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Author Topic: Tataratara!!  (Read 3981 times)
cassandra
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When all else fails run in circles, shout loudly
« on: October 24, 2013, 10:27:47 AM »

      :cheer:


Today is exactly 1 year ago, or 260 D sessions with Nxstage !!!!!
And I'm still here!!!

And today was a gorgeous, sunny, dry day!!!!

Oh how I hate D, most people in 'white coats', and people who refuse dead family members to leave their usefull organs behind etc.

But after 2nd time D since '98, and 'sitting on the machine' I'm sure happy to be: still alive!

   
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
KatieV
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« Reply #1 on: October 24, 2013, 10:31:48 AM »
Congrats! 

In exactly a week, it'll be my 2nd anniversary of starting NxStage.  Dialysis is rotten, but I think NxStage gives us a bit of our life back.
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~~~~~~~~~~~~
March 2007 - Brother diagnosed with ESRD, started dialysis 3 days later
April 2007 - Myself and sister also diagnosed with Senior-Loken Syndrome (Juvenile Nephronophthisis and Retintis Pigmentosa)

Since then, I've tried PD three times unsuccessfully, done In-Center hemo, NxStage short daily, Nocturnal NxStage, and had two transplants.  Currently doing NxStage short daily while waiting for a third transplant.

Married Sept. 2011 to my wonderful husband, James, who jumped into NxStage training only 51 days after our wedding!
~~~~~~~~~~~~
cassandra
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When all else fails run in circles, shout loudly
« Reply #2 on: October 24, 2013, 10:43:11 AM »
Sure does, and thanx, I can't believe it sometimes
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Jean
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« Reply #3 on: October 24, 2013, 12:16:37 PM »
Congratulations!!!
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One day at a time, thats all I can do.
obsidianom
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« Reply #4 on: October 24, 2013, 01:28:24 PM »
Good job!!  I agree dialysis is a pain but NxStage makes it easier. We are on our second year also. Hope to see all of us in another year too.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #5 on: October 24, 2013, 05:55:22 PM »
Way to go, Cas!  :2thumbsup;

Aleta

PS: We only did NxStage for 2 and a half years. Last night Carl said that doing dialysis was not as bad for him as the Lyme disease was for me. I guess it is all about perspective.  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #6 on: October 24, 2013, 10:38:14 PM »
Thank you, thank you my sweet people

      :guitar:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Speedy1wrc
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« Reply #7 on: January 22, 2014, 06:47:44 PM »
Congratulations!

This week marks one year on NxStage for me and almost two on D this go round.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #8 on: January 23, 2014, 06:45:55 AM »
Congrats too Speedy1wrc

    :cheer:
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Simon Dog
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« Reply #9 on: January 23, 2014, 10:50:10 AM »
Just had my one year hemoversary, progressing from femoral cath->central line cath->in center->home(BabyK)
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cassandra
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When all else fails run in circles, shout loudly
« Reply #10 on: January 25, 2014, 02:21:00 PM »
At which stage are you now Simon Dog?
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Angiepkd
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« Reply #11 on: January 25, 2014, 08:14:07 PM »
Congrats Cas! My one year NxStage anniversary is coming up in about a month. Not too bad!  And like you said, we are still alive!  Hope things continue to go well for you!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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