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Author Topic: I Have Good News!!!!  (Read 2656 times)
KarenInWA
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« on: November 18, 2013, 07:10:48 PM »

As some of you here may know, I was transplanted almost 2 years ago with a lovely live donor kidney I named Lynette. Lynette was generously and lovingly given to me by a non-blood related relative, Lynn. She is my Dad's cousin's wife. The age for live donors tops out at age 70 at my tx center, so she was able to donate to me at the age of 67. She has always been in incredible health, and even healed from her surgery quicker than most younger donors. She even went on a 2-week cruise 8 weeks after our surgeries!

Sadly, Lynette was injured by a biopsy that was done at almost 4 months out, and she has never been the same since. The best my eGFR has been since is 17 w/a creatinine of 3.2. Because of this, my neph referred me back to the tx center to get me back on the list. I am choosing to remain inactive while my labs are stable and I feel fine.

My tx center has been really easy to work with! They even put me back on the list before getting any of my testing done (doesn't really hurt to do that given that I'm inactive). Today, I met with one of the surgeons. She's new to my tx center since I've had surgery done, but she is obviously very experienced. I was impressed  :)

So, here's the good news - after having 1 transplanted kidney (from a woman who had 3 kids) and 2 units of blood when in the hospital after emergency surgery due to injury from the biopsy - I HAVE 0% ANTIBODIES!!!!! THAT'S RIGHT - 0%!!!!!  :yahoo;  :yahoo;  :yahoo;  :bandance;  :bandance;  :bandance;  :cheer:  :cheer:  :cheer:

As you can see, this made my day. And it's raining and icky out here in the Seattle area, but I don't care! I have 0% antibodies and a tx center that feels bad and wants to do things right next time!!! Works for me (and we are all on the same page that the main goal right now is to hopefully have Lynette for a long time. That can't hurt, right?)  :2thumbsup;

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
MaryD
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« Reply #1 on: November 18, 2013, 07:18:01 PM »

That IS really good news for you.    :yahoo; :yahoo; :yahoo;

I hate biopsies - hoping Lynn stays well
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Jean
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« Reply #2 on: November 19, 2013, 12:42:45 AM »

That is really Good News!!!!!  :bandance;   :bandance;
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One day at a time, thats all I can do.
monrein
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Might as well smile

« Reply #3 on: November 19, 2013, 03:46:14 AM »

I didn't realize that you were at 17 and that makes me feel sad and mad all at once.  No antibodies though is fantastic news and a great advantage.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!

« Reply #4 on: November 19, 2013, 07:29:36 AM »

  :flower;
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Deanne
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« Reply #5 on: November 19, 2013, 08:08:24 AM »

I didn't realize you were only at 17% function now, either. I don't "talk" to you very often, but I watch your posts. You're similar to me in age and not that far away, either. That isn't just good news - it's incredible news! I'm sorry you need to think about another transplant so soon, but I bet you're on the top of the world right now.  :bandance;

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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #6 on: November 19, 2013, 08:37:41 AM »

I am sorry about the GFR but the antibody news is awesome. That means Lynette was a very good match!
Jenna never had any transfusions or pregnancy but the desensitization never worked prior to her transplant (we now know) so she's at 100%. So frustrating!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
CebuShan
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« Reply #7 on: November 19, 2013, 12:10:47 PM »

Great news!   :clap;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
willowtreewren
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My two beautifull granddaughters

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« Reply #8 on: November 19, 2013, 01:25:10 PM »

Good news!!!!

Hang in there Lynette.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lainiepop
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« Reply #9 on: November 19, 2013, 02:05:59 PM »

Wonderful news bout the antibodies , it all Confuses me as to how some people have high and some low despite transfusions etc , So amazing that yours are 0!

And hoping Lynette stays wor King enough to keep u well for a long WhiIe Xx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
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