Hey fellow board members - im here to introduce myself.
i guess i should start by telling my story - i ll try to keep it short - i promise
.
Excuse me if my english is bad but as you might guess its not my native language...
allright - first off : i was or better i am a powerlifter - til october 2012 i was pretty mean looking with 144 kgs at a height of 178 cm.
in september 2012 i started to feel sick - i didnt have any pain, edemas or urinating problems - i just felt weak , my temperature was a bit up and i had to throw up a few times (i blamed that on my diet wich i maintained for my sport [over 8000 kcal a day and high protein and water intake ]) so i kept thinking it was a flu or something like that.
since im a very disciplined guy i kept on working , exercising (i was in preperation for my debut in 2013s season) and of course my "bingeeating" diet.
at the end of september 2012 i felt even worse and decided to stay at home and give me a break to get better - but after 2 weeks of resting it only get worse .
it was saturday night when i recognized that something wasnt right with my eyes - i saw everything blurry and had some "blind spots in my right eye . but being a "tough mofo" i thought it was because of the "flu" and went back to bed - hoping that these symptoms would disappear on the next day.
at that time i was hardly eating or drinking anything but sleeping almost 18 hrs a day taking aspirine to feel at least a bit better.
Well of course i didnt feel better and so i decided to finally listen to my girlfriend (im a stubborn guy
) and to see my optometrist on wednesday .
he told me that both my retinas were detatched and i should immediately go to the hospital - not the er but the ophthalmic clinic.
well - now he had my attention and i followed his advice by taking a cab instead of driving myself to the hospital ( turned out to be a pretty good idea - since i was almost blind ( 5 and 8 percent of my visus were left - i am still scared when i remember that i drove my girlfriend to her doctor on monday... ).
after 2 hrs of waiting the doctor called me in , took some photos of my eyes and was astonished - after a few minutes there were 6 docs standing around me and they all told me they never had seen such a case of fully detatched retinas without an apparent reason (ie. a trauma).
they started taking my blood and bp ... the bp was quite high ( 170/100) wich is very unusual for me - normally i am in the high 130s .
when the lab results came back about one hour later they were even more astonished .
my crea was in the high 18s - and i was still walking and talking . no siign of disorientation or other symptoms - they hadnt seen that happen before
.
i got sent to the er ( walked there by foot because i needed some time to calm down and get my mind sorted ) of course they kept me over night - and the next day i suddenly couldnt urinate anymore.
it became more and more obvious that i had a serious problem .
after 2 days i got a permcath and had my first hd session ... crea kept going up (now 25). i was still orientated but feeling pretty sick .
since i still wasnt diagnosed they decided to make a kidney biopsy- wich failed in a pretty terrible way.
with the first 2 biopsy they didnt manage to get through my back muscles - the third attempt punctated an artery wich supplied 1/3 of my right kidney.
after 2 hours the pain got worse and worse - but they wouldnt believe me that it was really that bad (they thought im "bitching" about the normal pain after a biopsy)
2 more hours later the right side of my lower upper body was swollen as if i had swallowed a brick - so the docs finally started to listen to me ( to be true i was shouting and threatening them more than trying to convince them
) and rushed me to the ct.
i had a hematoma of 1000 cc - and was rushed to an emergency surgery where the artery was shut down by a coiling (so i lost a third of my right kidney due to their mistake) - since i already had no kidney function i wasn't put to sleep - that were 3 funny hrs.
the next day i could only move in a wheelchair otherwise the wound would have opened again . and boy.... i hated that .
of course i still didn't have a diagnosis because all the probes were just muscle tissue.
the next few days weren't that exciting except for the fact that i was loosing weight rapidly - i was already down to 105kg due to bad nutrition - that poisoned my body even more.
after a while of dialysis treatment i started to feel a bit better and i was lucky because my friends , family and girlfriend were there all the time from day one . i have never been alone for more than about 30 minutes. with at least 10 visitors a day - i also had a pretty cool roommate who didnt mind having my friends visit me from 7 am to 11 pm .
but after a few days of feeling better i crashed because of a pneumonia - i couldn't even breathe sitting at my bed - i was rushed to the intensive care unit and had to be respirated by a big machine (not just a oxygen mask) , they gave me morphine and drained about 5 liters of water during the next hours . at least i was finally able to sleep after my visitors left ( i had 6 at one time which is actually forbidden at the icu , but i guess they didn't really "ask" to see me but just rushed in
).
after another week i was finally able to go home ... it took me about 20 mins from the car to my apartment ( third floor no elevator -.-).
i was put on dialysis schedule 3 times a week for 4 hours and my crea was about 10 weight went down to a minimum of 92 kg and i was miserable ...
i couldnt stand to see myself in a mirror - all of a sudden i felt so puny and weak it was depressing.
At that point i want to thank my family , my friends and specially my girlfriend for not abandoning me
. i wasn't really a fun person to be with anymore.
so against all odds i started lifting again (only 3 times a week) - and after a while even my kidneys seemed to pick up work.
i slowly improved (physically and mentally ) and my health was better - i was able to urinate again - at first just about 500 ml a day but hey - drinking 500 ml more felt soooo good.
since there was a small chance that i wouldnt need a fistula i kept the permcath for about 6 months .
in march 2013 ( already back to 110 kg) i decided its time to move on since i hated that permcath thingy ( it was damn hard to exercise with that thing ) .
so i pushed the docs to find a way i could keep training - and after 2 weeks of discussions they reccomended pd with a very well secured pd catheter. so pd it is
.
after a month of healing i got rid of the permcath and started capd- boy that was an ordeal ... no spare time ... running around bloated all the time - the capd consumed my whole day - i hated it.
So i urged my docs to give me a cycler - after 2 weeks of capd i finally got my baxter homechoice pro and i loved it pretty much from day one . apart from a few travelling restrictions and bad sleep at night (only for one month ) it was great- i finally got my freedom back.
my kidneys made big steps towards normal behaviour - today im able to urinate up to 6 liters so i can basically drink whatever amount i want (lucky me
) and my lab reports get better from month to month - even my weight and strength increased greatly.
right now my crea is below 10 , phosphate and kalium are in the low normal range of a healthy person and my weight is at 135 kg at the moment (still increasing). actually im even thinking about competing again ...
i havent got any edema since i got my cycler in april and i dont need any additional uf
even my renal kt/v went up big time (3.0 without dialysis at the moment
) and 3,6 with dialysis plus my renal kt/v
well i guess that's it about me - if i forgot something i will edit that in later
.
Regards
Phil