13 on: February 26, 2006, 04:02:28 PM » |
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Same here Rerun, will be thinking of you on Thursday... Hope all goes well.. take care..
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Epoman
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« Reply #14 on: February 26, 2006, 04:46:09 PM » |
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« Last Edit: February 26, 2006, 06:07:56 PM by Epoman »
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- Epoman Owner/Administrator 13+ Years In-Center Hemo-Dialysis. (NO Transplant) Current NxStage & PureFlow User.
Please help us advertise, post our link to other dialysis message boards. You
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Black
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« Reply #15 on: February 26, 2006, 05:36:39 PM » |
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I have surgery scheduled for March 2, this Thursday. My sister is flying down to be with me and is staying a few days. Then my friend from Phoenix is flying over for another 4 days. It sucks being alone and that is why I have to move back home. I'm going to turn in my disability application for wonk tomorrow (Monday).
So glad you have family and friends but I know moving back home is not an easy choice. Applying for disability has to be a bummer too. Please post ASAP after surgery so we know how you're doing. Hope it goes well and you feel much, much better!!
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Lorelle
Husband Mike Diagnosed with PKD Fall of 2004 Fistula Surgery 1/06 Fistula Revision 11/06 Creatinine 6.9 1/07 Started diaysis 2/5/07 on NxStage
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babi68
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« Reply #16 on: February 27, 2006, 03:17:37 PM » |
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Wishing you a speedy recovery and look forward to your posts Liz
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Rerun
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« Reply #17 on: February 27, 2006, 07:14:28 PM » |
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Thanks you guys! That means a lot to have my friends here rooting for me. I'm not really worried "yet." I do this.... I think it is called denial!
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Bajanne
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« Reply #18 on: February 28, 2006, 10:29:16 AM » |
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Please be assured of my prayers and my brightest thoughts on your behalf. We really want you back and WELL. We need our moderator!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!
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Epoman
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« Reply #19 on: February 28, 2006, 11:42:28 AM » |
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Please be assured of my prayers and my brightest thoughts on your behalf. We really want you back and WELL. We need our moderator!
YES we do.
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- Epoman Owner/Administrator 13+ Years In-Center Hemo-Dialysis. (NO Transplant) Current NxStage & PureFlow User.
Please help us advertise, post our link to other dialysis message boards. You
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Rerun
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« Reply #20 on: March 02, 2006, 12:20:24 AM » |
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Okay, it is past mid-night and I've just stuffed my face and drank my last until the surgery is over. EEEKKKK I picked up my sister at the airport and she is in the guest room "Sleeping" (brat) Maybe I'll go tickle her nose with a string I'll be awake until they give me the "little cocktail". That is my favorite part! Anyway, I don't know how long I'll be away from a computer, but don't worry, I'll BE BACK....... because I'm from CAL e Fron Eia. (Bad Impression of Arnold)
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« Last Edit: March 02, 2006, 12:22:05 AM by Rerun »
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onesicpup
Newbie
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« Reply #21 on: March 02, 2006, 06:10:17 AM » |
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We'll be here waiting for your return. Good luck
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susie q
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« Reply #22 on: March 02, 2006, 06:30:15 AM » |
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Hoping to see you soon Rerun... praying for you today..
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Epoman
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« Reply #23 on: March 02, 2006, 11:02:48 PM » |
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I just received an email from "Reruns" sister and the surgery is over and she is doing well. So she should be back soon better than ever. - Epoman
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- Epoman Owner/Administrator 13+ Years In-Center Hemo-Dialysis. (NO Transplant) Current NxStage & PureFlow User.
Please help us advertise, post our link to other dialysis message boards. You
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Black
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« Reply #24 on: March 03, 2006, 07:50:06 AM » |
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I just received an email from "Reruns" sister and the surgery is over and she is doing well. So she should be back soon better than ever.
- Epoman
Thanks for the good news!!!
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Lorelle
Husband Mike Diagnosed with PKD Fall of 2004 Fistula Surgery 1/06 Fistula Revision 11/06 Creatinine 6.9 1/07 Started diaysis 2/5/07 on NxStage
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